Tag Archives: DRMC

67: Time For Healing

 

We are now in the month of May and I did not realize that I have not blogged this year! I received a message asking me about my progress and it made me think about the last time I blogged…so thank you for the gentle reminder.

Wow here it goes, in February I had a very candid talk with my plastic surgeon about moving forward with reconstruction. The decision was made to put off reconstruction to allow my body to heal. Dr. Eko was completely on board when I told him that I wanted to postpone reconstruction. I think having five surgeries under general anesthesia and several revisions under local anesthesia, merits taking some  time for healing.  So, we will wait for up to two years before I attempt left breast reconstruction again.

In the mean while I have been going to Eisenhower for Lymphatic Drainage Massage. The Occupational Therapist at Eisenhower Medical Center have been a god send. I asked for a referral for therapy, as I new that the heaviness that I was feeling on my upper arm was not just fat, and I could see my left side “puffier” then my right. However, the main concern as well was the adhesions that formed under my Diep Flap surgery scar. On both sides of my umbilicus (belly button) I have these tube like masses. The Therapist have been massaging them out in an attempt to break them up to no avail. Unfortunately they will have to be surgically removed. With that being said I am scheduled for a Scar Revision Surgery at Eisenhower Outpatient Surgical Center this Thursday May 9th. If the adhesions were not bothersome I would just leave them be, however, at times they cause me pain that stops me in my tracks.

The Therapist have shown me how to properly massage my chest wall, abdominal area, basically my front torso. And Jack (husband) learned how to do the back. The Latissimus dorsi flap is healing really nice. I have been fitted with a prosthetic (boob) and just this past week started wearing it. I kind of feel defeated, I feel like I am right back wear I started from but with a lot more scars on my body, the good thing is that I am alive and thriving! Scars are battle wounds that have a story to tell, I just didn’t think it would be part of my story.

Today is Saturday May 11th, my surgery went well, it was a minor surgery and I feel great. I am going to attach some pictures to this blog for those of you that have been following my journey, and wish to see how I am healing.

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The Latissimus dorsi scar and drainage tube scars have healed nicely

The area in the black box is where the adhesions formed that were surgically removed May 9th.

This is the “donor site” where the skin from my left thigh was used to cover the Latissimus dorsi muscle when my Diep Flap surgery failed. My flap failed because it lost it’s blood supply due to a large hematoma. The picture below is a huge improvement compared to previous pictures. Losing the Diep Flap pretty much saved my life because that is also when the bacterial infections were discovered, preventing sepsis was the main goal. I am so grateful to the Infectious Disease team that worked along side with my Plastic Surgeon at Eisenhower Medical Center.

In the Month of March and April I had my Mammogram (of the Right side only) obviously even though I did have a prophylactic mastectomy of the right side, I also my annual Bone Density and Cat Scan at the Comprehensive Canter in Palm Springs…Happy to report that all my test went well, and my good friend, ex-coworker, cancer fighting sister was right along side me and she is doing spectacular!

Final picture…here I am again just before my scar revision surgery. I am recovering well, it was out patient surgery early in the morning, we were home be noon.

Thank you for reading my blog and feel free to share my story.

Josefina…

aka…Pina

 

 

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#59 Post Surgery

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Author unknown……..who wronged me…..Cancer

It has been 12 days since my surgery, every day is better. The expanders have been removed and the Saline Implants have been inserted. My surgery was done on an outpatient basis, therefore after a long day that started at 630 am, I came home that same day. The surgery itself took about 4hrs then about……honestly the drive home is a blur, I do remember it was already getting dark.

My husband picked up my medications (pain med and an anti-biotic) at our local pharmacy, the time on the receipt is 7:34 pm, so that gives you an idea of how long of a day it was. Once I was home I was fine, not nauseas, however all that changed a couple of hours after being home.

The vomiting started, apparently steamed broccoli and red rose potatoes with a dairy free cheese sauce is considered a “heavy meal”……..my discharge papers did say “regular diet”. However after calling the plastic surgeon to let him know of my inability to keep anything down, he said I should be on a light diet till my entire body wakes up from the effects of the anesthesia. He immediately prescribed Ondansetron for the nausea.

