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#77 Pre-op/Post-op

Six Drain Tubes

Wow ! Where to begin! The non-cancer side (RT) was reduced/lifted and treated with fat transfer for contouring. The left received fat transfer through two small injections on the flap mound. The healed previous scar was not manipulated.

Scare revisions: The gluteal (buttocks) scar was revised, with fat transfer for contouring. The front diep flap scar was revised, the scar will now sit lower below the umbilicus, and will be tighter. For those of you that have been following my blog, you know that I have a long scar on my back from the latissimus dorsi, surgery in November 2018. My NOLA surgeon asked how that scar felt. I answered honestly,:the scar has been bothersome, sometimes it pulls stopping me in my tracks we talked about revising that scar as well, which he did. It turns out there was a void underneath the scar wear he had me point to at my pre-op appointment.

Seems like a lot, I am not in pain🌸 I did not expect all the scar revisions, however when we talked about it at my pre-op it made sense, especially for the Lat- D scar!

The Lat-D scar is long, starts just below the left shoulder all the way down to below the waist line. I grateful for this facility an all their expertise with breast reconstruction.

The current plan is to discharge me today, I will finish my recovery here in NOLA till next week, we will fly to Cali for a couple of weeks after that. I have always said “ all want is two boobs” I know they will never be twins, I am good with “sisters”

This time it is working 💞🌸Mahalo for reading my blog and continued prayers for Lahaina🏝️ Pina (Josefina)

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Back on Maui

Jack and I arrived on Maui Wednesday the 15th, just al little over a week ago. We got somewhat settled, our daily routine in the morning with shower and dressing the left takes my husband about 1 1/2 hrs in the morning. I still have to two hip drains and those are emptied and logged 2x daily. Unfortunately the incision started to pull open. Our communication with the PA in Louisiana asked my husband to pack the opening after cleaning it with Dakin’s Solution. Well, we can not purchase Dakin’s Solution anywhere on this island, we ordered some on amazon. There was also a piece of tissue sticking out that they told my husband we can cut off with sterile scissors. This was a bit beyond what my husband was willing to do. Unable to get get at the Wound Care Clinic here on Maui, my PCP Dr. H. Haynes managed to get me to be seen Monday with Dr. Lugo here on Maui. I can not tell you how grateful I was that he worked me in on Monday.

Dr. Lugo assured me that the flap was doing well and that the healing process would just take time. He changed the dressing which included snipping off that hanging tissue and showing Jack how to clean and pack the open wound. Since we are unable to get Dakin’s Solution we are using sterile saline, which the surgeon in Louisiana said was ok.

On Tuesday we talked to the surgeon in Louisiana and discussed the wound care. On Thursday (yesterday) I gave them updated pictures of the open wound. We give them pictures on Monday and Thursday. This morning (Friday 3/24) the P.A. called to let us know of the meeting with the surgical team they had with the pictures I have been supplying them with. They asked we would be willing to return to Louisiana so that they can be more hands on wound care. Jack and I leave on Sunday arriving in Louisiana on Monday, will go straight to The Breast Center, where I will be seen at the clinic than admitted to their hospital.

Physically I feel really good, I am literally not doing anything. I pass my time reading, painting by numbers and doing puzzles on my iPad. The picture above is a completed puzzle, you have the option to save it as a picture when done.

I am no artist, but below is a drawing. Normally I would add pictures, however I am choosing not to, due to how graphic they are.

Tomorrow I am entering a new decade (as my dear cousin put it, we are both 1963 babies) I will be relaxing and prepping for our trip back to NOLA.

Mahalo for reading and all the well wishes…love to all

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67: Time For Healing

 

We are now in the month of May and I did not realize that I have not blogged this year! I received a message asking me about my progress and it made me think about the last time I blogged…so thank you for the gentle reminder.

Wow here it goes, in February I had a very candid talk with my plastic surgeon about moving forward with reconstruction. The decision was made to put off reconstruction to allow my body to heal. Dr. Eko was completely on board when I told him that I wanted to postpone reconstruction. I think having five surgeries under general anesthesia and several revisions under local anesthesia, merits taking some  time for healing.  So, we will wait for up to two years before I attempt left breast reconstruction again.

