Tag Archives: thejourneycontinues

47: MDI Ohana

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Much mahalo MDI for all the love and support since my Breast Cancer diagnosis! God has a plan for all of us and I truly believe I was meant to discover my breast cancer while living and working on this beautiful island of Maui. My decision to stay here and go thru my cancer journey here with all of you was the right choice. Because of all the love and support from my MDI Ohana, the Maui Canoe Club, friends we have made on this island and my family, I was able to kick cancers (you no what!) It was an honor to work with such an amazing team. My Oncologist thought I was nuts when I refused to get put on medical leave during my treatment, this job is what kept me motivated, and helped me thru the aggressive treatment with flying colors!

To all the patients that have reached out to me to wish me well, I thank you from the bottom of my heart. Mahalo Ruth (printed with permission) for the dinner date, I enjoyed our visit and will keep in touch

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Today was my last day working at MDI, this time next week I will be on a plane to California. This will be my last week end living here, so until February 3rd, I will be tying up loose ends before I leave and enjoy the island.

Mahalo Maui for being so therapeutic for me!!!!

Mahalo for reading my blog……Pina

 

 

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46: Spirit of Aloha

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The past three days have been spent on the island of Oahu. I had my Nuclear Medicine Bone Scan and a Chest CT on Wednesday. This morning my Oncologist, Dr. Clayton Chong gave me the great news that my Bone Scan was Negative for Malignant Neoplasms! The chest CT was done for that nodule that they have been keeping an eye on, it has not changed since the last scan!!! My office visit went well with my Oncologist, I told him I was moving back to California, it was sad saying good-bye to such an amazing team. Doctor had one of the nurses flush my portacath, and instructed the nurse to give me copies of all my medical records for me to give to my new doctor. I also got copies of all my post treatment scans from medical imaging……three CD’s! I am ready to transfer my care. By me hand carrying my medical history, it will make the transition a lot smoother…..I hope.

The picture above, was at a restaurant we ate at  Thursday morning. I asked my daughter to take a picture of it because it depicts the true meaning of the Spirit of Aloha. Living and working here on Maui since July 2014, I have met so many wonderful people. I love the way the keiki (children) refer to me as “auntie”. I am going to go thru some serious ocean withdrawals, and will miss the patients that I have imaged working at MDI. I was at Safeway the other day and ran into three people who I have done their mammograms, one lady heard that I was leaving from a friend…..word is spreading.

I also wanted to mention about my colonoscopy that I had done on December 8th. Well, it turns out that I did have two new polyps, they were both removed and both of them came back to be “tubular adenomas”. Yes, if you have read my previous blogs, those are the ones that can turn into a cancer (considered pre-cancerous). So, with that being said, when I establish with my new medical team in California this will be one topic that will be discussed. The G.I. doctor here says that I could wait to  have another exam in 2 to 3 years, which concerns me. Not sure I want to put it off that long.

Well it is 9:57 pm here on Maui, and I want to go to bed, I plan on paddling out with the Maui Canoe Club in the morning.

Mahalo for reading my blog….Happy New Year!!!

 

 

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44:Leaving da Island

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It is hard to believe that one year has past already. This time last year I had just finished my 4th chemo treatment, which for me chemo number 4 thru 6 were the worst. With the love and support of my family I managed to get thru a very aggressive chemo cocktail that in the words of my Medical Oncologist was going to “knock me off my ass”, yes those were his words exactly! Bar none he wanted me to understand how important it was to receive all 6 treatments and not quit on him. ” For this to be successful you need all 6 treatments, this is going to knock you off your ass, you are going to want to quit, number 5 and 6 will be the worst” “Are you ready?” I was ready, and I continue to be ready for anything that is thrown my way!

With that being said, I am home early today from work to prepare for a follow-up Colonoscopy. In February 2015, six months before my Breast Cancer diagnosis I had my baseline Colonoscopy. The results came back that they found and removed Tubular Adenoma Polyps. Because those are the kind that can turn into a cancer, I get to repeat my exam. I was supposed to have it done in February, I was given a pre-op appointment in November 2015 for a Colonoscopy in February 2016! The problem was that I was too ill from chemo #4 to leave my home to keep the pre-op appointment. I then asked my primary doctor if I can just wait till I was thru with chemo, surgery and radiation treatment before revisiting the whole repeat colonoscopy exam! Not exactly my favorite exam, the prep is the worst. Hence my appointment is tomorrow morning.

Leaving da island

For those of you who know me personally, you know that my husband works all over the map. However since May of this year his job has kept him on the mainland. After the expense of staying on the island of Oahu, post mastectomy in March, I have been contemplating  going back to the mainland for the next phase of my surgery. However, now that my husband is indefinitely working near our home in California it is no longer practical for me to remain on paradise without my husband. My prophylactic mastectomy and reconstruction will be done in Palm Springs where I used to work. I will not be returning to Maui to work after being released.