Dr Eko did offer to admit me into DRMC for one night following the surgery which I declined. My history from waking up with projectile vomiting after general anesthesia prompted this offer. I was not experiencing  nausea when he asked me this question, so I told him I wanted to go home that night. The anesthesiologist, fully aware of my history had given me anti-nausea medication during the surgery………..here is the sad part,  I immediately thought of the insurance and would an overnight stay be covered! My surgery that took place on August 22, 2017 did require an overnight stay, however the insurance is fighting paying the bill! They are challenging it saying that an overnight stay was not necessary. I don’t understand how they could think that it was not necessary….I should send them the picture from my blog with the four drains!!!

Speaking of drains, this surgery did not require drains, just stitches with a transparent dressing across the chest. The dressing was removed at my first post op appointment on February 7th. I am a little swollen, I do have completely mobility of the arms.

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The pink restricted arm band is due to my having my Lymphnodes removed on my left side when I had my mastectomy. I could only have blood draws and or I.V.’s on my right side now….this did not hurt, my veins were hiding. It bruised up pretty ugly, also bruised up at the wrist in two areas where she attempted to start the I.V., she was successful in the end…………I actually felt really bad for her, and I do remember when we were chatting I asked her how long she has been a nurse, it was 30 something years. At least she was gentle.

Whats next? I can not exercise (Pilates) for 6 weeks! I could only walk, however I think I might have broken a toe! Yes, that’s right…..I walked into a chair slamming my right foot into it. The bruise in now surfacing, the toe hurts like no other, I am beyond upset about it. My husband offered to go on a walk with me as he knows I want to do some type of physical activity. I put my tennis on, oh and it hurt. We walked down the street, I was in pain but refused to give in….I wanted to go walking! It was painful!!!!! When we got home and I took my tennis shoe off my foot was throbing…..can not believe I did that to myself. Jack had no clue as to the pain level, because I did not say anything!

If you have read to this point I thank you so much for reading my blog

My next follow up appointment is next week on the 21st, we will be discussing the procedure to create a nipple on my nippleless breast! Stay tuned!

Pina

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#58 Silicone Gel Implants !

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The final phase of reconstruction has arrived, tomorrow morning I will have my surgery.  My expanders, which I nicknamed “cinder blocks” will be removed and replaced with Silicone Gel Implants! Some people think, awesome ….you get implants! I’m sure I have said this before in a previous blog…..reconstructive surgery and a breast augmentation are two total different surgeries. An augmentation is an “enhancement” of you breast. Where as all my natural breast tissue and nipples have been removed and the implants will be placed to form a breast. Later, I will have nipples tattooed.

In the picture above, I am at my primary doctors office, this picture was taken today. The reason I was at the doctors today is because I ended up with a sore on/in my nose. I was placed on an anti-viral med and had to come see the doctor today. If the sore did not scab then my primary doctor was going to recommend that my surgery be delayed! Good results…it scabbed….the surgery is on!

The operating room is reserved for four hours tomorrow. I arrive in the morning, with pre-op time and post-op time, it could be a seven hour day. It is an out-patient surgery so I will be coming home tomorrow.

The pictures below were taken this past week end. I am so glad that my husband and I were able to get together with my cousins and spouses. Words can not express how much these two dahlings ( I know that is spelled wrong, that is the pronunciation we use) mean. My cousins have been so supportive through out this journey, besides my husband and kids.

 

Notice the label on the wine bottle says “Group Therapy”….that was the best group session ever!!!!

Maholo for taking the time to read my blog, I need to go take a shower with “Hibicleanse”  to prep for tomorrow.

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57: Phase 2 of Reconstructive Surgery

The much anticipated appointment went well. Last week on January 12th my husband Jack went with me to my appointment at the Plastic Surgeons office. Dr. Eko examined me and was pleased with the progress thus far. Of course my husband being the jokester that he is participated in the examination, however when he pressed on my boob he had his finger on his phone and activated a “squeaky toy” sound! Oh my honey…..got to love that man….we all got a chuckle out of it and proceeded with the exam.

