Tag Archives: survivor

46: Spirit of Aloha

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The past three days have been spent on the island of Oahu. I had my Nuclear Medicine Bone Scan and a Chest CT on Wednesday. This morning my Oncologist, Dr. Clayton Chong gave me the great news that my Bone Scan was Negative for Malignant Neoplasms! The chest CT was done for that nodule that they have been keeping an eye on, it has not changed since the last scan!!! My office visit went well with my Oncologist, I told him I was moving back to California, it was sad saying good-bye to such an amazing team. Doctor had one of the nurses flush my portacath, and instructed the nurse to give me copies of all my medical records for me to give to my new doctor. I also got copies of all my post treatment scans from medical imaging……three CD’s! I am ready to transfer my care. By me hand carrying my medical history, it will make the transition a lot smoother…..I hope.

The picture above, was at a restaurant we ate at  Thursday morning. I asked my daughter to take a picture of it because it depicts the true meaning of the Spirit of Aloha. Living and working here on Maui since July 2014, I have met so many wonderful people. I love the way the keiki (children) refer to me as “auntie”. I am going to go thru some serious ocean withdrawals, and will miss the patients that I have imaged working at MDI. I was at Safeway the other day and ran into three people who I have done their mammograms, one lady heard that I was leaving from a friend…..word is spreading.

I also wanted to mention about my colonoscopy that I had done on December 8th. Well, it turns out that I did have two new polyps, they were both removed and both of them came back to be “tubular adenomas”. Yes, if you have read my previous blogs, those are the ones that can turn into a cancer (considered pre-cancerous). So, with that being said, when I establish with my new medical team in California this will be one topic that will be discussed. The G.I. doctor here says that I could wait to  have another exam in 2 to 3 years, which concerns me. Not sure I want to put it off that long.

Well it is 9:57 pm here on Maui, and I want to go to bed, I plan on paddling out with the Maui Canoe Club in the morning.

Mahalo for reading my blog….Happy New Year!!!

 

 

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44:Leaving da Island

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It is hard to believe that one year has past already. This time last year I had just finished my 4th chemo treatment, which for me chemo number 4 thru 6 were the worst. With the love and support of my family I managed to get thru a very aggressive chemo cocktail that in the words of my Medical Oncologist was going to “knock me off my ass”, yes those were his words exactly! Bar none he wanted me to understand how important it was to receive all 6 treatments and not quit on him. ” For this to be successful you need all 6 treatments, this is going to knock you off your ass, you are going to want to quit, number 5 and 6 will be the worst” “Are you ready?” I was ready, and I continue to be ready for anything that is thrown my way!

With that being said, I am home early today from work to prepare for a follow-up Colonoscopy. In February 2015, six months before my Breast Cancer diagnosis I had my baseline Colonoscopy. The results came back that they found and removed Tubular Adenoma Polyps. Because those are the kind that can turn into a cancer, I get to repeat my exam. I was supposed to have it done in February, I was given a pre-op appointment in November 2015 for a Colonoscopy in February 2016! The problem was that I was too ill from chemo #4 to leave my home to keep the pre-op appointment. I then asked my primary doctor if I can just wait till I was thru with chemo, surgery and radiation treatment before revisiting the whole repeat colonoscopy exam! Not exactly my favorite exam, the prep is the worst. Hence my appointment is tomorrow morning.

Leaving da island

For those of you who know me personally, you know that my husband works all over the map. However since May of this year his job has kept him on the mainland. After the expense of staying on the island of Oahu, post mastectomy in March, I have been contemplating  going back to the mainland for the next phase of my surgery. However, now that my husband is indefinitely working near our home in California it is no longer practical for me to remain on paradise without my husband. My prophylactic mastectomy and reconstruction will be done in Palm Springs where I used to work. I will not be returning to Maui to work after being released.

I have given my employer notice, my last day working at MDI will sadly be on January 27th. I will keep my Oahu appointments in early January. January 11th, 12th, 13th I will have multiple appointments which include Chest CT and Bone Scan, Medical Oncologist and a follow-up Dr. Nakashizuka.

