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24:Good News and Not so Good News

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Thursday February 11, 2016

One quick flight in the early morning and we are on Oahu. We arrived with plenty of time and I was early in checking into my 830am appt., by an hour. The CT of the lungs went fine. I was done with and without contrast. The Breast MRI was also done with and without contrast. For Breast MRI you are laying down, face down arms above your head with your face resting in donut (like a massage table). I was given button to hold in my hand to call for help if I needed it during  the exam. If this button is pressed after the contrast has been administered and the technologist has to stop the exam, then the exam would have to be rescheduled.

Minutes after the contrast was pushed through my I.V. my throat started to itch! I didn’t want to push the button and cancel this important test. My nose was stuffy, I was on the tail end of a head cold. My nose was just dripping, couldn’t do nothing about that. My eyes started to water and my throat was really itchy. I had to clear my throat a couple of times. I was trying really hard not to move. I was literally talking to myself, saying “I can do this, I can do this”! My throat didn’t close up, I was having to breathe through my mouth, because my nose was so stuffed up. I managed to complete the exam.

The technologist called over a radiologists, Dr. Kristen Nagata to examine me. A first responder nurse also came. I was told that normally they would take me over to the emergency department for observation, after a reaction to contrast. However, because I had an 11 am appointment with Dr. Nakashizuka (breast surgeon) they opted to keep me there and observe me. The nurse was honest in telling me that if they sent me to the ED, that I would not be discharged in time for my 11:00 appointment.

Dr.  Mari Nakashizuka; 11 am appointment:

Dr. Mari already had both the MRI and CT reports in her hand for this appointment. The “Good News” is that the original tumor in the left breast is gone!!!! Also, that area near the chest wall is also no longer there! The lymph nodes were a different story. Some lymph nodes appear slightly more prominent. Instead of doing a sentinel node biopsy during surgery she is now going to do lymph node dissection.

The CT, (sigh) as previously on the first blogs (blog #12) I mentioned a nodule on my lung, small little burger, only 5mm in size. Well today it measured 7mm, could be a difference in equipment, could be human error. This can not be ignored.

Surgery discussion:

The original plan was to do a bilateral Mastectomy with reconstruction. I have made the decision to have both my breast removed, this will still happen, just not as I had planned. Because of the Lymph nodes Radiation Treatment might be necessary. And because of the Lung nodule, it’s just another wrench in the bucket!! What Dr. Nakashizuka is recommending is a Left Mastectomy first, deal with the Lung nodule, get through the remainder of my Herceptin treatments, and have radiation treatment if necessary. Then do the Prophylactic Mastectomy on the right side with bilateral reconstruction. Dr. Mari feels I would opening myself up for the possibility of infection with my immune system being compromised with my continued treatment……………..I just want this over with!

Friday February 12, 2016

My appointment with my medical oncologist was at 1030 am. Dr. Chong went over the test results again with me. He made me feel better, by stressing that the main tumor in the left breast is gone! He wants to proceed with the breast surgery as soon as possible. He feels that I am strong enough for a bilateral mastectomy, however he is going to have me talk to a Radiation Oncologist. If radiation treatment is needed then putting off the reconstruction might be the best course.

So whats next?

Dr. Chong will contact the Thoracic doctor and have them look at my PET CT from 8-2015 and my CT from 2-2016 to determine if a Lung Dissection is needed. The office the Dr. Baker, Radiation Oncology will be calling me to set up an appointment. All of this should happen before my next appoint with Dr. Chong and Dr. Nakashizuka which is set for  Friday March 11th.

Not exactly the news I was hoping to blog about, but it is what it is. I need to stay on course and stay positive that all will be okay. This is just another bump in the road, or lung!

Mahalo for reading, and my apologies to family that I didn’t get a chance to talk to prior to posting this. (you know who you are) Thank you for the well wishes and prayers.

Much Aloha Pina

 

 

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22: Good bye 2015

 

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To say that Chemo number five was easy-breezy would be a complete lie……it has been rough. My husband said, he has never seen me so ill. I remember a patient told me that number five and six would be the worst and not to give up……well I am NOT giving up!!! Having all my family together here for Christmas was the best gift of all. I was too ill for us to venture out on Christmas day.  When we do venture out, I am very select as to where we go. I can not be far from a bathroom…….I know where all the public bathrooms are now….especially the clean ones!!!

The picture above was from our last  Maui sunset for 2015! Later this evening we will all be going on a boat with the Pacific Whale Foundation to watch the fireworks and bring in the New Year! Unfortunately I will not be indulging in adult beverages, but I will be with my family.