On my previous blog I mentioned how the non cancer breast (the right one) has dropped and the cancer side is standing tall in place. The left side has been irradiated….though the  tissue on the outside looks fine, underneath the shin the tissue is damaged from the radiation treatments. The right side is natural tissue without radiation damage, hence the reason for it dropping, getting nice and cozy in the excess tissue from the skin sparing mastectomy. The excess tissue will be removed along with the tissue expanders and the implants will be placed. Dr. Eko will even the girls out when he puts the implants in.  I remember from previous appointments he would stress that they will be “sisters, not twins”. He will use the same scar, however the scar will be made longer in order for him to remove the excess tissue. I am unclear on whether or not I will have drainage bulbs again, as I for got to ask…….he didn’t mention them during the exam so maybe not! ( we will see)

After Dr. Eko was finished with the examination and questions were answered, Patricia took me into the “photo room”, where she took a series of pictures of me for the surgery. Through this journey called “breast cancer” you definitely lose all modesty. I can not tell you how many times since August 2015, I have been asked to disrobe from the waist up! I must say that with all the medical professionals that have examined me or have just been along side an MD while I was being examined I have never felt uncomfortable, every caregiver has been so compassionate through out this journey….I am very fortunate to have the medical team that I currently have and my team on the island of Hawaii.

Phase 2 of Reconstructive Surgery  will be February 1st !!

Mahalo for reading my blog!

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55: Reconstructive Surgery

 

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Ok, This shit just got real! Warning graphic picture included in this blog

My surgery was one week ago today. It is kind of hard to describe what goes through your head as you are going to the hospital, walking in, registering, signing the anesthesia consent and being told the risk……reconstructive surgery is a choice, not a medical necessity. I decided I wanted this. As a licensed Mammogram Technologist, when doing a mammogram on a patient with implants, sometimes I wondered why they did it. Especially when they appeared to have adequate breast tissue in front of the implant. And what didn’t make sense, is when they had risk factors for breast cancer and got implants placed! I always thought I would never get implants, just wear good bras to bring the girls up some! LOL! My road to implant placement is different, it’s reconstructive surgery after breast cancer.

I will be forthright in sharing my experience as this has always been the purpose of my blog…..to share truthfully, to educate, to share my BC journey, so my apologies if anyone is offended by words typed or pictures posted.

I was wheeled out of pre-op into the operating room about 1250, with the surgery ending about 1830hrs, making surgery time just under six hours long. I was admitted to the hospital third floor at DRMC. I don’t remember much of the first three days after surgery, I think the pain pills had something to do with that! I do remember vomiting when I got to my room and feeling like my chest was going to burst open! Once we got home after my one night stay at DRMC, I do remember my eldest daughter (nurse Nikki)  making me eat regularly and giving me a slew of pills on a regular basis, draining and stripping my drains, documenting the fluid from each drain three times daily, showering me and dressing me.

My arms ached and the did not extend out much, initially after surgery.  I was so thankful that by the time I had my first bowel movement (4 days later) I was able to clean myself! I would have been mortified asking my husband or daughter to wipe my #@** ! My daughter was not too concerned that I had not pooped till then as I was passing gas regularly…..I realize this is one of the TMI moments! OK, enough of that subject.

My husband (quite the comedian)  says I have Tyrannosaurus Rex arms! He is having fun (at my expense) about my limited reach! (maybe I should have had him wipe my #@** ! However,  he has been quite helpful with draining my drains, showering and combing my hair etc. You don’t realize all the things that you can not do for yourself after a surgery. The plastic surgeon was clear when talking to my family that I could not do anything! So it has been a little hard on me know that I am more mobile. Simple things like tidying up the kitchen, or wiping a spot on the tile floor….I just have to look away, my family has been great doing everything.

How does it look?

The expanders are placed really high on the chest wall, literally just below the clavicle! I knew this so I was not freaked out when I saw them for the first time…..I am swollen, with time this will go done. I have the four drains coming out of my body, which I know some people get freaked out about. I have an appointment tomorrow Wednesday the 30th with the PS, two of the drains will come out. (ouch) Right now the scars are held together with a type of Dermabond (skin glue). For me too look at my chest wall right now I am a bit taken back on the appearance of them. But I know that this is not the end result, this journey will not be finished till the end of this year. So please keep that in mind when looking at the picture that I will include with this blog. I thank you for reading this blog to this point, as I realize it is a long blog.

