Tag Archives: imua

Recovering From Surgery

I have been wanting to blog for a couple of days now. I was discharged from The St. Charles Surgical Hospital on Saturday March 4th. My husband Jack stayed with me the whole time as each room is private and has a Murphy Bed for you significant other. Each day nutritional services takes down your order for breakfast/lunch and dinner for both patient and family member.

I remember when I was taken back to pre-op shortly after arriving at 6am, Jack was told that he can wait for me in my room (more like a suite), Suite 217. After changing into the gown the Physical Therapist came in and wrapped my left arm, which stayed wrapped for several hours after the surgery. It was challenging for the team to find a vein for I.V. access, one of the Anesthesiologist is the one who was able to get it after they placed my arm in a heated blanket. With that being said they did not have multiple nurses attempting to access my vein. They immediately let the Anesthesiologist know that they were unable to start my I.V. After the I.V. was successfully started I was taken to the O.R. I remember getting wheeled out of pre-op and that’s it!

The operation was over eight hours long, I do not know the exact length. I was brought to my suite between 7-7:30pm, making the surgery 12 hours, but I do not know how long I was in post-op. Either way , it was long. My incision is 360 degrees around my waist line. Bilateral SGAP and they harvestesd veins from abdominal area, hence the incision across the belly. I knew going in that, that was going to be a possibility if the veins from the back side were not long enough, they would harvest veins from abdomen. Drains were a total of six. Right side; Breast, Abdomen, Hip. Left side; Breast, Abdomen, Hip. I was up and walking the next day (March 2nd) and was going to be released on Friday the 3rd. However because I threw up my breakfast they opted to keep me till Saturday the 4th. Jack then took over my care, keeping track of pain medication times, draining the tubes, documenting the fluid for each individual drain, helping me shower, shampooing my hair and redressing the incisions, putting back on the compression girdle and compression bra.

My post-op was on the 8th, four drains were removed, I still have both hip drains. Everything is looking really good. Challenging for me is that for the next four weeks I have to sleep on my back, can not sleep on my side (I am a side sleeper) or tummy. Also the compression garment that I have to wear. My next post-op appointment is Monday the 12th, I should be released to travel back after that.

I am really trying to make these blogs short, one last thing. Thank you for all the prayers and get well wishes thru this blog and social media.

Aloha Pina

9 Comments

Filed under Breast Reconstruction, Uncategorized

Surgery Number 9, But Who’s Counting?

Tomorrow is the day! Over a year in planning, the day has come. I’m excited for the end result. I am emotionally ready, SPIRITUALLY READY, physically ready and with the love and support of my husband, family, friends and medical teams both here in Louisiana and on Maui I know this will be it! Since the beginning of this year every Friday I have had countless appointments leading up to this. Labs, urinalysis, physical therapy, dental cleaning, EKG, wellness therapy appointments have been non stop. Surgery number 9, but who’s counting! The day has finally arrived!

Todays appointments consisted of Physical Therapy, went over lymphedema of the left arm. My left arm will be wrapped from fingers to just above the elbow. My upper body strength and range of motion was documented, and we went over post-op therapy. I was then taken to radiology to have a Cat Scan and sat with nurse to discuss what would happen once I arrive at The St. Charles Surgical Hospital tomorrow morning at 6am. The pre-op nurse went over all the pre-op instructions, and gave us (my husband and myself) plenty of opportunities to ask questions. The Anesthesiologist also sat with us and went over everything. My final appointment was with the Surgeon and his clinic with one of the facilities P.A’.s. To say that this hospital is well organized, kind, empathetic and know how to place one at ease is an understatement. My body has been marked with the purple pen mapping out the plan. I have been given the Hibiclens (very familiar with that). The challenge for me will be NO products on my body, hair etc. after my shower this evening and tomorrow morning. It going on 9pm here in Louisiana, time to start prepping for tomorrow.

