Tag Archives: winning

#59 Post Surgery

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Author unknown……..who wronged me…..Cancer

It has been 12 days since my surgery, every day is better. The expanders have been removed and the Saline Implants have been inserted. My surgery was done on an outpatient basis, therefore after a long day that started at 630 am, I came home that same day. The surgery itself took about 4hrs then about……honestly the drive home is a blur, I do remember it was already getting dark.

My husband picked up my medications (pain med and an anti-biotic) at our local pharmacy, the time on the receipt is 7:34 pm, so that gives you an idea of how long of a day it was. Once I was home I was fine, not nauseas, however all that changed a couple of hours after being home.

The vomiting started, apparently steamed broccoli and red rose potatoes with a dairy free cheese sauce is considered a “heavy meal”……..my discharge papers did say “regular diet”. However after calling the plastic surgeon to let him know of my inability to keep anything down, he said I should be on a light diet till my entire body wakes up from the effects of the anesthesia. He immediately prescribed Ondansetron for the nausea.

Dr Eko did offer to admit me into DRMC for one night following the surgery which I declined. My history from waking up with projectile vomiting after general anesthesia prompted this offer. I was not experiencing  nausea when he asked me this question, so I told him I wanted to go home that night. The anesthesiologist, fully aware of my history had given me anti-nausea medication during the surgery………..here is the sad part,  I immediately thought of the insurance and would an overnight stay be covered! My surgery that took place on August 22, 2017 did require an overnight stay, however the insurance is fighting paying the bill! They are challenging it saying that an overnight stay was not necessary. I don’t understand how they could think that it was not necessary….I should send them the picture from my blog with the four drains!!!

Speaking of drains, this surgery did not require drains, just stitches with a transparent dressing across the chest. The dressing was removed at my first post op appointment on February 7th. I am a little swollen, I do have completely mobility of the arms.

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The pink restricted arm band is due to my having my Lymphnodes removed on my left side when I had my mastectomy. I could only have blood draws and or I.V.’s on my right side now….this did not hurt, my veins were hiding. It bruised up pretty ugly, also bruised up at the wrist in two areas where she attempted to start the I.V., she was successful in the end…………I actually felt really bad for her, and I do remember when we were chatting I asked her how long she has been a nurse, it was 30 something years. At least she was gentle.

Whats next? I can not exercise (Pilates) for 6 weeks! I could only walk, however I think I might have broken a toe! Yes, that’s right…..I walked into a chair slamming my right foot into it. The bruise in now surfacing, the toe hurts like no other, I am beyond upset about it. My husband offered to go on a walk with me as he knows I want to do some type of physical activity. I put my tennis on, oh and it hurt. We walked down the street, I was in pain but refused to give in….I wanted to go walking! It was painful!!!!! When we got home and I took my tennis shoe off my foot was throbing…..can not believe I did that to myself. Jack had no clue as to the pain level, because I did not say anything!

If you have read to this point I thank you so much for reading my blog

My next follow up appointment is next week on the 21st, we will be discussing the procedure to create a nipple on my nippleless breast! Stay tuned!

Pina

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#58 Silicone Gel Implants !

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The final phase of reconstruction has arrived, tomorrow morning I will have my surgery.  My expanders, which I nicknamed “cinder blocks” will be removed and replaced with Silicone Gel Implants! Some people think, awesome ….you get implants! I’m sure I have said this before in a previous blog…..reconstructive surgery and a breast augmentation are two total different surgeries. An augmentation is an “enhancement” of you breast. Where as all my natural breast tissue and nipples have been removed and the implants will be placed to form a breast. Later, I will have nipples tattooed.

In the picture above, I am at my primary doctors office, this picture was taken today. The reason I was at the doctors today is because I ended up with a sore on/in my nose. I was placed on an anti-viral med and had to come see the doctor today. If the sore did not scab then my primary doctor was going to recommend that my surgery be delayed! Good results…it scabbed….the surgery is on!

The operating room is reserved for four hours tomorrow. I arrive in the morning, with pre-op time and post-op time, it could be a seven hour day. It is an out-patient surgery so I will be coming home tomorrow.