In the mean while I have been going to Eisenhower for Lymphatic Drainage Massage. The Occupational Therapist at Eisenhower Medical Center have been a god send. I asked for a referral for therapy, as I new that the heaviness that I was feeling on my upper arm was not just fat, and I could see my left side “puffier” then my right. However, the main concern as well was the adhesions that formed under my Diep Flap surgery scar. On both sides of my umbilicus (belly button) I have these tube like masses. The Therapist have been massaging them out in an attempt to break them up to no avail. Unfortunately they will have to be surgically removed. With that being said I am scheduled for a Scar Revision Surgery at Eisenhower Outpatient Surgical Center this Thursday May 9th. If the adhesions were not bothersome I would just leave them be, however, at times they cause me pain that stops me in my tracks.

The Therapist have shown me how to properly massage my chest wall, abdominal area, basically my front torso. And Jack (husband) learned how to do the back. The Latissimus dorsi flap is healing really nice. I have been fitted with a prosthetic (boob) and just this past week started wearing it. I kind of feel defeated, I feel like I am right back wear I started from but with a lot more scars on my body, the good thing is that I am alive and thriving! Scars are battle wounds that have a story to tell, I just didn’t think it would be part of my story.

Today is Saturday May 11th, my surgery went well, it was a minor surgery and I feel great. I am going to attach some pictures to this blog for those of you that have been following my journey, and wish to see how I am healing.

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The Latissimus dorsi scar and drainage tube scars have healed nicely

The area in the black box is where the adhesions formed that were surgically removed May 9th.

This is the “donor site” where the skin from my left thigh was used to cover the Latissimus dorsi muscle when my Diep Flap surgery failed. My flap failed because it lost it’s blood supply due to a large hematoma. The picture below is a huge improvement compared to previous pictures. Losing the Diep Flap pretty much saved my life because that is also when the bacterial infections were discovered, preventing sepsis was the main goal. I am so grateful to the Infectious Disease team that worked along side with my Plastic Surgeon at Eisenhower Medical Center.

In the Month of March and April I had my Mammogram (of the Right side only) obviously even though I did have a prophylactic mastectomy of the right side, I also my annual Bone Density and Cat Scan at the Comprehensive Canter in Palm Springs…Happy to report that all my test went well, and my good friend, ex-coworker, cancer fighting sister was right along side me and she is doing spectacular!

Final picture…here I am again just before my scar revision surgery. I am recovering well, it was out patient surgery early in the morning, we were home be noon.

Thank you for reading my blog and feel free to share my story.

Josefina…

aka…Pina

 

 

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#64 DIEP FLAP RECONSTRUCTION

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Mischief and Repose, 1895 Oil on Canvas…The J. Paul Getty Museum, Los Angeles

How does one prepare for a surgery like this? The name is intimidating, Diep stands for Deep Inferior Epigastric Perforator artery, which runs through the abdomen. A lot of people think Diep and Tram Flap are the same…not so. The Tram Flap utilizes the muscle where the Diep uses adipose (fat) and the skin along with blood vessels. I am fortunate that my Plastic Surgeon, Dr. Frederick Eko performs this microsurgery.

With that being said my surgery date has been set, it will be on October 24th. I will be hospitalized for three to four days, two of those days will be in ICU. The surgery will be performed at Eisenhower Medical Center in Rancho Mirage.

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My husband and children are all making plans to care for me post surgery, I am blessed to have them available for me. My Diep Flap surgery will be on my left breast. My left breast is the one that had to have the implant removed due to “implant failure caused by irradiated skin”. When the left breast implant was removed on April 4th, all the dead skin was removed as well. Now that is has healed completely you can literally feel my ribs! I tell people that it is like the pictures of the “Radical Mastectomies” from the 1960’s. The right side will also be worked on…a revision is necessary, I have excess skin. That implant will be removed and replaced with a slightly larger one, and some skin will be removed.IMG_6779.jpg

The black lines indicate where my current scars are. The scars on the left side will be gone, the new scar will look similar to the picture above. For the right side revision the scare will remain the same. My OR room has been booked for 10 hours. I have a preoperative anesthesia assessment appointment on the 18th, body marking on the 23rd (that’s where the surgeon will draw on my body) and surgery on the 24th.