Mahalo for all the well wishes and prayers (KEEP THEM COMING)…Aloha Pina

11 Comments

Filed under Breast Reconstruction

HEADED TO NOLA

#69 HEADED TO NOLA

It has been a bit since I have blogged. Initially the purpose of this blog was to keep my mommacita informed, she was my biggest fan. Since the summer of 2019, when she passed, so much has happened. Got situated on Maui, back at work at Maui Diagnostic Imaging. Then we rolled into 2020, and we all know what happened that year. I stepped into Lead Mammography position as my co-worker left the island that summer.

In December of 2021, I contacted The Center For Restorative Breast Surgery, which is a hospital dedicated to breast reconstruction. My husband and I had our first zoom appointment with them. I then spent the first months of 2022 gather all and requesting all my surgical notes ( 9 breast surgeries) from the hospitals were they took place. It was a process doing all by phone and email, faxing etc. Once I had all my notes I then forwarded them to the Breast Center. Their team then reviewed all, along with pictures of myself that were sent thru a private portal. We were then offered an in person consultation which we did on October 17, 2022.

I was nervous and excited. Meeting them in person was the right thing to do vs. zoom and or conference calls. My husband and I sat with the surgeon and one of his assistants, he was extremely kind and thorough in explaining what could be done in my particular case. The in person consultation was exactly what I needed to put me at ease and hear his explanation of the recommended surgery vs. reading about it. When we left, I felt really good and hopeful. The decision was made to do the surgery in early 2023, since it would require 2 surgeries. Having it done in early 2023 would allow both surgeries to be done in one billable year, the Breast Center pointed this out. This center is so well organized, different teams reached out to me after my consultation. Scheduling, Financial team, Housing recommendations contacts, pre-op test etc.

Surgery is scheduled for March 1st! We have had our airbnb reserved since last year when the surgery was scheduled. When we were in Louisiana for the consultation we stayed in the French Quarter and did a little sight seeing then. This time around will be different, our stay in New Orleans will be post-op and recovering. I will be required to stay in NOLA for two weeks, before giving the okay to fly back to Maui.

The Procedure: Surgery will be about 8 hours long, it’s called SGAP breast reconstruction. For those of you that have been following my story, know that my right breast was a prophylactic mastectomy, currently with an implant. The implant will be removed and both my reconstructed breast will be with my own adipose. This being done for symmetry and realistic volume of both breast. At this point all I want is two breast. I am so over wearing a prosthetic breast and having the void of a left breast and being uncomfortable in certain clothes. I know that my breast will never be like pre-cancer breast, and I’m okay with that, I just want my new normal to feel a bit normal.

The picture above of my mom and I is one of my favorites, I miss my mom, that picture was taken on March 26, 2012. My birthday is the 25th, we always spent the day together for my birthday. My mom throughout my breast cancer surgeries always prayed for me, I know that she will be looking over me.

Mahalo for Reading my blog…much Aloha, Pina

2 Comments

Filed under Uncategorized

#61 Another Revision!

Well, my surgery went well…the left breast implant was removed along with all the excess radiated skin……so much for a “skin sparring Mastectomy ! I feel I should have blogged earlier but I kept thinking, I will blog after this post op appointment. However to date I have had three follow-up appointments. My surgeon kept my drainage tube in for two weeks because at my first post op the daily fluid output was more than 25cc’s.

On April 16th, I had my annual Bone Density and a CT of the lungs for that little nodule that the doctors have been monitoring. Well GREAT news, my Oncologist, Dr. Ho from the  Palm Springs Comprehensive Cancer Center told me that the nodule is stable and has not grown, he will continue to monitor it annually. And my DEXA (Bone Density Test) is also good…I was so happy with that news!

On April 20th, my sidekick (drainage tube) was removed. However that week my incision where it all joins started to seep and open! REALLY could this possibly be happening again! My Plastic Surgeon wanted me back the following week to keep a close eye on it. Which that appointment was just last week on April 27th.