I have given my employer notice, my last day working at MDI will sadly be on January 27th. I will keep my Oahu appointments in early January. January 11th, 12th, 13th I will have multiple appointments which include Chest CT and Bone Scan, Medical Oncologist and a follow-up Dr. Nakashizuka.

Today is the 75th anniversary of the bombing of Pearl Harbor by Japan. Living and working here on Maui, I have met people who remember that day, or have been told stories by their aunties and uncles of that “infamous day”.  Prayers to the people of Hawaii and descendants of people lost on December 7, 1941. Mahalo to all military personnel over the generations. Today also marks my fathers birthday, if he were alive he would have turned 88 today.

Mahalo for reading my blog

Pina

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43: Mammogram Appointment

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Breast Cancer awareness month has come and gone. However for me, as a Mammography Technologist it is everyday of the year. And now as a Breast Cancer survivor, bringing awareness is just that much more important.

I had intended to blog about how to prepare for your Mammogram Appointment prior to the month of October, but it just did not happen. Preparing for the Voyage to Lana’i , paddle for life took precedence over everything.

So here it goes:

Be on time

You are given a check in time and an appointment time. There is a reason for this. We are only given a certain time slot per patient. At my work we are given 15 minute time slots per patient for a routine screening, 30 minutes for a diagnostic appointment and/or a patient with an augmentation.  And please, IF you have an augmentation (implants) please mention it when making the appointment if you are not asked that question by the scheduler. Some patients register, then proceed to talk on the phone or just be on their smart phones instead of doing the questionnaire given to them. So, the purpose of you check in time is to complete all necessary paperwork prior to you appointment time.

No lotion, powder or deodorant. 

You are probably wondering about the picture above., I will explain that in a bit.

Deodorant, deodorant  mimics micro calcifications. Some micro calcs get worked up, meaning additional images and after the additional images IF they are deemed “indeterminate” by the radiologists they are either followed up in six months or he/she gives a recommendation to biopsy them! Lotion or powder can come out in the image, especially if it has some type of shimmer to it. Also with lotions and or body oil, it makes the breast slippery making it easy to move when in compression, causing motion. An image with motion will be rejected and repeated. I had a patient that had coconut oil all over her body, her breast were small, there was no friction between her skin and my paddle. I was using my small half paddle for her but her breast kept popping out from the compression paddle. She agreed to go into our bathroom to wash her breast off with soap/water and we proceeded. And of course by now we were well into her 15 minute time slot for her mammogram.

When I bring a patient in the room I will ask I they have product on. If they did come in with deodorant on we offer baby wipes to wipe it off. I document it in my paperwork when a patient comes in with deodorant on. I have had a patient get called back for possible “residual deodorant vs micro calcs” therefore, I do not recommend coming into your appointment with deodorant on.

Sand

Here on Maui I have come across sand artifact on a mammogram. I did one view on a patient, then when I did the oblique view (side view) I noticed that on my image there was artifact where there was no breast tissue. My image receptor had all these sparkly things on it. I remembered that when she came in she had on a beach cover-up with a swim suit top on. I asked her if by any chance she was swimming in the ocean this morning? The answer; “Yes, but I rinsed off at the park before coming here”.   Well there was enough sand in her suit that clung on. Solution, my schedule fortunately was pretty open that day, this was the patients baseline mammogram (first one) she lived literally in the neighborhood of our clinic so she went home and took a proper shower then came back and I worked her in!

The Picture

I begin to position my patients first view, and I can feel that there is some kind of product on my patients breast. I continue to compress the breast, my positioning light is on, and with the compression this white stuff seeps from my patients breast tissue!!! I lift my paddle off of my patients breast and ask her, again if she has product on?

Me: I thought you said you did not have lotion on?

Patient: I don’t

Me: oh, what’s this…..as I point to my paddle

Patient: It’s sunscreen

Me: (with a puzzled look on my face) were you not asked NOT to wear  any lotion, powder or deodorant?

Patient: YES, they didn’t say I couldn’t put SUNSCREEN on! ( in a very harsh tone)

SERIOUSLY!!!!! OMG I COULD NOT BELIEVE HER RESPONSE TO ME AND HER TONE.

Me: I walked over to the baby wipes, asked her to please wipe, said that I would take one image, if I saw artifact on my view I would delete it and cancel the appointment. I then grabbed my cell phone and told her that I was going to snap a photo of my paddle to show the scheduler how these products interfere with the imaging. I tilted the unit at an angle for the image.