It has been one long journey….I just want two boobs..or shall I say “foobs” (fake boobs)

Above is one of my favorite pieces from the Getty Museum, the shear fabric, the detail….I could go on and on. I see this picture, and it’s like she is saying “uhh, I just want my reconstruction to end…two boobs…I just want two boobs”

MANY MAHALOS FOR READING MY BLOG

Prayers and well wishes are received with gratitude and love……Pina

 

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#61 Another Revision!

Well, my surgery went well…the left breast implant was removed along with all the excess radiated skin……so much for a “skin sparring Mastectomy ! I feel I should have blogged earlier but I kept thinking, I will blog after this post op appointment. However to date I have had three follow-up appointments. My surgeon kept my drainage tube in for two weeks because at my first post op the daily fluid output was more than 25cc’s.

On April 16th, I had my annual Bone Density and a CT of the lungs for that little nodule that the doctors have been monitoring. Well GREAT news, my Oncologist, Dr. Ho from the  Palm Springs Comprehensive Cancer Center told me that the nodule is stable and has not grown, he will continue to monitor it annually. And my DEXA (Bone Density Test) is also good…I was so happy with that news!

On April 20th, my sidekick (drainage tube) was removed. However that week my incision where it all joins started to seep and open! REALLY could this possibly be happening again! My Plastic Surgeon wanted me back the following week to keep a close eye on it. Which that appointment was just last week on April 27th.

I would like to back up to April 25th. On the 25th, my husband and I celebrated 31 years of marriage! I love you Jack with all my heart, thank you for always being there for me, for accompanying to all my appointments when work permitted….my story is not over, I am looking forward to many years with you, looking forward to our week on Maui!

Ok, back to my appointment on the 27th. After Dr. Eko looked at the area he looked at me and said that he would need to do Another Revision. At this point, seriously my heart just sank! Of coarse I asked exactly what he planned on doing, Dr. Eko went on to describe the procedure. My husband and I waiting in the examination as they prepared the Procedure Room for me.

After administering plenty of Lidocaine he removed select staples in the trifurcation area. (I will be posting pictures, just do not scroll down if you do not wish to see them.) Slithers of irradiated skin was removed, then it was sutured. It was surreal, the area was well numbed up, but thru my body I could hear and feel (without pain) every stitch! My body was shaking uncontrollably, they covered my with a blanket….this was a pretty invasive procedure done in the office…my plastic surgeon and his wonderful M.A., Angelica made sure I was comfortable. My husband was in the room, a couple of times the blanket came off my feet and he tucked the blanket under my feet. It was nice having my husband in the room, Dr. Eko played smooth Jazz during the procedure, which was also very relaxing.

What’s next? I had a follow up appointment today April 30th, it went well. I am instructed not to lift my left arm above my head so the it doesn’t tug on trifurcation area. The doctor (and I) want this to heal!!! My husband and I will be going to Maui for one week, I will not be getting in the ocean, other than my feet….just plan on relaxing and visiting my Maui Ohana!

Microblading, on Wednesday May 2nd I will be getting my eye brows microbladed. Yes, the hair on my head has returned post chemo, however I have little to no eye brows! I will have to wear a hat while in Maui, which I’m okay with…just looking forward to not having to paint on my eye brows every morning to look normal! So grateful to the gals from the Cos Bar in Wailea that took the time to teach my how to apply my Tom Ford Eye Brow Kit.

 

****************************** SENSITIVE PICTURES BELOW************************

 

 

 

 

 

 

 

 

 

 

 

 

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On a daily basis my family stripped and documented the amount of fluid out put for two weeks until the drain was removed. Post op, my son Cisco took days from work and stayed home with me… he did really good, he only gaged once when some fibrous tissue was in the fluid!