I would like to back up to April 25th. On the 25th, my husband and I celebrated 31 years of marriage! I love you Jack with all my heart, thank you for always being there for me, for accompanying to all my appointments when work permitted….my story is not over, I am looking forward to many years with you, looking forward to our week on Maui!

Ok, back to my appointment on the 27th. After Dr. Eko looked at the area he looked at me and said that he would need to do Another Revision. At this point, seriously my heart just sank! Of coarse I asked exactly what he planned on doing, Dr. Eko went on to describe the procedure. My husband and I waiting in the examination as they prepared the Procedure Room for me.

After administering plenty of Lidocaine he removed select staples in the trifurcation area. (I will be posting pictures, just do not scroll down if you do not wish to see them.) Slithers of irradiated skin was removed, then it was sutured. It was surreal, the area was well numbed up, but thru my body I could hear and feel (without pain) every stitch! My body was shaking uncontrollably, they covered my with a blanket….this was a pretty invasive procedure done in the office…my plastic surgeon and his wonderful M.A., Angelica made sure I was comfortable. My husband was in the room, a couple of times the blanket came off my feet and he tucked the blanket under my feet. It was nice having my husband in the room, Dr. Eko played smooth Jazz during the procedure, which was also very relaxing.

What’s next? I had a follow up appointment today April 30th, it went well. I am instructed not to lift my left arm above my head so the it doesn’t tug on trifurcation area. The doctor (and I) want this to heal!!! My husband and I will be going to Maui for one week, I will not be getting in the ocean, other than my feet….just plan on relaxing and visiting my Maui Ohana!

Microblading, on Wednesday May 2nd I will be getting my eye brows microbladed. Yes, the hair on my head has returned post chemo, however I have little to no eye brows! I will have to wear a hat while in Maui, which I’m okay with…just looking forward to not having to paint on my eye brows every morning to look normal! So grateful to the gals from the Cos Bar in Wailea that took the time to teach my how to apply my Tom Ford Eye Brow Kit.

 

****************************** SENSITIVE PICTURES BELOW************************

 

 

 

 

 

 

 

 

 

 

 

 

IMG_5978.jpgIMG_6039.JPG

On a daily basis my family stripped and documented the amount of fluid out put for two weeks until the drain was removed. Post op, my son Cisco took days from work and stayed home with me… he did really good, he only gaged once when some fibrous tissue was in the fluid!

 

 

IMG_5867.jpg

IMG_6017.jpg

Damm, It looks like I had a “Radical Mastectomy”!

Here it is, I struggled with the decision to post this picture ….. but this is the reality of it. The Implant was removed with all the irradiated skin. Looking at the picture above my head is to the right with the tube going down. The stapled area that goes  up towards my axilla (armpit) is that darken circle that is seen on the first picture… that skin was removed, hence this result. The following picture was taken on April 27th, you will notice that the staples where it all trifurcates are gone. That is because on April 20th the plastic surgeon removed them, at this point they were  obviously just irritating the area. The area didn’t close which is why Another Revision was necessary. IMG_6071.jpg

I don’t have an after picture of the revision…my husband says it looks good, he has been doing the dressing changes, he has become quite the wound care specialist! I have instructions not to lift my arms above my head

My next follow up appointment, is on Monday April 14th. I will keep everyone posted with a shorter blog……I promise. If you have read to this point, many thank yous for taking the time out of your day to read my blog.

Pina

 

1 Comment

Filed under Uncategorized

#60 Mutated Gene and Plan B of Reconstructive Surgery

IMG_5869

My Hyacinths in full blossom

 

This blog will cover two topics, first I will discuss the “Mutated Gene” topic.