The pictures below were taken this past week end. I am so glad that my husband and I were able to get together with my cousins and spouses. Words can not express how much these two dahlings ( I know that is spelled wrong, that is the pronunciation we use) mean. My cousins have been so supportive through out this journey, besides my husband and kids.

 

Notice the label on the wine bottle says “Group Therapy”….that was the best group session ever!!!!

Maholo for taking the time to read my blog, I need to go take a shower with “Hibicleanse”  to prep for tomorrow.

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57: Phase 2 of Reconstructive Surgery

The much anticipated appointment went well. Last week on January 12th my husband Jack went with me to my appointment at the Plastic Surgeons office. Dr. Eko examined me and was pleased with the progress thus far. Of course my husband being the jokester that he is participated in the examination, however when he pressed on my boob he had his finger on his phone and activated a “squeaky toy” sound! Oh my honey…..got to love that man….we all got a chuckle out of it and proceeded with the exam.

On my previous blog I mentioned how the non cancer breast (the right one) has dropped and the cancer side is standing tall in place. The left side has been irradiated….though the  tissue on the outside looks fine, underneath the shin the tissue is damaged from the radiation treatments. The right side is natural tissue without radiation damage, hence the reason for it dropping, getting nice and cozy in the excess tissue from the skin sparing mastectomy. The excess tissue will be removed along with the tissue expanders and the implants will be placed. Dr. Eko will even the girls out when he puts the implants in.  I remember from previous appointments he would stress that they will be “sisters, not twins”. He will use the same scar, however the scar will be made longer in order for him to remove the excess tissue. I am unclear on whether or not I will have drainage bulbs again, as I for got to ask…….he didn’t mention them during the exam so maybe not! ( we will see)

After Dr. Eko was finished with the examination and questions were answered, Patricia took me into the “photo room”, where she took a series of pictures of me for the surgery. Through this journey called “breast cancer” you definitely lose all modesty. I can not tell you how many times since August 2015, I have been asked to disrobe from the waist up! I must say that with all the medical professionals that have examined me or have just been along side an MD while I was being examined I have never felt uncomfortable, every caregiver has been so compassionate through out this journey….I am very fortunate to have the medical team that I currently have and my team on the island of Hawaii.

Phase 2 of Reconstructive Surgery  will be February 1st !!

Mahalo for reading my blog!

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56: Hello 2018 !

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This past year has flown by so fast, looking back at 2017, I am amazed on where this Breast Cancer Journey has taken me. I took the picture above while on a walk with my nephew and his family in Oak Glen, near Yucaipa. Using my 84x zoom, from where we were we could not see all the nuts he was storing!!!!

My reconstructive surgery was on August 22, 2017. The expanders that were placed were inflated once a week for four weeks following the surgery post op appointment. Four inflation appointments starting on September 6th, ending September 25th. Definitely having this very large needle being pierced into your breast is not for the weak. My husband was with me for every appointment and watched as the Plastic Surgeon took the syringe, and injected the saline into the expander. Was in painful? Hell ya! I felt it more on the left side as the skin on the left was radiated ( 29 times!). The right side ironically,  where the PS injected was where my medi-port used to be, so the skin is deadened from the port being accessed for Chemo and subsequent monthly flushes, blood draw etc…….IMG_0876

The three month mark since the last expander inflation is fast approaching. The plan was to wait three months after the last inflation before doing the next surgery to exchange the expander for the implants. It would have been nice to have it done this year as we have met our deductible.

From Bricks to Cinder Blocks

Initially I called the expanders bricks….when all was settled they changed to cinder blocks….they are rock hard! Funny,  when I hug someone I find myself apologizing for my cinder blocks! They are really high up on the chest wall. The right side has dropped down some, but the left side is standing tall and proud!

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The mastectomies  where skin sparring, so when these expanders come out the excess tissue will be removed, the arrow is pointing the extra tissue on the left side. The straight lines are where the scares are, and remember I opted for non nipple sparring….the goal is NO reoccurrence ! I so plan on tattooing either 3D nipples or flowers covering the scars….who knows how adventurous I will get!