Wiping this sunscreen off of the unit made a mess. I managed to get it all cleaned up and we were able to complete the exam……of coarse this exceeded her 15 minute time slot!

Prior Mammograms

If it is your first mammogram at a facility and you have had priors elsewhere, please arrange for you priors to be sent to the imaging facility. I we receive them ahead of time the images are imported and prior reports are scanned, we have everything for our radiologists to make a comparison when he looks at the current study. IF, you don’t make those arrangements, we get you to sign a release for priors, we look up the location of your priors, and it helps if you know where your last mammogram was at. Last week, I spent 22 minutes with a patient on the computer looking for a facility on the mainland. She knew the state and city and part of the name of the facility (her prior was a 2015 study, how can you not remember)  We managed to find it. Release signed, we got started at 825 am, by then my 815, 830 and 845 patients were registered…….THEN….she had implants and was not double booked!!! My morning snowballed after that. You can not rush through a mammogram to get caught up, it was not until a patient called to reschedule an appointment that I was able to get caught up from my morning fiasco.

Clothes

Make every attempt to wear two piece clothing and not a dress. We only require you to change from the waist up, when a dress is worn to the appointment the patient is standing in her underwear with a long paper gown on (my clinic uses paper disposable gowns). I have had patients not have under clothes on,  which made it pretty awkward. In this case I got creative and taped a gown creating a skirt like cover-up, then a half gown on top. I do not understand why someone would not wear under clothes to a medical appointment!

Time to sign off, Mahalo for taking the time to read my blog, was not my intention to make it this long.

Pina

 

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41: Maui to Lana’i and Back !

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When I signed up for this voyage I was a little apprehensive about it…to say the least. But I really wanted to do something significant to celebrate my successful feat in conquering each obstacle this past year. Chemo therapy was no joke, with each treatment I was sicker and sicker, then came surgery . With the help of amazing Physical Therapist, and my personal daughter nurse Mo with me, I recovered seamlessly. Then came Radiation Therapy, again by following doctors instructions on skin care to a tee in addition to  Physical Therapy, the Myofascial release, followed by Lymphatic massage has been a god send. One full year of Herceptin infusion completed……..I am officially done with treatment! How do I say farewell to this past year? I signed up to take part in The Pacific Cancer Foundations “Paddle for Life” “Voyage to Lana’i” fundraiser!

First and foremost, much mahalo to those who contributed to my cause, I am beyond appreciative. Love and support is not just monetary contribution to my cause. The past year I have received many cards (via mail), text messages of support, voicemails left on my cell phone, family coming to Maui, patients that I have imaged inquiring about me. I could go on and on. I truly feel so much love and support from everyone….I am blessed.

The Voyage :

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My day started with a 330am alarm. By 445am I was at our bus pick up location at Maalea Harbor, which took us to the West side of the island. I was not launching off, so therefor I was at the boat ramp. We were taken to our support boat via a zodiac boat. One the first six man exchange I was put in. You transfer in the open ocean from you support boat to the zodiac then to the canoe. I was really out of comfort zone but with the help and encouragement of my team and the boat support team I managed to transfer….no fear! (It’s not like I can say “God, please make the waves stop so I can transfer without the ocean moving”) I did it I am so proud of myself! Kept telling myself “I beat cancer I can do this”. Being in that canoe in the open ocean was intense on the way to Lana’i, the waves were intense, it was beyond exhilarating !!!! After a couple of exchanges I was put in to be part the landing crew. Paddlers in the launch and landing are survivors. Since I didn’t get to launch I got to land. Coming just past that rock that I never thought we would reach was so emotional. Our captain Linda T.A. had us stop just before coming in and said some encouraging words to each one of us, we were the last canoe in. All the other paddlers were lined up at the beach, I could just see and hear the cheer coming from everyone one the beach as we landed. To follow Hawaiian tradition when you land on another island, permission is granted, then you present gifts after Hawaiian chants and prayers. Each paddler presented gifts to the people of Lana’i. We were given Taro plants, and roots to present to them one by one……all 300 plus paddlers!!  It was a beautiful ceremony.

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We were provided lunch, by Hard Rock Cafe. After eating those of us that were camping needed to set up camp before the sunset. We were provided tents to pitch….pink tents!! I don’t remember the last time I camped in a tent! Some paddlers opted to stay at the Four Seasons or the Lana’i Hotel, I believe those were you only options. I opted to camp.img_3700

I pitched my tent and then went a little hike up to “sweetheart rock” with a fellow paddler and friend Flora.