I am literally a little nervous about the following picture, but if these pictures just helps one person out there debating weather of not to go through reconstructive surgery then  it was worth posting. And if you are on the fence of decision making please follow my blog to see the end result towards the end of this year, if that is too long to wait then research reconstructive surgery pictures……your Plastic Surgeon should be able to provide you with pictures as well.

I seem to have breezed through Chemo, Mastectomy and Rad TX, but honestly this shit just got real! I remember my husband telling me not to do reconstruction for him! My response: Oh, IF I have to go through this shit (meaning treatment) I’m going to get new ones out of it!………..So bring on the final phase………Reconstructive Surgery.

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The first pictures was taken on our 20th wedding anniversary trip to Maui…here we are in our 30th year of marriage, who would have thought we would be going thru this (notice I said “we”) because your diagnosis affects the whole family! I am blessed to have a very supportive one ……….#bumpintheroad

Thank you for reading……Pina

 

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54: Surgery Date Set

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It seems like just yesterday my breast cancer journey started. As a matter a fact this month marks two years since my diagnosis. It was August 18th that I had my biopsies that resulted with those dreadful words….”you have cancer”! Many of you have kept up with my journey via this blog, and I thank you for your messages and support.

Now that Chemotherapy, Left Breast Mastectomy and Radiation Treatment are behind me, it is now time for reconstruction! The decision to have a Right Breast prophylactic Mastectomy was an easy one for me as I am aware that I am high risk for a reoccurrence.   This past month (July) I had a little scare, I had a Breast MRI, and was called back for a second look on the right breast! I immediately thought “oh crap….here I go again”! Fortunately it was nothing and I was given to go ahead to proceed with the surgery! (sigh)

The surgery will happen on August 22nd, as of today I do not have a time. I will have two surgeons working on me. While the Breast Surgeon is performing the skin sparring mastectomy on the right side, the Plastic Surgeon will be placing an expander on the left side. When the PS is finished with the left side and the right side mastectomy is complete he will the place an expander on the right side. When I wake up, I will have four drains, two of which will be removed one week after surgery. The other two drains will be removed when fluid has subsided. After the scars have healed somewhat, the Plastic Surgeon will then start to fill (inflate) the expanders weekly till desired fullness has been reached. After about three months of healing and praying that my body does not reject the expanders, the expanders will be switched out with the implants. The goal is a C cup:)

People have to understand that this is Breast Reconstruction after treatment for cancer…..it is not an Augmentation…….huge deference! I am thankful for the medical team that I have, but most of all for my husband and family without them this journey would have been impossible,  I know that I am in good hands!!!

I always mention a little something about the picture I include with my blog. My husband  and I took a quick little getaway trip to Maui the last week of June. This sunset picture was taken using a sunset setting on my camera, it cracks me how people (tourist, visitors) leave the beach as soon as the sun disappears from the horizon. This pictures was taken approximately 20 minutes after the sun had set! Dependent on the clouds, there is usually a show of colors AFTER the sun has set….you just have to be patient….dinner can wait !

Mahalo for reading my blog

I just got a call from the hospital, they verified name and insurance etc…. they will call me the day before the surgery with the time of the surgery!

 

 

 

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52 & 53: Reconstruction

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I’ve never been one for selfies but I wanted to share how much my hair has grown and how curly it is! My hair BC (before cancer) was curly but not as curly as this…. I will take what I get as some women that were given Taxotere are not getting hair growth back.

June 20th marked one year since my last Radiation Treatment, I had a total of 29 rounds to the Left chest wall at The Pacific Cancer Institute on the island of Maui, from May 11th to June 20th. The plan all along has been to do delayed reconstruction. My team at PCI thoroughly explained skin care to me which I followed to a tee. The week after I started Radiation treatment I was referred to a physical therapist for John Barnes’ myofascial release technique massage. I saw my therapist twice weekly thru the month of July 2016.  I was also prescribed Mometasone Cream for me to “gently” apply post treatment. Hence, my skin flap is pliable, and not hardened.