Today is the 75th anniversary of the bombing of Pearl Harbor by Japan. Living and working here on Maui, I have met people who remember that day, or have been told stories by their aunties and uncles of that “infamous day”.  Prayers to the people of Hawaii and descendants of people lost on December 7, 1941. Mahalo to all military personnel over the generations. Today also marks my fathers birthday, if he were alive he would have turned 88 today.

Mahalo for reading my blog

Pina

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43: Mammogram Appointment

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Breast Cancer awareness month has come and gone. However for me, as a Mammography Technologist it is everyday of the year. And now as a Breast Cancer survivor, bringing awareness is just that much more important.

I had intended to blog about how to prepare for your Mammogram Appointment prior to the month of October, but it just did not happen. Preparing for the Voyage to Lana’i , paddle for life took precedence over everything.

So here it goes:

Be on time

You are given a check in time and an appointment time. There is a reason for this. We are only given a certain time slot per patient. At my work we are given 15 minute time slots per patient for a routine screening, 30 minutes for a diagnostic appointment and/or a patient with an augmentation.  And please, IF you have an augmentation (implants) please mention it when making the appointment if you are not asked that question by the scheduler. Some patients register, then proceed to talk on the phone or just be on their smart phones instead of doing the questionnaire given to them. So, the purpose of you check in time is to complete all necessary paperwork prior to you appointment time.

No lotion, powder or deodorant. 

You are probably wondering about the picture above., I will explain that in a bit.

Deodorant, deodorant  mimics micro calcifications. Some micro calcs get worked up, meaning additional images and after the additional images IF they are deemed “indeterminate” by the radiologists they are either followed up in six months or he/she gives a recommendation to biopsy them! Lotion or powder can come out in the image, especially if it has some type of shimmer to it. Also with lotions and or body oil, it makes the breast slippery making it easy to move when in compression, causing motion. An image with motion will be rejected and repeated. I had a patient that had coconut oil all over her body, her breast were small, there was no friction between her skin and my paddle. I was using my small half paddle for her but her breast kept popping out from the compression paddle. She agreed to go into our bathroom to wash her breast off with soap/water and we proceeded. And of course by now we were well into her 15 minute time slot for her mammogram.

When I bring a patient in the room I will ask I they have product on. If they did come in with deodorant on we offer baby wipes to wipe it off. I document it in my paperwork when a patient comes in with deodorant on. I have had a patient get called back for possible “residual deodorant vs micro calcs” therefore, I do not recommend coming into your appointment with deodorant on.

Sand

Here on Maui I have come across sand artifact on a mammogram. I did one view on a patient, then when I did the oblique view (side view) I noticed that on my image there was artifact where there was no breast tissue. My image receptor had all these sparkly things on it. I remembered that when she came in she had on a beach cover-up with a swim suit top on. I asked her if by any chance she was swimming in the ocean this morning? The answer; “Yes, but I rinsed off at the park before coming here”.   Well there was enough sand in her suit that clung on. Solution, my schedule fortunately was pretty open that day, this was the patients baseline mammogram (first one) she lived literally in the neighborhood of our clinic so she went home and took a proper shower then came back and I worked her in!

The Picture

I begin to position my patients first view, and I can feel that there is some kind of product on my patients breast. I continue to compress the breast, my positioning light is on, and with the compression this white stuff seeps from my patients breast tissue!!! I lift my paddle off of my patients breast and ask her, again if she has product on?

Me: I thought you said you did not have lotion on?

Patient: I don’t

Me: oh, what’s this…..as I point to my paddle

Patient: It’s sunscreen

Me: (with a puzzled look on my face) were you not asked NOT to wear  any lotion, powder or deodorant?

Patient: YES, they didn’t say I couldn’t put SUNSCREEN on! ( in a very harsh tone)

SERIOUSLY!!!!! OMG I COULD NOT BELIEVE HER RESPONSE TO ME AND HER TONE.

Me: I walked over to the baby wipes, asked her to please wipe, said that I would take one image, if I saw artifact on my view I would delete it and cancel the appointment. I then grabbed my cell phone and told her that I was going to snap a photo of my paddle to show the scheduler how these products interfere with the imaging. I tilted the unit at an angle for the image.