My appointment with my Plastic Surgeon is January 12th, at this appointment he will examine me and take pictures of me (without a top on) from the waist up ommitting my face, and he will have me remove my necklace, actually his nurse is the one that takes the pictures.  This series of pictures taken are for his use, so that he can plan his surgery on me, pictures were taken prior to this surgery as well.  I expect that the surgery will happen late January of early February….I’m anxious…I want to get this done.

Today is New Years Eve, my honey is sick so it will be a low key evening for us. I wish everyone A Happy New Year filled with Joy and Happiness, live life to the fullest, don’t take life for granted…….I would say that I am doing pretty dang good, but I would not wish this journey on anyone!   #F*%#cancer (pardon my french)

Mahalo for reading my blog…Pina

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55: Reconstructive Surgery

 

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Ok, This shit just got real! Warning graphic picture included in this blog

My surgery was one week ago today. It is kind of hard to describe what goes through your head as you are going to the hospital, walking in, registering, signing the anesthesia consent and being told the risk……reconstructive surgery is a choice, not a medical necessity. I decided I wanted this. As a licensed Mammogram Technologist, when doing a mammogram on a patient with implants, sometimes I wondered why they did it. Especially when they appeared to have adequate breast tissue in front of the implant. And what didn’t make sense, is when they had risk factors for breast cancer and got implants placed! I always thought I would never get implants, just wear good bras to bring the girls up some! LOL! My road to implant placement is different, it’s reconstructive surgery after breast cancer.

I will be forthright in sharing my experience as this has always been the purpose of my blog…..to share truthfully, to educate, to share my BC journey, so my apologies if anyone is offended by words typed or pictures posted.

I was wheeled out of pre-op into the operating room about 1250, with the surgery ending about 1830hrs, making surgery time just under six hours long. I was admitted to the hospital third floor at DRMC. I don’t remember much of the first three days after surgery, I think the pain pills had something to do with that! I do remember vomiting when I got to my room and feeling like my chest was going to burst open! Once we got home after my one night stay at DRMC, I do remember my eldest daughter (nurse Nikki)  making me eat regularly and giving me a slew of pills on a regular basis, draining and stripping my drains, documenting the fluid from each drain three times daily, showering me and dressing me.

My arms ached and the did not extend out much, initially after surgery.  I was so thankful that by the time I had my first bowel movement (4 days later) I was able to clean myself! I would have been mortified asking my husband or daughter to wipe my #@** ! My daughter was not too concerned that I had not pooped till then as I was passing gas regularly…..I realize this is one of the TMI moments! OK, enough of that subject.

My husband (quite the comedian)  says I have Tyrannosaurus Rex arms! He is having fun (at my expense) about my limited reach! (maybe I should have had him wipe my #@** ! However,  he has been quite helpful with draining my drains, showering and combing my hair etc. You don’t realize all the things that you can not do for yourself after a surgery. The plastic surgeon was clear when talking to my family that I could not do anything! So it has been a little hard on me know that I am more mobile. Simple things like tidying up the kitchen, or wiping a spot on the tile floor….I just have to look away, my family has been great doing everything.

How does it look?

The expanders are placed really high on the chest wall, literally just below the clavicle! I knew this so I was not freaked out when I saw them for the first time…..I am swollen, with time this will go done. I have the four drains coming out of my body, which I know some people get freaked out about. I have an appointment tomorrow Wednesday the 30th with the PS, two of the drains will come out. (ouch) Right now the scars are held together with a type of Dermabond (skin glue). For me too look at my chest wall right now I am a bit taken back on the appearance of them. But I know that this is not the end result, this journey will not be finished till the end of this year. So please keep that in mind when looking at the picture that I will include with this blog. I thank you for reading this blog to this point, as I realize it is a long blog.

I am literally a little nervous about the following picture, but if these pictures just helps one person out there debating weather of not to go through reconstructive surgery then  it was worth posting. And if you are on the fence of decision making please follow my blog to see the end result towards the end of this year, if that is too long to wait then research reconstructive surgery pictures……your Plastic Surgeon should be able to provide you with pictures as well.

I seem to have breezed through Chemo, Mastectomy and Rad TX, but honestly this shit just got real! I remember my husband telling me not to do reconstruction for him! My response: Oh, IF I have to go through this shit (meaning treatment) I’m going to get new ones out of it!………..So bring on the final phase………Reconstructive Surgery.