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These pictures are of  just two types of reconstruction surgery known as Autologous of “Flap” Reconstruction. This is not the type of surgery I will have but the surgeon did go over the details of these two types of surgery. Reason being, IF my body rejects the Implant Reconstruction, this is “Plan B”. I will pray that my body does not reject the implants as these surgeries are more invasive.

 

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53:  A Show and Tell Moment

In February of this year at my first meeting with my Plastic Surgeon he gave me homework. He wanted me to research as to how many cc’s I wanted my implants to be. I told him on how before cancer my breast were not symmetrical, my left breast was larger than my right breast. Although this was not noticeable with clothes on, I was limited to style of bras and swimsuits because of this. So, I told him I wanted them to asymmetrical (same size)…..he smiled and said he can do that. My husband chimed in and asked the surgeon if he can place a set on my back so he would have something to hold on to when we slow danced!!!!! We burst into laughter….got to love my husbands sense of humor!!! ( I hope this doesn’t offend anyone)

So, how does one determine reconstruction size? You google it, Pinterest it, or simply ask a friend! I was at the Cancer Center talking to my good friend and fellow Mammography Technologist Extraordinaire. I mentioned my dilemma to her, before I know it Catherina and I are in the bathroom for A Show and Tell Moment. She was quite impressed with how pliable my skin sparring mastectomy is, as Mammographers we are oh too familiar with what a post radiated breast can look like. She showed me her implants and her size, decision made, I will shoot for a “C” cup! I also have to keep in mind and make it clear to my readers that mine is a “reconstruction, post mastectomy” and not a “breast augmentation”, so end result can vary…..I will have no nipples, they can get tattooed on later!

Exactly what is a Modified Radical Mastectomy, Skin Sparing? Basically my nipple was removed (I opted for non-nipple sparring) along with all the breast tissue. For those of you that have been following my blog from the beginning, you will recall that the Breast MRI that was done when I was first diagnosed found an additional cancer on my left breast,  4mm away from the fascia of the chest wall, straight back from the nipple at clock face 12:00. What is left behind is a deflated breast, all my breast skin was sparred minus the glandular tissue…….I have a deflated boob.

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I was in Redlands last week signing a release of medical records for my primary doctor in Palm Springs, he wants surgical notes of my Hysterectomy/Oophorectomy from 2009. (I sure am missing a lot of parts now!!). I stopped in at the Women’s Health Imaging Center to say hello to Renee, we chatted a bit about my blog amongst other things. I showed Renee this picture and how I wanted to share what a “skin sparring” mastectomy was. I took this the above picture after doing my exercises, I was cooling down, stretching. But I wanted to show more, I wanted to share the actual skin flap.

So what does a good friend do….offer to take photos for your blog!!! Renee and I quickly go into one of the mammography room, off comes my blouse, bra and Betty (that’s my prosthesis name) another Show and Tell Moment! Mahalo Renee for taking these pictures for me on a whim!

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Needless to say, I am ready for reconstruction. Today June 21st I went to the Plastic Surgeons office, the appointment went well. My husband Jack was with me. There was a moment of laughter when the topic of the prophylactic mastectomy was discussed, the surgeon asked if I was going to spare (keep) the right nipple? I said no, I don’t want to be like a one-eyed pirate when the nipple is hard! I closed one eye and said “arrrrggg”, the surgeon laughed……it was a funny moment. So what’s next? The  Breast Surgeon’s office will be contacting me to schedule labs, chest x-ray and an EKG. The surgery will then be scheduled. The Breast Surgeon Dr. Laura Lee will do the Right Prophylactic Mastectomy and the Plastic Surgeon will be doing the reconstruction placing the expanders. Post operative I will have four drains, two on each side. Two of them come off one week post-op. The other two come off after the fluid drainage has subsided. Expanders will be expanded every week until desired fullness is obtained. Then, three months later, like in December sometime the expanders will be switched out for the implants.

Holy smokes this is a long blog! If you read it to the end, many thank yous.