On December 20, 2017,  I received a phone call from my Genetics Counselor from Queens Medical Center, Oahu Hawaii. Allison was calling me to  inform me that one of my genes that was previously tested had been reclassified. Genetic result: Positive – Clinically Significant Mutation Identified ! Yes folks, I have a “mutated gene“……add that to the bucket. This mutated gene is the CHEK2 gene, which is for both Breast Cancer and Colorectal Cancer, (as if I didn’t have enough to worry about) My job was to inform my siblings, as they have a 50% chance that they inherited this mutated gene as well. If they test positive and their kids (my nieces/nephews) can be tested, however their risk factor is 25%, that they inherited this gene. I was provided with test results and information to pass on to my siblings should they choose to test, also my children (if they opt too) can now be tested. These blood test are extremely costly, someone without a first degree relative testing positive would have a difficult time convincing an insurance company to run and pay for this blood test, which also involves an office appointment with a Genetics Counselor. The fact that my sister and I were diagnosed within weeks of each other warranted my insurance to pay for my test.

And now on to topic number two:

The removal of my bilateral expanders and placement of the implants surgery happened on February 1st. Going in,  I knew, because my plastic surgeon was extremely thorough in explaining ALL scenarios that statistically I had a 35% chance that my irradiated tissue would not take well to the implant surgery. During the implant surgery the excess tissue was removed, before cancer I was a natural DD cup, now I am down sizing to a full “C”. Well this surgery was a little too traumatic for my irradiated breast tissue. Initially it appeared to be healing just fine, every day was better (even with a broken toe).

I think right now would be a good time for me to insert my disclaimer. ” I will be inserting sensitive pictures with this blog at the bottom of this blog, if you do not wish to look just scroll slowly I will tell you when to stop”

The Right side is healing just fine without any issues. But remember the right side did not have cancer, I had a mastectomy as a preventive measure on this side. My follow up appointment on February 21st with my PS went very well. We did discuss nipple options at this appointment which I will save for another blog. The a couple of weeks later I had Jack take a picture for me, I still had visible discolored areas (like bruises) which was normal. However, come March the darkened areas began to get larger. I did not have “pain” associated with the darkened areas….the area is numb like due to the mastectomy. Kind of like “Neuropathy of the boobs”…if that is such a thing. I had a couple of areas, actually three, that the scab fell off then appeared to be opening….and oozing (lymph and blood, not puss).  What the Heck!!!! My next follow up at this point was March 19th, which was the next week. My husband tells me not to wait and call my Surgeons office. After a long day of surgeries my Plastic Surgeon Dr. Eko offered to meet me at his office at 4pm. I drove myself to this last minute appointment…..I knew the darkened skin was not good, nor my new little peep holes! We talked about “implant failure due to irradiated skin” and that 35% bracket that he believes I was falling into. He ended up doing a “Revision” in the office, in which he cleaned it up and sutured it…..again. With the help of my friend Lidocaine and my PS’s gentle touch, I didn’t feel a thing! I went back the following week,  March 23rd to have those stitches removed…however it was obvious at this appointment that the openings were not closing up! The stitches stayed in and doctor extended my prescription for antibiotics and extended me one more office visit before making the decision to remove the left implant…..That appointment was yesterday March 30th.

The verdict is in, I am scheduled for surgery April 4th, to have the Left Breast Implant removed. Implant failure due to irradiated skin does not mean the end of reconstructive surgery for me, just means that “Plan  B” will now be the options for me. I briefly discussed plan B on a previous blog, blog number 52&53. However, after the implant is removed we will wait six months before determining which Autologous of Flap Reconstruction option I will have.

I realize this turned out to be a very long blog…thank you for reading to this point, I truly appreciate it. For those wondering why I would post sensitive pictures of myself? To reach out to those just starting their BC journey, to educate, I have lots of people reading my blog that are not related to me, one person from Spain, someone from Europe and Australia……….reconstructive surgery can go smoothly with out hiccups, or it can take multiple surgeries…just want you to know it’s not all Hollywood and Glamour.