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The first pictures was taken on our 20th wedding anniversary trip to Maui…here we are in our 30th year of marriage, who would have thought we would be going thru this (notice I said “we”) because your diagnosis affects the whole family! I am blessed to have a very supportive one ……….#bumpintheroad

Thank you for reading……Pina

 

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54: Surgery Date Set

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It seems like just yesterday my breast cancer journey started. As a matter a fact this month marks two years since my diagnosis. It was August 18th that I had my biopsies that resulted with those dreadful words….”you have cancer”! Many of you have kept up with my journey via this blog, and I thank you for your messages and support.

Now that Chemotherapy, Left Breast Mastectomy and Radiation Treatment are behind me, it is now time for reconstruction! The decision to have a Right Breast prophylactic Mastectomy was an easy one for me as I am aware that I am high risk for a reoccurrence.   This past month (July) I had a little scare, I had a Breast MRI, and was called back for a second look on the right breast! I immediately thought “oh crap….here I go again”! Fortunately it was nothing and I was given to go ahead to proceed with the surgery! (sigh)

The surgery will happen on August 22nd, as of today I do not have a time. I will have two surgeons working on me. While the Breast Surgeon is performing the skin sparring mastectomy on the right side, the Plastic Surgeon will be placing an expander on the left side. When the PS is finished with the left side and the right side mastectomy is complete he will the place an expander on the right side. When I wake up, I will have four drains, two of which will be removed one week after surgery. The other two drains will be removed when fluid has subsided. After the scars have healed somewhat, the Plastic Surgeon will then start to fill (inflate) the expanders weekly till desired fullness has been reached. After about three months of healing and praying that my body does not reject the expanders, the expanders will be switched out with the implants. The goal is a C cup:)

People have to understand that this is Breast Reconstruction after treatment for cancer…..it is not an Augmentation…….huge deference! I am thankful for the medical team that I have, but most of all for my husband and family without them this journey would have been impossible,  I know that I am in good hands!!!

I always mention a little something about the picture I include with my blog. My husband  and I took a quick little getaway trip to Maui the last week of June. This sunset picture was taken using a sunset setting on my camera, it cracks me how people (tourist, visitors) leave the beach as soon as the sun disappears from the horizon. This pictures was taken approximately 20 minutes after the sun had set! Dependent on the clouds, there is usually a show of colors AFTER the sun has set….you just have to be patient….dinner can wait !

Mahalo for reading my blog

I just got a call from the hospital, they verified name and insurance etc…. they will call me the day before the surgery with the time of the surgery!

 

 

 

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52 & 53: Reconstruction

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I’ve never been one for selfies but I wanted to share how much my hair has grown and how curly it is! My hair BC (before cancer) was curly but not as curly as this…. I will take what I get as some women that were given Taxotere are not getting hair growth back.

June 20th marked one year since my last Radiation Treatment, I had a total of 29 rounds to the Left chest wall at The Pacific Cancer Institute on the island of Maui, from May 11th to June 20th. The plan all along has been to do delayed reconstruction. My team at PCI thoroughly explained skin care to me which I followed to a tee. The week after I started Radiation treatment I was referred to a physical therapist for John Barnes’ myofascial release technique massage. I saw my therapist twice weekly thru the month of July 2016.  I was also prescribed Mometasone Cream for me to “gently” apply post treatment. Hence, my skin flap is pliable, and not hardened.

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These pictures are of  just two types of reconstruction surgery known as Autologous of “Flap” Reconstruction. This is not the type of surgery I will have but the surgeon did go over the details of these two types of surgery. Reason being, IF my body rejects the Implant Reconstruction, this is “Plan B”. I will pray that my body does not reject the implants as these surgeries are more invasive.