Mahalo, Pina

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13: Calm Before the Storm

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This week is fast coming to an end, I am so grateful for my job at Maui Diagnostic Imaging (MDI). My MDI family has been nothing but supportive since the “Unsub” was discovered. Everyone is respecting my privacy, but I do not mind talking to my coworkers about it, the “C” word is not voodoo! I love my job here on Maui, and I am sharing my story with some patients. I have to be careful though as I only have 15 minute time slots with patients. I have been working for MDI for 13 months now, so I am now to the point where I am doing mammograms on patients that I imaged last year. The patients are excited to see that I am still at MDI, they ask me if I have enjoyed my first year on Maui? What am I supposed to say? I share my story, I had one patient get emotional, she asked me if she could give me a hug? I never had someone ask for permission to hug me! When we hugged, she told me that I had good energy and that I would be fine.

I am looking forward to this weekend, I will paddle out Saturday morning with the “Pink Paddlers”. Not sure what I will do the rest of the weekend. Perhaps I will just go play tourist, and walk around the resorts and enjoy the beauty of Maui!

Next week will be a short work week for me as I go to Oahu for two days to meet the whole team that will be involved in my care. Not sure if Chemo will start next week, however I know it will start real soon, this is the “Calm Before the Storm.”

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6: Breast MRI

Walking into the Cancer Center for my appointment, they did not waste anytime. I was immediately taken to one of the patient rooms were nurse Debbie placed the IV needle in my arm for the contrast access. Dr. Lee spoke to me, she managed to get the authorization needed for the PET/CT. My PET/CT was scheduled for Monday. My daughter Monique said that everything was happening #kardashstyle ! She was impressed how efficient this Cancer Center worked. It pays to have an amazing team on your side.

I’m glad I reached out to my supervisor at MDI on Maui. Without hesitation she was okay with me extending my stay on the mainland for the PET/CT.

The Breast MRI was intense. You are laying face down with both breast thru this opening. Your face is on one of those face things like when you get a massage. But this was far from a massage! Your arms are up above your head, kind of like in a flying superman position. Patricia, the MRI technologist was super helpful in getting in the right position, making sure I was comfortable. The exam started, the noise sequences were loud. I had earplugs in my ears but it was still loud. There was different variations of scans, it’s dark, loud, I kept telling myself “I can do this”! The noises went on forever, and I thought this isn’t so bad it should be almost over! And the contrast wasn’t so bad either! Then, Patricia’s voice came on over the speaker, she said she was done with the first half, next half would be with the contrast! Oh my, I was only half way done! I got thru it, the MRI was done!

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5: Telling family

On our way to Perris I received a phone call from Dr. Lee, they got the authorization for the Breast MRI, I will have that done tomorrow. She told me, due to the contrast used for the exams that the Breast MRI and PET/CT could not be done on the same day. Asked if I would extend my stay allowing for that exam to be done on Monday pending authorization.

Driving to the city of Perris where my mother and family lives was nauseating. I was by mere coincidence that my eldest brother had flown in on this day to visit our sister. My other sister lives behind my mother, my brother Oscar waiting in her patio, I believe he thought our mom was napping. He knew of my positive results…..we hugged.

While all of this was going on with me, my sister had made the decision not to have treatment. Again, I had not been involved as I was dealing with my own issues.

I believe my mother was wondering why we were all there. To this day my mom did not know that I was in California. She was shocked to see us all walk in,  my mother and sister were sitting at the table. I did not waste time, my mom was a little upset that I had been in Cali, and that I have not been calling her on a regularly. I explained why I came to Cali, I told them I had been diagnosed with  Stage III Breast Cancer. My sister with Stage IV, cried…….I did not cry. I asked my sister to fight this with me, I brought her one of the brochures that was given to me……she said no.

My kids came prepared with food to BBQ. My other sister came home from work, before I know it other nieces and nephews are showing up. I was an unplanned little family gathering.

My sister who also has BRCA has had chronic pain all her life, she is tired of living in pain. She told me that she just wants to fall asleep and not wake up. I have to respect her wishes but deep down I wish she would fight this with me!

I am choosing to fight this full force! Cancer messed with the wrong person!!!!

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