Wiping this sunscreen off of the unit made a mess. I managed to get it all cleaned up and we were able to complete the exam……of coarse this exceeded her 15 minute time slot!

Prior Mammograms

If it is your first mammogram at a facility and you have had priors elsewhere, please arrange for you priors to be sent to the imaging facility. I we receive them ahead of time the images are imported and prior reports are scanned, we have everything for our radiologists to make a comparison when he looks at the current study. IF, you don’t make those arrangements, we get you to sign a release for priors, we look up the location of your priors, and it helps if you know where your last mammogram was at. Last week, I spent 22 minutes with a patient on the computer looking for a facility on the mainland. She knew the state and city and part of the name of the facility (her prior was a 2015 study, how can you not remember)  We managed to find it. Release signed, we got started at 825 am, by then my 815, 830 and 845 patients were registered…….THEN….she had implants and was not double booked!!! My morning snowballed after that. You can not rush through a mammogram to get caught up, it was not until a patient called to reschedule an appointment that I was able to get caught up from my morning fiasco.

Clothes

Make every attempt to wear two piece clothing and not a dress. We only require you to change from the waist up, when a dress is worn to the appointment the patient is standing in her underwear with a long paper gown on (my clinic uses paper disposable gowns). I have had patients not have under clothes on,  which made it pretty awkward. In this case I got creative and taped a gown creating a skirt like cover-up, then a half gown on top. I do not understand why someone would not wear under clothes to a medical appointment!

Time to sign off, Mahalo for taking the time to read my blog, was not my intention to make it this long.

Pina

 

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42: RIP Bert

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At 615 pm Pacific Standard time my 56 year old sister Bert passed away from Stage lV Breast Cancer. My sister and I were diagnosed a little over a month apart. I was Stage lll, she was Stage lV. I chose to fight, she did not. I tried to talk her into changing her mind and to do treatment, ( told her we could be chemo buddies) but she did not want to. The doctors last year told her she would have about 2 months to live without treatment, which meant she would not make it past October 2015. I did Chemo, had surgery, then did Radiation Treatment, one full year of Herceptin Infusions, she chose to be medicated and wait for death. I get angry at times, especially with everything the family has had to endure because of her decision not to seek treatment. Family will do everything for a loved one, but when someone does not want to help themselves that task is challenging . The past couple of months have been especially hard for my family having my sister at home. The day-to-day challenges of keeping my sister from falling, cleaning her up after  uncontrollable incontinence. My sister was not herself anymore, she could not feed herself, she had been falling down, bruises all over her body from the falls. Social Services determined that it was time for a nursing home. She was placed in a nursing home in Yucaipa, ten days later she is gone.

In July when I went to visit my sister I had asked her if she regretted her decision not to do have treatment. With out hesitation she said “No”. She did tell me that she regretted letting them do the mastectomy. I described to her what would have happened to her breast if she refused the mastectomy. She just stared at me, she really didn’t respond. I think my sister had this vision that she would just close her eyes and pass. She did not think she would last a whole year after being told two months. None of us did.

To my sister Bert: I am so sorry that you were so unhappy on this earth that all you wanted to do was depart from it. I am sorry that you always referred to yourself as the black sheep of the family. I am sorry for the years that you alienated yourself from the family, you had your reasons for choosing to be distant. I am sorry that you did not love life enough to want to fight for it. You leave behind a beautiful daughter that is loved by everyone. You are free now, free of pain, free of cancer. I have been praying for you and will continue to. You are now with our other family members that have passed before us, rest in peace, God bless.

This morning here on Maui I did a 3 mile walk for breast cancer. It  was the second annual Spirit of Aloha walk against Breast Cancer. On the walk I ran into a friend that used to work for MDI. Adele and I talked for a little bit on the path, it was really nice running into her, she later then invited me over to a luncheon at a friends house. It just so happened that I did mammograms on three of the ladies at this luncheon. This group of ladies were amazing, I had opened up to them about my story, and the knew about my sister. I was at this luncheon when I got the news about Bert passing away. I am glad that I was not alone when I found out. It was meant for me to run into Adele, so that she would invite me to this luncheon. A couple of hours ago I received a phone call from Brian Burns the founder of this mornings Breast Cancer walk. He called to tell me that I won the “Grand Prize”, REALLY?  What an emotional day!