******************** STOP HERE IF YOU DON’T WISH TO SEE PHOTOS******************

 

 

 

 

IMG_5859

Right side healing accordingly the scar wraps around to the cleavage area

IMG_5789

Left side Feb 24th, healing nicely with slight briusing

IMG_5812

Left side March 3rd, at this point one obvious opening, more discolorisation

IMG_5844

Revision March 14th

IMG_5867

March 23rd, Radiated skin is not healing shut, darkening of skin more and more evident

Leave a comment

Filed under Uncategorized

57: Phase 2 of Reconstructive Surgery

The much anticipated appointment went well. Last week on January 12th my husband Jack went with me to my appointment at the Plastic Surgeons office. Dr. Eko examined me and was pleased with the progress thus far. Of course my husband being the jokester that he is participated in the examination, however when he pressed on my boob he had his finger on his phone and activated a “squeaky toy” sound! Oh my honey…..got to love that man….we all got a chuckle out of it and proceeded with the exam.

On my previous blog I mentioned how the non cancer breast (the right one) has dropped and the cancer side is standing tall in place. The left side has been irradiated….though the  tissue on the outside looks fine, underneath the shin the tissue is damaged from the radiation treatments. The right side is natural tissue without radiation damage, hence the reason for it dropping, getting nice and cozy in the excess tissue from the skin sparing mastectomy. The excess tissue will be removed along with the tissue expanders and the implants will be placed. Dr. Eko will even the girls out when he puts the implants in.  I remember from previous appointments he would stress that they will be “sisters, not twins”. He will use the same scar, however the scar will be made longer in order for him to remove the excess tissue. I am unclear on whether or not I will have drainage bulbs again, as I for got to ask…….he didn’t mention them during the exam so maybe not! ( we will see)

After Dr. Eko was finished with the examination and questions were answered, Patricia took me into the “photo room”, where she took a series of pictures of me for the surgery. Through this journey called “breast cancer” you definitely lose all modesty. I can not tell you how many times since August 2015, I have been asked to disrobe from the waist up! I must say that with all the medical professionals that have examined me or have just been along side an MD while I was being examined I have never felt uncomfortable, every caregiver has been so compassionate through out this journey….I am very fortunate to have the medical team that I currently have and my team on the island of Hawaii.

Phase 2 of Reconstructive Surgery  will be February 1st !!

Mahalo for reading my blog!

1 Comment

Filed under Uncategorized

55: Reconstructive Surgery

 

100_3853

Ok, This shit just got real! Warning graphic picture included in this blog

My surgery was one week ago today. It is kind of hard to describe what goes through your head as you are going to the hospital, walking in, registering, signing the anesthesia consent and being told the risk……reconstructive surgery is a choice, not a medical necessity. I decided I wanted this. As a licensed Mammogram Technologist, when doing a mammogram on a patient with implants, sometimes I wondered why they did it. Especially when they appeared to have adequate breast tissue in front of the implant. And what didn’t make sense, is when they had risk factors for breast cancer and got implants placed! I always thought I would never get implants, just wear good bras to bring the girls up some! LOL! My road to implant placement is different, it’s reconstructive surgery after breast cancer.

I will be forthright in sharing my experience as this has always been the purpose of my blog…..to share truthfully, to educate, to share my BC journey, so my apologies if anyone is offended by words typed or pictures posted.

I was wheeled out of pre-op into the operating room about 1250, with the surgery ending about 1830hrs, making surgery time just under six hours long. I was admitted to the hospital third floor at DRMC. I don’t remember much of the first three days after surgery, I think the pain pills had something to do with that! I do remember vomiting when I got to my room and feeling like my chest was going to burst open! Once we got home after my one night stay at DRMC, I do remember my eldest daughter (nurse Nikki)  making me eat regularly and giving me a slew of pills on a regular basis, draining and stripping my drains, documenting the fluid from each drain three times daily, showering me and dressing me.

My arms ached and the did not extend out much, initially after surgery.  I was so thankful that by the time I had my first bowel movement (4 days later) I was able to clean myself! I would have been mortified asking my husband or daughter to wipe my #@** ! My daughter was not too concerned that I had not pooped till then as I was passing gas regularly…..I realize this is one of the TMI moments! OK, enough of that subject.