 

 

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Damm, It looks like I had a “Radical Mastectomy”!

Here it is, I struggled with the decision to post this picture ….. but this is the reality of it. The Implant was removed with all the irradiated skin. Looking at the picture above my head is to the right with the tube going down. The stapled area that goes  up towards my axilla (armpit) is that darken circle that is seen on the first picture… that skin was removed, hence this result. The following picture was taken on April 27th, you will notice that the staples where it all trifurcates are gone. That is because on April 20th the plastic surgeon removed them, at this point they were  obviously just irritating the area. The area didn’t close which is why Another Revision was necessary. IMG_6071.jpg

I don’t have an after picture of the revision…my husband says it looks good, he has been doing the dressing changes, he has become quite the wound care specialist! I have instructions not to lift my arms above my head

My next follow up appointment, is on Monday April 14th. I will keep everyone posted with a shorter blog……I promise. If you have read to this point, many thank yous for taking the time out of your day to read my blog.

Pina

 

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52 & 53: Reconstruction

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I’ve never been one for selfies but I wanted to share how much my hair has grown and how curly it is! My hair BC (before cancer) was curly but not as curly as this…. I will take what I get as some women that were given Taxotere are not getting hair growth back.

June 20th marked one year since my last Radiation Treatment, I had a total of 29 rounds to the Left chest wall at The Pacific Cancer Institute on the island of Maui, from May 11th to June 20th. The plan all along has been to do delayed reconstruction. My team at PCI thoroughly explained skin care to me which I followed to a tee. The week after I started Radiation treatment I was referred to a physical therapist for John Barnes’ myofascial release technique massage. I saw my therapist twice weekly thru the month of July 2016.  I was also prescribed Mometasone Cream for me to “gently” apply post treatment. Hence, my skin flap is pliable, and not hardened.

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These pictures are of  just two types of reconstruction surgery known as Autologous of “Flap” Reconstruction. This is not the type of surgery I will have but the surgeon did go over the details of these two types of surgery. Reason being, IF my body rejects the Implant Reconstruction, this is “Plan B”. I will pray that my body does not reject the implants as these surgeries are more invasive.

 

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53:  A Show and Tell Moment

In February of this year at my first meeting with my Plastic Surgeon he gave me homework. He wanted me to research as to how many cc’s I wanted my implants to be. I told him on how before cancer my breast were not symmetrical, my left breast was larger than my right breast. Although this was not noticeable with clothes on, I was limited to style of bras and swimsuits because of this. So, I told him I wanted them to asymmetrical (same size)…..he smiled and said he can do that. My husband chimed in and asked the surgeon if he can place a set on my back so he would have something to hold on to when we slow danced!!!!! We burst into laughter….got to love my husbands sense of humor!!! ( I hope this doesn’t offend anyone)

So, how does one determine reconstruction size? You google it, Pinterest it, or simply ask a friend! I was at the Cancer Center talking to my good friend and fellow Mammography Technologist Extraordinaire. I mentioned my dilemma to her, before I know it Catherina and I are in the bathroom for A Show and Tell Moment. She was quite impressed with how pliable my skin sparring mastectomy is, as Mammographers we are oh too familiar with what a post radiated breast can look like. She showed me her implants and her size, decision made, I will shoot for a “C” cup! I also have to keep in mind and make it clear to my readers that mine is a “reconstruction, post mastectomy” and not a “breast augmentation”, so end result can vary…..I will have no nipples, they can get tattooed on later!

Exactly what is a Modified Radical Mastectomy, Skin Sparing? Basically my nipple was removed (I opted for non-nipple sparring) along with all the breast tissue. For those of you that have been following my blog from the beginning, you will recall that the Breast MRI that was done when I was first diagnosed found an additional cancer on my left breast,  4mm away from the fascia of the chest wall, straight back from the nipple at clock face 12:00. What is left behind is a deflated breast, all my breast skin was sparred minus the glandular tissue…….I have a deflated boob.