The year 2015 will forever be the year that rocked my world. Never did I ever imagine that I would be diagnosed and  battling Stage 3 Breast Cancer. As a Licensed Mammographer one would think that my cancer would have been caught at an earlier stage. That would have been the case if my breast were completely “fatty replaced”. However since my breast are extremely “dense”, my cancer went undetected. Because I am familiar with the normal lumps and bumps of my own breast, I felt it. I have already written about this in previous blogs, but as we leave 2015,  I would like to reiterate the importance of Breast Self Exams (BSE) …….ladies be familiar with the normal lumps and bumps of your own breast. Your doctor only exams you once a year. And, for those of us with dense breast, we should be inquiring about a routine ultrasound for dense breast.

It is only 8:15pm here on Maui. Families are celebrating early, those noise from the fireworks is so loud……they are legal here! I must get going to get ready for the evening. I want to wish everyone a Happy New Year! Thank you for all the love and support you have showed me. I appreciate all the good vibes, prayers and well wishes from everyone. I am  truly blessed to have all of you in my life. Tomorrow will be the start of a New Year, a year of recovery, healing and new beginnings…..be safe!

 

 

 

 

 

 

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20: Chemo #4

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With Thanksgiving on Thursday my Chemo treatment was on Friday instead of Thursday. Which of coarse meant that I was able to enjoy dinner. My cousin was visiting me from San Diego, so she organized a Thanksgiving dinner on Sunday the 22nd. On Thanksgiving I prepared an Italian dinner, it was delisioso!!!(Spanish for delicious)

Jack, Jacquelyn and myself flew from Maui to Oahu early Friday morning, it’s a mere 25 minute flight! We have a routine, once we get to the Hospital we go directly to the cafeteria for breakfast, which is pretty delish and inexpensive! Then we go to Dr. Chong’s office for my 10:15 check in time. With in minutes I am taken back. You get examined by the doctor before your treatment. My labs, vitals were good he told me that my heart beat, beats like one of an athlete! (thank you Pilates and walking) We talked about what happens after the Chemo treatments are finished and he gave me slip for an Echocardiogram. One of the side effects of the Perjeta affects your heart. I had an Echocardiogram prior to starting the Chemo, now that I am half way through my treatment, time to repeat that test. My Chemo lounge chair is waiting for me with my pole for all my bags that will be flowing through my body. The nurse, using a sterile technique cleans my medi-port area, flushes it first then starts the drips…..one by one. I am soon off to what I call my “chemo siesta” (nap). When I wake up I am almost done with my treatment, it is approaching 4 pm. Before leaving the nurse attaches that self injector to my tummy, that in 27 hrs will inject Neulasta medication into me.

Today is Saturday, right now I feel a little nauseous and stating to feel tired. Tomorrow the full side effects will kick in…..I am ready. I have two me treatments. My next treatment is on Friday the 18th, which means I will be good for when my two eldest kids come to visit for Christmas! Can’t wait to see them!

Thank you for all the well wishes via text, FB etc..Hope everyone had a wonderful Thanksgiving!

Thankful for

Family, friends, all my past co-workers and current ones. The company I work for MDI, for accomodating my availability through out my journey. The Doctors and staff of Dr. Chongs office. And all the staff at the Palm Springs Comprehensive Cancer Center! And for social media that allows us to stay connected!!!

 

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18: Chemo #2,

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The week after taking my hair, on my terms I was able to work. I got lots of hugs from patients that recognized me from last year, some would just ask. I am more than happy to share my story, especially is if patients will realize how important Breast Self Exam are. I can’t tell how many women will tell me that they don’t know how to do them…..kills me! I had one patient tell me that she wasn’t sure why I obviously did not have hair, but she said that the way I wore the scarf on my head looked really beautiful, she told me I was beautiful……….made me a little emotional.

You don’t realize how much your fur (hair) keeps you warm at night! I wear a beanie to bed. The rest of my hair is falling, I have lots of little hairs on the bar soap when I shower. Oh, it was really weird showering the first time after buzzing it. I also see that some of my eyelashes are coming off! They somehow always end up in my eye, so irritating. This  past weekend Jax and I went to the beach for some much needed beach chair therapy…..felt good to get in the ocean!

Today, October 15th , Jax and I flew to Oahu. I had my appointment with the Genetic Counselor. Received the wonderful news that I am negative for the mutated gene! My girls will not need to be tested. However, with having a primary risk factor, meaning me (mother) they have a 20% increase risk factor for getting Breast Cancer.