My husband (quite the comedian)  says I have Tyrannosaurus Rex arms! He is having fun (at my expense) about my limited reach! (maybe I should have had him wipe my #@** ! However,  he has been quite helpful with draining my drains, showering and combing my hair etc. You don’t realize all the things that you can not do for yourself after a surgery. The plastic surgeon was clear when talking to my family that I could not do anything! So it has been a little hard on me know that I am more mobile. Simple things like tidying up the kitchen, or wiping a spot on the tile floor….I just have to look away, my family has been great doing everything.

How does it look?

The expanders are placed really high on the chest wall, literally just below the clavicle! I knew this so I was not freaked out when I saw them for the first time…..I am swollen, with time this will go done. I have the four drains coming out of my body, which I know some people get freaked out about. I have an appointment tomorrow Wednesday the 30th with the PS, two of the drains will come out. (ouch) Right now the scars are held together with a type of Dermabond (skin glue). For me too look at my chest wall right now I am a bit taken back on the appearance of them. But I know that this is not the end result, this journey will not be finished till the end of this year. So please keep that in mind when looking at the picture that I will include with this blog. I thank you for reading this blog to this point, as I realize it is a long blog.

I am literally a little nervous about the following picture, but if these pictures just helps one person out there debating weather of not to go through reconstructive surgery then  it was worth posting. And if you are on the fence of decision making please follow my blog to see the end result towards the end of this year, if that is too long to wait then research reconstructive surgery pictures……your Plastic Surgeon should be able to provide you with pictures as well.

I seem to have breezed through Chemo, Mastectomy and Rad TX, but honestly this shit just got real! I remember my husband telling me not to do reconstruction for him! My response: Oh, IF I have to go through this shit (meaning treatment) I’m going to get new ones out of it!………..So bring on the final phase………Reconstructive Surgery.

post surgery

 

The first pictures was taken on our 20th wedding anniversary trip to Maui…here we are in our 30th year of marriage, who would have thought we would be going thru this (notice I said “we”) because your diagnosis affects the whole family! I am blessed to have a very supportive one ……….#bumpintheroad

Thank you for reading……Pina

 

1 Comment

Filed under Uncategorized

54: Surgery Date Set

DSCN2858

It seems like just yesterday my breast cancer journey started. As a matter a fact this month marks two years since my diagnosis. It was August 18th that I had my biopsies that resulted with those dreadful words….”you have cancer”! Many of you have kept up with my journey via this blog, and I thank you for your messages and support.

Now that Chemotherapy, Left Breast Mastectomy and Radiation Treatment are behind me, it is now time for reconstruction! The decision to have a Right Breast prophylactic Mastectomy was an easy one for me as I am aware that I am high risk for a reoccurrence.   This past month (July) I had a little scare, I had a Breast MRI, and was called back for a second look on the right breast! I immediately thought “oh crap….here I go again”! Fortunately it was nothing and I was given to go ahead to proceed with the surgery! (sigh)

The surgery will happen on August 22nd, as of today I do not have a time. I will have two surgeons working on me. While the Breast Surgeon is performing the skin sparring mastectomy on the right side, the Plastic Surgeon will be placing an expander on the left side. When the PS is finished with the left side and the right side mastectomy is complete he will the place an expander on the right side. When I wake up, I will have four drains, two of which will be removed one week after surgery. The other two drains will be removed when fluid has subsided. After the scars have healed somewhat, the Plastic Surgeon will then start to fill (inflate) the expanders weekly till desired fullness has been reached. After about three months of healing and praying that my body does not reject the expanders, the expanders will be switched out with the implants. The goal is a C cup:)

People have to understand that this is Breast Reconstruction after treatment for cancer…..it is not an Augmentation…….huge deference! I am thankful for the medical team that I have, but most of all for my husband and family without them this journey would have been impossible,  I know that I am in good hands!!!