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I was in Redlands last week signing a release of medical records for my primary doctor in Palm Springs, he wants surgical notes of my Hysterectomy/Oophorectomy from 2009. (I sure am missing a lot of parts now!!). I stopped in at the Women’s Health Imaging Center to say hello to Renee, we chatted a bit about my blog amongst other things. I showed Renee this picture and how I wanted to share what a “skin sparring” mastectomy was. I took this the above picture after doing my exercises, I was cooling down, stretching. But I wanted to show more, I wanted to share the actual skin flap.

So what does a good friend do….offer to take photos for your blog!!! Renee and I quickly go into one of the mammography room, off comes my blouse, bra and Betty (that’s my prosthesis name) another Show and Tell Moment! Mahalo Renee for taking these pictures for me on a whim!

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Needless to say, I am ready for reconstruction. Today June 21st I went to the Plastic Surgeons office, the appointment went well. My husband Jack was with me. There was a moment of laughter when the topic of the prophylactic mastectomy was discussed, the surgeon asked if I was going to spare (keep) the right nipple? I said no, I don’t want to be like a one-eyed pirate when the nipple is hard! I closed one eye and said “arrrrggg”, the surgeon laughed……it was a funny moment. So what’s next? The  Breast Surgeon’s office will be contacting me to schedule labs, chest x-ray and an EKG. The surgery will then be scheduled. The Breast Surgeon Dr. Laura Lee will do the Right Prophylactic Mastectomy and the Plastic Surgeon will be doing the reconstruction placing the expanders. Post operative I will have four drains, two on each side. Two of them come off one week post-op. The other two come off after the fluid drainage has subsided. Expanders will be expanded every week until desired fullness is obtained. Then, three months later, like in December sometime the expanders will be switched out for the implants.

Holy smokes this is a long blog! If you read it to the end, many thank yous.

Mahalo, Pina

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41: Maui to Lana’i and Back !

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When I signed up for this voyage I was a little apprehensive about it…to say the least. But I really wanted to do something significant to celebrate my successful feat in conquering each obstacle this past year. Chemo therapy was no joke, with each treatment I was sicker and sicker, then came surgery . With the help of amazing Physical Therapist, and my personal daughter nurse Mo with me, I recovered seamlessly. Then came Radiation Therapy, again by following doctors instructions on skin care to a tee in addition to  Physical Therapy, the Myofascial release, followed by Lymphatic massage has been a god send. One full year of Herceptin infusion completed……..I am officially done with treatment! How do I say farewell to this past year? I signed up to take part in The Pacific Cancer Foundations “Paddle for Life” “Voyage to Lana’i” fundraiser!

First and foremost, much mahalo to those who contributed to my cause, I am beyond appreciative. Love and support is not just monetary contribution to my cause. The past year I have received many cards (via mail), text messages of support, voicemails left on my cell phone, family coming to Maui, patients that I have imaged inquiring about me. I could go on and on. I truly feel so much love and support from everyone….I am blessed.

The Voyage :

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My day started with a 330am alarm. By 445am I was at our bus pick up location at Maalea Harbor, which took us to the West side of the island. I was not launching off, so therefor I was at the boat ramp. We were taken to our support boat via a zodiac boat. One the first six man exchange I was put in. You transfer in the open ocean from you support boat to the zodiac then to the canoe. I was really out of comfort zone but with the help and encouragement of my team and the boat support team I managed to transfer….no fear! (It’s not like I can say “God, please make the waves stop so I can transfer without the ocean moving”) I did it I am so proud of myself! Kept telling myself “I beat cancer I can do this”. Being in that canoe in the open ocean was intense on the way to Lana’i, the waves were intense, it was beyond exhilarating !!!! After a couple of exchanges I was put in to be part the landing crew. Paddlers in the launch and landing are survivors. Since I didn’t get to launch I got to land. Coming just past that rock that I never thought we would reach was so emotional. Our captain Linda T.A. had us stop just before coming in and said some encouraging words to each one of us, we were the last canoe in. All the other paddlers were lined up at the beach, I could just see and hear the cheer coming from everyone one the beach as we landed. To follow Hawaiian tradition when you land on another island, permission is granted, then you present gifts after Hawaiian chants and prayers. Each paddler presented gifts to the people of Lana’i. We were given Taro plants, and roots to present to them one by one……all 300 plus paddlers!!  It was a beautiful ceremony.