My Chemo treatment today went well. The Oncology Nurse offered me an injection of lidocaine on the port site before placing the catheter. I declined, yea, not sure that was the right choice……it hurt! But it was fast, just felt like a shot, and so it started. One of the bags is a Benadryl, which helps with the side effects of the Taxotere drug. I am getting TCH + Pertuzumab. That is Taxotere, Carboplatin, Herceptin, plus Perjeta (Pertuzumab) I got sleepy due to the Benedryl, I took a book for continuing education, when I kept reading the same question over and over I new it was time for my “chemo-siesta”!

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The above picture is a device that was placed on my tummy. It’s a little machine that tomorrow will inject a medication called Neulasta. Neulasta helps reduce risk of infection by boosting my white blood cell count to strengthen my immune system. One thing for sure is I can not be around sick people!!!!

It is 10:46 pm here on Maui, but I just wanted to share today with you as I know a lot of you want to stay informed. I also want to say that I truly appreciate all the text, private messages, voice mails  etc. I do read/listen to each and every message. I had one friend send me a religious inspirational message that I saved and read it frequently. I am working tomorrow, I Have a light schedule done intentionally for me……MDI is really accommodating my work schedule needs, words can’t explain how much I appreciate them.

Warmest Aloha Pina (josefina)

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16: Breast Cancer Awareness

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On Saturday September 26th, the effects of my first Chemo treatment hit me like a ton of bricks. Words can not describe on how sick I was feeling. The vomiting and diarrhea was like NOTHING  I have EVER experienced. Your body is so weak, your bones ache, you have no desire to eat, drink, or talk. You know you have to eat, but it takes energy to eat, and you just do not have an ounce of energy to spare. I have a new appreciation to all the patients that have passed my path in my Mammography career, they are true survivors, I too will soon be a survivor!

On Monday morning (Sept. 28), my primary doctor took the dressing off of my Portacath. She reached out to my Medical Oncologist to discuss medications to ease the effects. The medications made a huge difference, but I still felt awful. I don’t know what I was thinking when I thought I could go into work on Tuesday!…….I only lasted three hours!!! On Wednesday, my day was going to be split between our Triangle Square clinic (11 miles away) and our Kihei clinic  (.2 miles away) from my home. Was fortunate that MDI was okay with me only working the afternoon in Kihei. I worked on result letters, waited for the Hologic service engineer as our power supply on the unit was going to be replaced. The part was scheduled to arrive on Thursday, so he bypassed the issue so I can do the QC and patients till Thursday. Because of this issue patients were taken off the schedule, I only had two patients to do, even then, when I was done, I was so exhausted. Lee, the front desk receptionist was super helpful. She was going out of her way to help me in any way possible……………….truly blessed to have amazing staff at MDI!

With the new month being October, it brings us the annual “Breast Cancer Awareness” month. The picture above is made from only some of the t-shirts I have accumulated from doing Breast Cancer walks. If there is a walk near you, please consider participating.

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14: Tsunami Watch

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Great! My first overnight stay on Oahu, and there is a Tsunami watch! In spite of the Tsunami watch everything went well, however I did not start my chemo yet…..getting a little anxious. One of the four drugs that will be used still needs to get authorized! I have to patient. My husband got to meet the Medical Oncologist, Dr. Chong. Dr. Chong went over the treatment plan with my husband, and at one point looked at me and told me that this treatment was going to kick my ass! I believe that was his way of telling me to be prepared! I am fully aware of what is yet to come, #igotthis! Doctor looked at  my veins and said that these latina veins were not going to cut it, I will need a portacath. There is a certain “calmness” about Dr. Chong, I really like him.

I also got to meet the breast surgeon Dr. Nakashizuka. She comes highly recommended and I really liked our first visit, she was very thorough, I will discuss my surgery option in a future blog.

We went to Waikiki Beach, as our hotel was in Waikiki. We only did this because the Tsunami watch was lifted. We walked around The Royal Hawaiian Hotel, which is a PINK hotel! Loved it! The doctor’s office called me and asked if I had time for lab work? Well of course we had time, this was not a pleasure trip! Jacquelyn and I quickly got in the ocean and took some photos, then we went back to Queens Medical Center.

My portacath will be placed early on September 24th, with my first Chemo treatment on that same day……It is going to be a long day at Queens. I’m sure one of many.

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