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This is the rock that when paddling into Hulopoe Beach at Manele Bay I thought we would never reach! The view was so beautiful! Dinner was provided by Nalus , I believe they also provided our breakfast Sunday morning as well. A small group of us wanted to ride to visit Lana’i city. We piled into my team captains car and she took us to visit some sites on the island before going into the very small “Lana’i city”. Here is a picture of us by “Jax” which are large concrete barriers in the shape of jax. They create an ocean break where the barges  come in for deliveries of containers. img_3668

Sunday morning come oh so fast, sleeping on the ground was not very comfortable, especially being sore from paddling. By 630am our tents had to be down and packed, our bags with our belongs with our team had to be taken to our specific support boat. We had breakfast, 10 minute yoga stretch , morning prayers and chants in Hawaiian, songs were sang it was truly beautiful. I again did not get to be part of the launching crew, but we did get to see the launch before going to the boat harbor to our designated support boat. img_3698

A total of twenty-four canoes entered the water…and they were off. On the first six man exchange I was put in. Again transferring was a bit intimidating for me but I did it! It was blazing hot, the ocean was calm and our support boat captain turned the motor off and said we could jump in the ocean if we wanted. I jumped!!!! We had a rope to hold onto so we would not drift far, you bet I held onto that rope. It was so refreshing to jump in for that moment. There was going to be a couple of exchanges before I went back in so I grabbed my camera and took some photos. dscn0847

This is a picture of the zodiac coming toward our support boat to pick us up for another exchange. I was put in, and from what I understand the distance was another 3.8 miles away from Maui. Once in the canoe, you are paddling with strength that you did not know you had. No more exchanges, we were taking this canoe in!! Our steersman Buck was very encouraging, telling us that we were survivors and we could do this!! “Stroke, stroke, stroke” he shouted periodically, “timing people”, “stay focused, you can do this”, “stoke, stroke, stroke my matees! Our support zodiac came over to us to make sure that we were all ok to “ironman” in, we were given small water bottles in case there was not any at the beach waiting for us.

To describe the beauty of Maui from the ocean is impossible. We were so far out that you could not even see the beaches of the West side or the high rise resort hotels of Ka anapali. It was blue ocean, the verdant westside of Maui topped off with blue skies and scattered clouds that looked like a halo over an angel. Purely breath taking. As we got closer to Maui, we could see the resorts, with each stroke we got closer, but it seemed to take forever. The end was near as we got closer and closer, we could see that the rest of our team was in the water waiting  to help us bring this canoe in. We landed!!!

This voyage was beyond amazing, never did I imagine that one day I would be part of a team to paddle from one island to another. Doing this was physically and mentally challenging. It was both spiritual and emotional for me sometimes bringing tears to my eyes thinking of the past year….. but that is exactly what it is now…in the past. Time to focus on the the next phase.

Much Mahalo and love to the Pink Paddlers for being so welcoming, you are an exceptional group. I can not believe that this much anticipated event is over, I am so glad I did this.

Much Mahalo and love for taking the time to read my blog.     Pina

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32: Radiation Therapy

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We flew back to Maui one week ago today on April 30th. The picture above is a picture of Sugar Beach in North Kihei, it’s a really nice long walk!!! On Monday I had my simulation appointment with the Radiation Oncology department here at the Pacific Cancer Institute on Maui. I got to meet Dr. Baker (he was off island the last time I was there). Dr. Baker talked with us (my husband and I) and explained again the importance of radiation treatment after chemo for me. It is important to know that not everyone with breast cancer gets both chemo and radiation…..each case is different.

The simulation CT was interesting. My upper body was positioned on a deflated pillow that contained micro beads. These micro beads when heated up stiffened and hardened, forming a mold of my upper body including my head. I laid down on it with my right arm down and my left arm up with my elbow bent. The mold was created, this will be used for all my radiation therapy appointments. The purpose of the simulation CT is so that the Radiation Oncologist can determine the radiation field and create a treatment plan. That is the simplest explanation I can think of without getting too technical!!!

The Radiation Therapist (Radiologic Technologist with a specialty license in Radiation Therapy) was very kind. Part of the process for the simulation appointment is you get marked (tattoo)  where the laser beam is to be positioned for you treatments. I joked with Max when he was about to tattoo me that this was his “side hustle”! I also let him know that these were my first tattoos, we laughed because seriously they are two very small dots!!!

My treatment will be six weeks long, Monday thru Friday my first treatment is Wednesday May 11th!! I am off of work for one more week, I go back on the 16th of this month. Just like with chemo I will work thru the radiation therapy as well. Maui Diagnostic Imaging will work with my appointments for the next six weeks permitting me to work thru this next chapter of my treatment.

Time to sign off, much Mahalo for reading my blog. It is 9:11 am, I need to do my physical therapy and pick up two very special people that will be here with me for the next seven days!!!

Aloha Pina

 

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