I won a two night stay at The Wailea Beach Marriott Resort & Spa! I received Brians phone call just hours after Berts passing. I told Brian that perhaps my sisters spirit had something to do with me winning the grand prize!

Mahalo for reading my blog.

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41: Maui to Lana’i and Back !

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When I signed up for this voyage I was a little apprehensive about it…to say the least. But I really wanted to do something significant to celebrate my successful feat in conquering each obstacle this past year. Chemo therapy was no joke, with each treatment I was sicker and sicker, then came surgery . With the help of amazing Physical Therapist, and my personal daughter nurse Mo with me, I recovered seamlessly. Then came Radiation Therapy, again by following doctors instructions on skin care to a tee in addition to  Physical Therapy, the Myofascial release, followed by Lymphatic massage has been a god send. One full year of Herceptin infusion completed……..I am officially done with treatment! How do I say farewell to this past year? I signed up to take part in The Pacific Cancer Foundations “Paddle for Life” “Voyage to Lana’i” fundraiser!

First and foremost, much mahalo to those who contributed to my cause, I am beyond appreciative. Love and support is not just monetary contribution to my cause. The past year I have received many cards (via mail), text messages of support, voicemails left on my cell phone, family coming to Maui, patients that I have imaged inquiring about me. I could go on and on. I truly feel so much love and support from everyone….I am blessed.

The Voyage :

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My day started with a 330am alarm. By 445am I was at our bus pick up location at Maalea Harbor, which took us to the West side of the island. I was not launching off, so therefor I was at the boat ramp. We were taken to our support boat via a zodiac boat. One the first six man exchange I was put in. You transfer in the open ocean from you support boat to the zodiac then to the canoe. I was really out of comfort zone but with the help and encouragement of my team and the boat support team I managed to transfer….no fear! (It’s not like I can say “God, please make the waves stop so I can transfer without the ocean moving”) I did it I am so proud of myself! Kept telling myself “I beat cancer I can do this”. Being in that canoe in the open ocean was intense on the way to Lana’i, the waves were intense, it was beyond exhilarating !!!! After a couple of exchanges I was put in to be part the landing crew. Paddlers in the launch and landing are survivors. Since I didn’t get to launch I got to land. Coming just past that rock that I never thought we would reach was so emotional. Our captain Linda T.A. had us stop just before coming in and said some encouraging words to each one of us, we were the last canoe in. All the other paddlers were lined up at the beach, I could just see and hear the cheer coming from everyone one the beach as we landed. To follow Hawaiian tradition when you land on another island, permission is granted, then you present gifts after Hawaiian chants and prayers. Each paddler presented gifts to the people of Lana’i. We were given Taro plants, and roots to present to them one by one……all 300 plus paddlers!!  It was a beautiful ceremony.

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We were provided lunch, by Hard Rock Cafe. After eating those of us that were camping needed to set up camp before the sunset. We were provided tents to pitch….pink tents!! I don’t remember the last time I camped in a tent! Some paddlers opted to stay at the Four Seasons or the Lana’i Hotel, I believe those were you only options. I opted to camp.img_3700

I pitched my tent and then went a little hike up to “sweetheart rock” with a fellow paddler and friend Flora.