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We were provided lunch, by Hard Rock Cafe. After eating those of us that were camping needed to set up camp before the sunset. We were provided tents to pitch….pink tents!! I don’t remember the last time I camped in a tent! Some paddlers opted to stay at the Four Seasons or the Lana’i Hotel, I believe those were you only options. I opted to camp.img_3700

I pitched my tent and then went a little hike up to “sweetheart rock” with a fellow paddler and friend Flora.

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This is the rock that when paddling into Hulopoe Beach at Manele Bay I thought we would never reach! The view was so beautiful! Dinner was provided by Nalus , I believe they also provided our breakfast Sunday morning as well. A small group of us wanted to ride to visit Lana’i city. We piled into my team captains car and she took us to visit some sites on the island before going into the very small “Lana’i city”. Here is a picture of us by “Jax” which are large concrete barriers in the shape of jax. They create an ocean break where the barges  come in for deliveries of containers. img_3668

Sunday morning come oh so fast, sleeping on the ground was not very comfortable, especially being sore from paddling. By 630am our tents had to be down and packed, our bags with our belongs with our team had to be taken to our specific support boat. We had breakfast, 10 minute yoga stretch , morning prayers and chants in Hawaiian, songs were sang it was truly beautiful. I again did not get to be part of the launching crew, but we did get to see the launch before going to the boat harbor to our designated support boat. img_3698

A total of twenty-four canoes entered the water…and they were off. On the first six man exchange I was put in. Again transferring was a bit intimidating for me but I did it! It was blazing hot, the ocean was calm and our support boat captain turned the motor off and said we could jump in the ocean if we wanted. I jumped!!!! We had a rope to hold onto so we would not drift far, you bet I held onto that rope. It was so refreshing to jump in for that moment. There was going to be a couple of exchanges before I went back in so I grabbed my camera and took some photos. dscn0847

This is a picture of the zodiac coming toward our support boat to pick us up for another exchange. I was put in, and from what I understand the distance was another 3.8 miles away from Maui. Once in the canoe, you are paddling with strength that you did not know you had. No more exchanges, we were taking this canoe in!! Our steersman Buck was very encouraging, telling us that we were survivors and we could do this!! “Stroke, stroke, stroke” he shouted periodically, “timing people”, “stay focused, you can do this”, “stoke, stroke, stroke my matees! Our support zodiac came over to us to make sure that we were all ok to “ironman” in, we were given small water bottles in case there was not any at the beach waiting for us.

To describe the beauty of Maui from the ocean is impossible. We were so far out that you could not even see the beaches of the West side or the high rise resort hotels of Ka anapali. It was blue ocean, the verdant westside of Maui topped off with blue skies and scattered clouds that looked like a halo over an angel. Purely breath taking. As we got closer to Maui, we could see the resorts, with each stroke we got closer, but it seemed to take forever. The end was near as we got closer and closer, we could see that the rest of our team was in the water waiting  to help us bring this canoe in. We landed!!!

This voyage was beyond amazing, never did I imagine that one day I would be part of a team to paddle from one island to another. Doing this was physically and mentally challenging. It was both spiritual and emotional for me sometimes bringing tears to my eyes thinking of the past year….. but that is exactly what it is now…in the past. Time to focus on the the next phase.

Much Mahalo and love to the Pink Paddlers for being so welcoming, you are an exceptional group. I can not believe that this much anticipated event is over, I am so glad I did this.

Much Mahalo and love for taking the time to read my blog.     Pina

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39: Voyage to Lana’i

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I remember when I first moved to Maui, Jack and I were inside of Safeway grocery store, we saw this lady who was wearing a Mana’olana Pink Paddler t-shirt. Jack started a conversation with her letting her know that we had just moved here and that I was a mammographer . She invited me to paddle, as this is for supporters of Breast Cancer not just for survivors.