I always mention a little something about the picture I include with my blog. My husband  and I took a quick little getaway trip to Maui the last week of June. This sunset picture was taken using a sunset setting on my camera, it cracks me how people (tourist, visitors) leave the beach as soon as the sun disappears from the horizon. This pictures was taken approximately 20 minutes after the sun had set! Dependent on the clouds, there is usually a show of colors AFTER the sun has set….you just have to be patient….dinner can wait !

Mahalo for reading my blog

I just got a call from the hospital, they verified name and insurance etc…. they will call me the day before the surgery with the time of the surgery!

 

 

 

Leave a comment

Filed under Uncategorized

52 & 53: Reconstruction

IMG_4819

 

I’ve never been one for selfies but I wanted to share how much my hair has grown and how curly it is! My hair BC (before cancer) was curly but not as curly as this…. I will take what I get as some women that were given Taxotere are not getting hair growth back.

June 20th marked one year since my last Radiation Treatment, I had a total of 29 rounds to the Left chest wall at The Pacific Cancer Institute on the island of Maui, from May 11th to June 20th. The plan all along has been to do delayed reconstruction. My team at PCI thoroughly explained skin care to me which I followed to a tee. The week after I started Radiation treatment I was referred to a physical therapist for John Barnes’ myofascial release technique massage. I saw my therapist twice weekly thru the month of July 2016.  I was also prescribed Mometasone Cream for me to “gently” apply post treatment. Hence, my skin flap is pliable, and not hardened.

IMG_4688

These pictures are of  just two types of reconstruction surgery known as Autologous of “Flap” Reconstruction. This is not the type of surgery I will have but the surgeon did go over the details of these two types of surgery. Reason being, IF my body rejects the Implant Reconstruction, this is “Plan B”. I will pray that my body does not reject the implants as these surgeries are more invasive.

 

IMG_4689 (1)

53:  A Show and Tell Moment

In February of this year at my first meeting with my Plastic Surgeon he gave me homework. He wanted me to research as to how many cc’s I wanted my implants to be. I told him on how before cancer my breast were not symmetrical, my left breast was larger than my right breast. Although this was not noticeable with clothes on, I was limited to style of bras and swimsuits because of this. So, I told him I wanted them to asymmetrical (same size)…..he smiled and said he can do that. My husband chimed in and asked the surgeon if he can place a set on my back so he would have something to hold on to when we slow danced!!!!! We burst into laughter….got to love my husbands sense of humor!!! ( I hope this doesn’t offend anyone)

So, how does one determine reconstruction size? You google it, Pinterest it, or simply ask a friend! I was at the Cancer Center talking to my good friend and fellow Mammography Technologist Extraordinaire. I mentioned my dilemma to her, before I know it Catherina and I are in the bathroom for A Show and Tell Moment. She was quite impressed with how pliable my skin sparring mastectomy is, as Mammographers we are oh too familiar with what a post radiated breast can look like. She showed me her implants and her size, decision made, I will shoot for a “C” cup! I also have to keep in mind and make it clear to my readers that mine is a “reconstruction, post mastectomy” and not a “breast augmentation”, so end result can vary…..I will have no nipples, they can get tattooed on later!

Exactly what is a Modified Radical Mastectomy, Skin Sparing? Basically my nipple was removed (I opted for non-nipple sparring) along with all the breast tissue. For those of you that have been following my blog from the beginning, you will recall that the Breast MRI that was done when I was first diagnosed found an additional cancer on my left breast,  4mm away from the fascia of the chest wall, straight back from the nipple at clock face 12:00. What is left behind is a deflated breast, all my breast skin was sparred minus the glandular tissue…….I have a deflated boob.

IMG_4763

I was in Redlands last week signing a release of medical records for my primary doctor in Palm Springs, he wants surgical notes of my Hysterectomy/Oophorectomy from 2009. (I sure am missing a lot of parts now!!). I stopped in at the Women’s Health Imaging Center to say hello to Renee, we chatted a bit about my blog amongst other things. I showed Renee this picture and how I wanted to share what a “skin sparring” mastectomy was. I took this the above picture after doing my exercises, I was cooling down, stretching. But I wanted to show more, I wanted to share the actual skin flap.