 

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53:  A Show and Tell Moment

In February of this year at my first meeting with my Plastic Surgeon he gave me homework. He wanted me to research as to how many cc’s I wanted my implants to be. I told him on how before cancer my breast were not symmetrical, my left breast was larger than my right breast. Although this was not noticeable with clothes on, I was limited to style of bras and swimsuits because of this. So, I told him I wanted them to asymmetrical (same size)…..he smiled and said he can do that. My husband chimed in and asked the surgeon if he can place a set on my back so he would have something to hold on to when we slow danced!!!!! We burst into laughter….got to love my husbands sense of humor!!! ( I hope this doesn’t offend anyone)

So, how does one determine reconstruction size? You google it, Pinterest it, or simply ask a friend! I was at the Cancer Center talking to my good friend and fellow Mammography Technologist Extraordinaire. I mentioned my dilemma to her, before I know it Catherina and I are in the bathroom for A Show and Tell Moment. She was quite impressed with how pliable my skin sparring mastectomy is, as Mammographers we are oh too familiar with what a post radiated breast can look like. She showed me her implants and her size, decision made, I will shoot for a “C” cup! I also have to keep in mind and make it clear to my readers that mine is a “reconstruction, post mastectomy” and not a “breast augmentation”, so end result can vary…..I will have no nipples, they can get tattooed on later!

Exactly what is a Modified Radical Mastectomy, Skin Sparing? Basically my nipple was removed (I opted for non-nipple sparring) along with all the breast tissue. For those of you that have been following my blog from the beginning, you will recall that the Breast MRI that was done when I was first diagnosed found an additional cancer on my left breast,  4mm away from the fascia of the chest wall, straight back from the nipple at clock face 12:00. What is left behind is a deflated breast, all my breast skin was sparred minus the glandular tissue…….I have a deflated boob.

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I was in Redlands last week signing a release of medical records for my primary doctor in Palm Springs, he wants surgical notes of my Hysterectomy/Oophorectomy from 2009. (I sure am missing a lot of parts now!!). I stopped in at the Women’s Health Imaging Center to say hello to Renee, we chatted a bit about my blog amongst other things. I showed Renee this picture and how I wanted to share what a “skin sparring” mastectomy was. I took this the above picture after doing my exercises, I was cooling down, stretching. But I wanted to show more, I wanted to share the actual skin flap.

So what does a good friend do….offer to take photos for your blog!!! Renee and I quickly go into one of the mammography room, off comes my blouse, bra and Betty (that’s my prosthesis name) another Show and Tell Moment! Mahalo Renee for taking these pictures for me on a whim!

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Needless to say, I am ready for reconstruction. Today June 21st I went to the Plastic Surgeons office, the appointment went well. My husband Jack was with me. There was a moment of laughter when the topic of the prophylactic mastectomy was discussed, the surgeon asked if I was going to spare (keep) the right nipple? I said no, I don’t want to be like a one-eyed pirate when the nipple is hard! I closed one eye and said “arrrrggg”, the surgeon laughed……it was a funny moment. So what’s next? The  Breast Surgeon’s office will be contacting me to schedule labs, chest x-ray and an EKG. The surgery will then be scheduled. The Breast Surgeon Dr. Laura Lee will do the Right Prophylactic Mastectomy and the Plastic Surgeon will be doing the reconstruction placing the expanders. Post operative I will have four drains, two on each side. Two of them come off one week post-op. The other two come off after the fluid drainage has subsided. Expanders will be expanded every week until desired fullness is obtained. Then, three months later, like in December sometime the expanders will be switched out for the implants.

Holy smokes this is a long blog! If you read it to the end, many thank yous.

Mahalo, Pina

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49: Scale of 1-10

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Just a quick blog to keep you updated on my journey. Since moving back to California from Maui, I have established with my new medical team. As previously mentioned the prophylactic mastectomy (mastectomy of the non cancer breast) will happen in July. Since then I have been staying busy with multiple doctor appointments, monthly port flush, blood work etc….

Well somehow I managed to irritate my left wrist. Back in November of last year I remember my left wrist starting to ache. Because the Arimidex causes body aches I just brushed it off as a side effect of that. I don’t remember any trauma to my wrist, but maybe with packing, moving, coming back to Cali and gardening I did something to it. The pain is now traveling to my left shoulder, scapula and neck making everyday task extremely challenging….even typing this blog is uncomfortable not to mention driving!