It is strange how the universe works. Here we are just over two years later, and I am a survivor!!! Last year I was looking into taking part of this annual voyage, however that ambition was cut short with my diagnosis of Stage 3 Breast Cancer last year in August.

My first chemo therapy was September 25th, exactly one year ago. I did it!!!! I managed to get thru the 6 treatments, recovered. Followed by surgery, recovered. Followed by Radiation Therapy, recovered! On September 2, I had my last of 12 Herceptin  infusions. I am kicking butt!!! All of this would not have possible without the love of my husband, kids, cousins (very special and dear to my heart)! I can’t say enough about all the amazing people I have met here on Maui…..much mahalo for the love and support.

The voyage? I will have to admit I was reluctant to sign up! After all this is traveling from one island to another and back. I have been paddling on Saturdays (cause I work M-F), lots of people here that I paddle with are retired, or have jobs that allow them to paddle out during the week. The more I thought about, the more the challenge excited me! I called the Pacific Cancer Foundation, talked to the director and she encouraged me, telling me that I could do it!

The Voyage to Lana’i  is not a race, I know that it will be physically challenging, but this past year hast been challenging, if I could survive Stage 3 Breast Cancer treatment, then I can do this, I am up for the challenge. And being placed on a team with the Pink Paddlers is just going to make this journey across the ocean extra special . The picture above was taken in 2014, when paddled with them how ironic is that!

I plan on blogging about my experience, I know it will be emotional and bittersweet for me. It will be my way of saying “nice try cancer” “I won”. The following is a link to my page for donations……please only donate if you are able, any amount is appreciated.

http://paddleforlife2016.myevent.com/participant/389253

This week I go see my Radiation Oncologist. A three month follow up appointment. Also I already have my next appointments set for my follow up with my  Medical Oncologist. My next trip to Oahu will be a two night stay.

January 11th: CT scan of the chest and abdomen. And a Bone Scan

January 12th: follow up with Breast Surgeon  Dr. Mari Nakashizuka/ in regards to the prophylactic mastectomy and my first consultation with Plastic Surgeon,  Dr. Vincent Nip (yes Nip!)

January 13th: follow up with Medical Oncologist; he will go over the results of the scans with me. Just need to pray that no new cancer decided to pop anywhere, and that the lung lesion has not grown!!

Mahalo, for reading my blog…have a wonderful work week!….Pina

 

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38: The Hair is Growing!!

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I do not recall ever having short hair! The texture is soft and it is curly in the back and wavy up on top. I had to break down and by a hair product, using Tea Tree Shaping Cream by Paul Mitchell. When some patients  see me and remember me from last year, they say “oh , you cute your hair….that looks really cute” My response : “actually this is new hair growth after Chemotherapy”!  Their jaw drops, patients have teared up, hugged me and have just been so kind with well wishes and prayers.

I do the Bone Densities for MDI, twice a month. One of the x-ray technologists does them on Saturdays. My last Dexa day (as I call it) told me she refused a Saturday appointment because she wanted me to do her exam so she can see how I was doing. Apparently I did her mammogram when I was in the middle of Chemo, she was so sweet.

It is hard to believe that a whole year has passed already. The journey has not been an easy one (especially the chemo part of it) but I did it!!!!!!

TOMORROW IS MY LAST HERCEPTIN INFUSION!!!!!!!!!!!!!!!!  After tomorrow I will officially be finished with my treatment! Except for the Anastrozole that I have to take for the next five years (possibly ten) And of course the ongoing test to make sure the cancer does not decide to pop up somewhere else!!!…..one day at a time!!!