So what does a good friend do….offer to take photos for your blog!!! Renee and I quickly go into one of the mammography room, off comes my blouse, bra and Betty (that’s my prosthesis name) another Show and Tell Moment! Mahalo Renee for taking these pictures for me on a whim!

mastectomy

Needless to say, I am ready for reconstruction. Today June 21st I went to the Plastic Surgeons office, the appointment went well. My husband Jack was with me. There was a moment of laughter when the topic of the prophylactic mastectomy was discussed, the surgeon asked if I was going to spare (keep) the right nipple? I said no, I don’t want to be like a one-eyed pirate when the nipple is hard! I closed one eye and said “arrrrggg”, the surgeon laughed……it was a funny moment. So what’s next? The  Breast Surgeon’s office will be contacting me to schedule labs, chest x-ray and an EKG. The surgery will then be scheduled. The Breast Surgeon Dr. Laura Lee will do the Right Prophylactic Mastectomy and the Plastic Surgeon will be doing the reconstruction placing the expanders. Post operative I will have four drains, two on each side. Two of them come off one week post-op. The other two come off after the fluid drainage has subsided. Expanders will be expanded every week until desired fullness is obtained. Then, three months later, like in December sometime the expanders will be switched out for the implants.

Holy smokes this is a long blog! If you read it to the end, many thank yous.

Mahalo, Pina

Leave a comment

Filed under Uncategorized

48:Time Flies!

IMG_4518

 

Aloha everyone, my how Time Flies! It has been one whole month since leaving Maui back to our California home in Yucaipa. I am adjusting daily, the hardest thing has been the weather. I don’t believe there has been a day where it has reached 70 degrees! The above picture was taken last night from my home…..one can never used to how beautiful sunsets are.

I have established with my new medical team here in southern California. My new medical Oncologist is at the Cancer Center where I used to work prior to moving to Maui. I have had two appointments with him last month, the first being on February 13th. I was a bit overcome with emotion on that day, it was just surreal to walk in there as a patient and not an employee. Everyone that recognized me gave me hugs and well wishes, again the morning was rough for me. I really like my new Oncologist, he took the time to talk to me about my past treatment and the plan moving forward. I still have my medi-port, so he had the nurse flush it, and draw labs before I left. I have nurse visits for port flush for the next two months with my next Oncologist and labs appointment on May 25th. I established with a Primary Care Physician (PCP), also in the Palm Springs area, he ordered labs as well, I go back to see him next week to discuss the results of those labs. My PCP also asked about my decision to do a prophylactic mastectomy. My response “dense breast”. For those of you that have been reading my blog from the beginning you will recall that my breast cancer was not caught early due to the composition of my natural breast tissue. Which brings me to the picture below! Looking at the formation of those clouds reminded me of my dense breast tissue!! The white represents dense tissue and the blue representing fat. LOL….only a Mammography Technologist will look at the clouds and compare it to breast tissue!!!!…..yay,  try to find a tiny cancer starting in that hot mess!

IMG_4515

Plastic surgeon appointment:

I met with a plastic surgeon to discuss my reconstruction options. My husband was with me which words can not describe how much his presence there made a difference to me. The plastic surgeons office had an extensive questionnaire which was emailed to me and I had plenty of time to properly fill it out. We talked about the options of reconstruction (which I will save for another blog)

Basically, my last Radiation Treatment was on June 20, 2016 I had 29 rounds…..so, he will not do the surgery until one year has passed from that date, giving my skin enough time to heal from the mastectomy and the radiation treatment. My next appointment with him is on June 21st, which at this time we will proceed and get the prophylactic mastectomy and reconstruction scheduled.

Mahalo for reading my blog

Pina

Leave a comment

Filed under Uncategorized