An X-Ray of the wrist was negative, so tomorrow I will have a left wrist MRI. My primary doctor is determined to find the cause of my pain. I was asked on a scale of 1-10, 10 being worst what is your pain level….my answer 15! With certain movements of my wrist, I literally come unglued…..so painful.

This month I will also be having my follow-up Bone Density Scan and my Chest CT. I asked my medical team if these scans can be done the month of April instead of May, as come May 1st my insurance coverage is going to change (covered under husband, his company got bought out). I was just informed by the Cancer Center that we have almost met our deductible, if our insurance changes May 1st we will have to start over again…..just grateful to have insurance. I just hope that I don’t have to switch doctors, because I really like the doctors that I have established with.

The picture above is a Long Bearded Iris…..my wrist is hurting, but my flowers are beautiful!!!!

Mahalo for reading my blog

Pina

 

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48:Time Flies!

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Aloha everyone, my how Time Flies! It has been one whole month since leaving Maui back to our California home in Yucaipa. I am adjusting daily, the hardest thing has been the weather. I don’t believe there has been a day where it has reached 70 degrees! The above picture was taken last night from my home…..one can never used to how beautiful sunsets are.

I have established with my new medical team here in southern California. My new medical Oncologist is at the Cancer Center where I used to work prior to moving to Maui. I have had two appointments with him last month, the first being on February 13th. I was a bit overcome with emotion on that day, it was just surreal to walk in there as a patient and not an employee. Everyone that recognized me gave me hugs and well wishes, again the morning was rough for me. I really like my new Oncologist, he took the time to talk to me about my past treatment and the plan moving forward. I still have my medi-port, so he had the nurse flush it, and draw labs before I left. I have nurse visits for port flush for the next two months with my next Oncologist and labs appointment on May 25th. I established with a Primary Care Physician (PCP), also in the Palm Springs area, he ordered labs as well, I go back to see him next week to discuss the results of those labs. My PCP also asked about my decision to do a prophylactic mastectomy. My response “dense breast”. For those of you that have been reading my blog from the beginning you will recall that my breast cancer was not caught early due to the composition of my natural breast tissue. Which brings me to the picture below! Looking at the formation of those clouds reminded me of my dense breast tissue!! The white represents dense tissue and the blue representing fat. LOL….only a Mammography Technologist will look at the clouds and compare it to breast tissue!!!!…..yay,  try to find a tiny cancer starting in that hot mess!

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Plastic surgeon appointment:

I met with a plastic surgeon to discuss my reconstruction options. My husband was with me which words can not describe how much his presence there made a difference to me. The plastic surgeons office had an extensive questionnaire which was emailed to me and I had plenty of time to properly fill it out. We talked about the options of reconstruction (which I will save for another blog)

Basically, my last Radiation Treatment was on June 20, 2016 I had 29 rounds…..so, he will not do the surgery until one year has passed from that date, giving my skin enough time to heal from the mastectomy and the radiation treatment. My next appointment with him is on June 21st, which at this time we will proceed and get the prophylactic mastectomy and reconstruction scheduled.

Mahalo for reading my blog

Pina

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47: MDI Ohana

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Much mahalo MDI for all the love and support since my Breast Cancer diagnosis! God has a plan for all of us and I truly believe I was meant to discover my breast cancer while living and working on this beautiful island of Maui. My decision to stay here and go thru my cancer journey here with all of you was the right choice. Because of all the love and support from my MDI Ohana, the Maui Canoe Club, friends we have made on this island and my family, I was able to kick cancers (you no what!) It was an honor to work with such an amazing team. My Oncologist thought I was nuts when I refused to get put on medical leave during my treatment, this job is what kept me motivated, and helped me thru the aggressive treatment with flying colors!

To all the patients that have reached out to me to wish me well, I thank you from the bottom of my heart. Mahalo Ruth (printed with permission) for the dinner date, I enjoyed our visit and will keep in touch

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Today was my last day working at MDI, this time next week I will be on a plane to California. This will be my last week end living here, so until February 3rd, I will be tying up loose ends before I leave and enjoy the island.

Mahalo Maui for being so therapeutic for me!!!!

Mahalo for reading my blog……Pina

 

 

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