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This is the rock that when paddling into Hulopoe Beach at Manele Bay I thought we would never reach! The view was so beautiful! Dinner was provided by Nalus , I believe they also provided our breakfast Sunday morning as well. A small group of us wanted to ride to visit Lana’i city. We piled into my team captains car and she took us to visit some sites on the island before going into the very small “Lana’i city”. Here is a picture of us by “Jax” which are large concrete barriers in the shape of jax. They create an ocean break where the barges  come in for deliveries of containers. img_3668

Sunday morning come oh so fast, sleeping on the ground was not very comfortable, especially being sore from paddling. By 630am our tents had to be down and packed, our bags with our belongs with our team had to be taken to our specific support boat. We had breakfast, 10 minute yoga stretch , morning prayers and chants in Hawaiian, songs were sang it was truly beautiful. I again did not get to be part of the launching crew, but we did get to see the launch before going to the boat harbor to our designated support boat. img_3698

A total of twenty-four canoes entered the water…and they were off. On the first six man exchange I was put in. Again transferring was a bit intimidating for me but I did it! It was blazing hot, the ocean was calm and our support boat captain turned the motor off and said we could jump in the ocean if we wanted. I jumped!!!! We had a rope to hold onto so we would not drift far, you bet I held onto that rope. It was so refreshing to jump in for that moment. There was going to be a couple of exchanges before I went back in so I grabbed my camera and took some photos. dscn0847

This is a picture of the zodiac coming toward our support boat to pick us up for another exchange. I was put in, and from what I understand the distance was another 3.8 miles away from Maui. Once in the canoe, you are paddling with strength that you did not know you had. No more exchanges, we were taking this canoe in!! Our steersman Buck was very encouraging, telling us that we were survivors and we could do this!! “Stroke, stroke, stroke” he shouted periodically, “timing people”, “stay focused, you can do this”, “stoke, stroke, stroke my matees! Our support zodiac came over to us to make sure that we were all ok to “ironman” in, we were given small water bottles in case there was not any at the beach waiting for us.

To describe the beauty of Maui from the ocean is impossible. We were so far out that you could not even see the beaches of the West side or the high rise resort hotels of Ka anapali. It was blue ocean, the verdant westside of Maui topped off with blue skies and scattered clouds that looked like a halo over an angel. Purely breath taking. As we got closer to Maui, we could see the resorts, with each stroke we got closer, but it seemed to take forever. The end was near as we got closer and closer, we could see that the rest of our team was in the water waiting  to help us bring this canoe in. We landed!!!

This voyage was beyond amazing, never did I imagine that one day I would be part of a team to paddle from one island to another. Doing this was physically and mentally challenging. It was both spiritual and emotional for me sometimes bringing tears to my eyes thinking of the past year….. but that is exactly what it is now…in the past. Time to focus on the the next phase.

Much Mahalo and love to the Pink Paddlers for being so welcoming, you are an exceptional group. I can not believe that this much anticipated event is over, I am so glad I did this.

Much Mahalo and love for taking the time to read my blog.     Pina

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28: Pathology Results

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Friday evening I received a phone call from the office of Dr. Nakashizuka. Her office assistant called to inform me that the pathology came back on my breast that was removed and the lymph nodes……..no residual cancer cells post chemo!!!!!

Tomorrow (4/4) I have my first post op appointment with Dr. Nakashizuka and she will go over the details of pathology with me and change the dressing over the surgical site. I have read many articles and books, in which they say that it is pretty traumatic for the patient the first time that she sees herself with out her breast. I don’t feel that I will break down, being a Mammographer and my time working at The Cancer Center in Palm Springs has prepared me for this. I have been extremely compliant as far as post op instructions go. I know far to well what happens to the surgical site if you over do it!!!! No seroma for me if I can help it!!!

I have two drains on the mastectomy site that have been draining well. My daughter has been emptying and measuring the fluid daily. The surgeons office gave us a log to track the fluid. I am sure she will be pleased with my daughters diligent entries.

The Little Things:

You don’t realize how important good range of motion of your shoulders is for getting dressed. Due to the ” Lymph node dissection” my left arm has limited mobility. I had planned ahead and purchased  tops with buttons up front. I had to do a little retail therapy today and purchase a couple more tops and easy pull on bottoms. I attempted to put my favorite pair of shorts on today, but pulling the zipper up and buttoning the button was too much! So, shopping one must go!!!

It is getting late here in Oahu (well late for me) so I’m going to sign off. Thank you for reading, will keep you updated on upcoming appointments. Thank you for all the well wishes and prayers.

Much Aloha, Pina

 

 

 

 

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