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Well,  besides having a Primary Physician, Oncologist, Radiation Oncologist, Pulmonologist, Breast Surgeon, Plastic Surgeon…..I can now add a Podiatrist to the list! Since Chemo treatment number four and five I have had problems with ingrown toenails. (There has been no coorilation between ingrowns and chemo.) I have experienced and continue to have slight neoropathy of the toes and fingers (not so much on fingers) So the infections seem to creep up on me! I don’t feel them till it’s infected. The past three months have been riddled with frequent trips to the Podiatrist. Literally it seems like I have been to see him every two to three weeks. He has in the past mentioned a procedure to eliminate the growth of the nail going down, causing the ingrown. The procudure is call a Matrixectomy. I had this produre done yesterday, initially went in for the ingrowns, agian. After he (Dr. Lee) numbed both great toes, he offered the procedure. It required more numbing, which was super painful…I mean SUPER painful.  After the side of the nail is removed, acid is placed to kill future growth of the nail. So, once agian I am on ocean restriction…no ocean for two weeks!!! Today was challenging to work, the toes hurt but I managed to work the whole day!!! fyi: the pain was when the injection of lidocaine is administed, after that I didn’t feel a thing… and Dr. Lee continuously kept asking if I felt anything. He wanted to make sure i was completely numbed up.

Hopefully tomorrow mornings flight to Oahu is uneventful. The Hawaiin islands are on huricane watch, so far Maui has been unscathed from this threat (knock on wood), I dont like turbulance on the flights!

It’s getting late and I have to get up early to fly out….good night and much Mahalo for reading…

Pina

oh, one more thing…. I wore mascara the other day for the first time!!! the little things!

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37:Coming up on One Year!

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Since my last blog  a lot has happened, my July infusion of Herceptin was on the 22nd. The day before that on Thursday the 21st I had another Echocardiogram, and a baseline Bone Density. The Echocardiogram (this was my fourth one) I had one before chemo started last year in September, the second was performed in November, the third was done one month after my last chemo and now this one in July. The purpose? The chemo treatment I was given effects cardiac output, also one of the side effects of Herceptin effects the heart. So far so good!!!! The heart is strong!!! I started to take Anastrozole (Arimidex) in February. One of the side effects of Arimidex is bone loss, hence the necessity for a baseline Bone Density. Happy to report I am in the “green”…..fellow technologists will know what the means!!! Normal! As of right now, my bone density is “normal”!….I would like to keep it that way.

I have also been going to Physical Therapy twice a week for Myofascial  Release Massage (covered by insurance) which has been wonderful!!! I have been going to Kihei Physical Therapy with Christine Lachance DPT. MSPT. CLT., she specializes in Cancer patients.

I am back in the ocean! The first week-end in August I paddled out with the Maui Canoe Club, it was beautiful! (With the exception that they were burning cane that Saturday morning and there was a huge brown cloud over the island). None the less, it was beautiful to be out on the water. Once I got back to the condo after the morning paddle out I turned my tv on and started to get sucked into watching the Olympics which were on day 2! I quickly turned the tv off, packed some fruit, grabbed some water, towel, chair, book and to the beach I went!!!! I was at the beach from 10 am till 4pm, so refreshing to be in the water again!

This past Friday, August 8th I was back in Oahu for Herceptin. I had a great visit with my Oncologist Dr. Chong, we talked about the past years treatments and how well I did. He commended me for having that fighting spirit and mentality to fight and stay positive (attitude toward treatment is half the battle) We talked about what is yet to come.

Saturday morning (13th) I had every intention on paddling out, however my stomach said overwise. I have been fortunate that the Herceptin side effects have not been that bad for me, however Saturday morning was plagued with many trips to the bathroom, I didn’t think going paddling was in the cards for me.

My next Herceptin treatment will be my last one!!!!! YES!!!! My last one!!!!!! Can I get an “AMEN” My next trip to Oahu is on September 2nd, after this appointment with Dr. Chong I will see him again in January 2017. It was supposed to be in three months, but that would mean coming in December. So, he pushed the follow-up out to January 2017, also because and that time he would like for me to have an appointment with the breast surgeon Dr. Mari Nakashizuka and the plastic surgeon, Dr. Vincent Nip. So, come January 2017 we will start the ball rolling for the next step……..prophylactic mastectomy and reconstruction!

The picture included with this blog was taken with a feature on my camera called “color selection”. I selected light purple and i pulled that color out with everything else black and white. This next one I selected pink hues!

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Mahalo, thank you for reading and Mahalo for all the patients of MDI that have inquired about me and for all the prayers and well wishes.

 

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