Tag Archives: curlyhair

52 & 53: Reconstruction

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I’ve never been one for selfies but I wanted to share how much my hair has grown and how curly it is! My hair BC (before cancer) was curly but not as curly as this…. I will take what I get as some women that were given Taxotere are not getting hair growth back.

June 20th marked one year since my last Radiation Treatment, I had a total of 29 rounds to the Left chest wall at The Pacific Cancer Institute on the island of Maui, from May 11th to June 20th. The plan all along has been to do delayed reconstruction. My team at PCI thoroughly explained skin care to me which I followed to a tee. The week after I started Radiation treatment I was referred to a physical therapist for John Barnes’ myofascial release technique massage. I saw my therapist twice weekly thru the month of July 2016.  I was also prescribed Mometasone Cream for me to “gently” apply post treatment. Hence, my skin flap is pliable, and not hardened.

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These pictures are of  just two types of reconstruction surgery known as Autologous of “Flap” Reconstruction. This is not the type of surgery I will have but the surgeon did go over the details of these two types of surgery. Reason being, IF my body rejects the Implant Reconstruction, this is “Plan B”. I will pray that my body does not reject the implants as these surgeries are more invasive.

 

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53:  A Show and Tell Moment

In February of this year at my first meeting with my Plastic Surgeon he gave me homework. He wanted me to research as to how many cc’s I wanted my implants to be. I told him on how before cancer my breast were not symmetrical, my left breast was larger than my right breast. Although this was not noticeable with clothes on, I was limited to style of bras and swimsuits because of this. So, I told him I wanted them to asymmetrical (same size)…..he smiled and said he can do that. My husband chimed in and asked the surgeon if he can place a set on my back so he would have something to hold on to when we slow danced!!!!! We burst into laughter….got to love my husbands sense of humor!!! ( I hope this doesn’t offend anyone)

So, how does one determine reconstruction size? You google it, Pinterest it, or simply ask a friend! I was at the Cancer Center talking to my good friend and fellow Mammography Technologist Extraordinaire. I mentioned my dilemma to her, before I know it Catherina and I are in the bathroom for A Show and Tell Moment. She was quite impressed with how pliable my skin sparring mastectomy is, as Mammographers we are oh too familiar with what a post radiated breast can look like. She showed me her implants and her size, decision made, I will shoot for a “C” cup! I also have to keep in mind and make it clear to my readers that mine is a “reconstruction, post mastectomy” and not a “breast augmentation”, so end result can vary…..I will have no nipples, they can get tattooed on later!

Exactly what is a Modified Radical Mastectomy, Skin Sparing? Basically my nipple was removed (I opted for non-nipple sparring) along with all the breast tissue. For those of you that have been following my blog from the beginning, you will recall that the Breast MRI that was done when I was first diagnosed found an additional cancer on my left breast,  4mm away from the fascia of the chest wall, straight back from the nipple at clock face 12:00. What is left behind is a deflated breast, all my breast skin was sparred minus the glandular tissue…….I have a deflated boob.

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I was in Redlands last week signing a release of medical records for my primary doctor in Palm Springs, he wants surgical notes of my Hysterectomy/Oophorectomy from 2009. (I sure am missing a lot of parts now!!). I stopped in at the Women’s Health Imaging Center to say hello to Renee, we chatted a bit about my blog amongst other things. I showed Renee this picture and how I wanted to share what a “skin sparring” mastectomy was. I took this the above picture after doing my exercises, I was cooling down, stretching. But I wanted to show more, I wanted to share the actual skin flap.

So what does a good friend do….offer to take photos for your blog!!! Renee and I quickly go into one of the mammography room, off comes my blouse, bra and Betty (that’s my prosthesis name) another Show and Tell Moment! Mahalo Renee for taking these pictures for me on a whim!

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Needless to say, I am ready for reconstruction. Today June 21st I went to the Plastic Surgeons office, the appointment went well. My husband Jack was with me. There was a moment of laughter when the topic of the prophylactic mastectomy was discussed, the surgeon asked if I was going to spare (keep) the right nipple? I said no, I don’t want to be like a one-eyed pirate when the nipple is hard! I closed one eye and said “arrrrggg”, the surgeon laughed……it was a funny moment. So what’s next? The  Breast Surgeon’s office will be contacting me to schedule labs, chest x-ray and an EKG. The surgery will then be scheduled. The Breast Surgeon Dr. Laura Lee will do the Right Prophylactic Mastectomy and the Plastic Surgeon will be doing the reconstruction placing the expanders. Post operative I will have four drains, two on each side. Two of them come off one week post-op. The other two come off after the fluid drainage has subsided. Expanders will be expanded every week until desired fullness is obtained. Then, three months later, like in December sometime the expanders will be switched out for the implants.

Holy smokes this is a long blog! If you read it to the end, many thank yous.

Mahalo, Pina

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44:Leaving da Island

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It is hard to believe that one year has past already. This time last year I had just finished my 4th chemo treatment, which for me chemo number 4 thru 6 were the worst. With the love and support of my family I managed to get thru a very aggressive chemo cocktail that in the words of my Medical Oncologist was going to “knock me off my ass”, yes those were his words exactly! Bar none he wanted me to understand how important it was to receive all 6 treatments and not quit on him. ” For this to be successful you need all 6 treatments, this is going to knock you off your ass, you are going to want to quit, number 5 and 6 will be the worst” “Are you ready?” I was ready, and I continue to be ready for anything that is thrown my way!

With that being said, I am home early today from work to prepare for a follow-up Colonoscopy. In February 2015, six months before my Breast Cancer diagnosis I had my baseline Colonoscopy. The results came back that they found and removed Tubular Adenoma Polyps. Because those are the kind that can turn into a cancer, I get to repeat my exam. I was supposed to have it done in February, I was given a pre-op appointment in November 2015 for a Colonoscopy in February 2016! The problem was that I was too ill from chemo #4 to leave my home to keep the pre-op appointment. I then asked my primary doctor if I can just wait till I was thru with chemo, surgery and radiation treatment before revisiting the whole repeat colonoscopy exam! Not exactly my favorite exam, the prep is the worst. Hence my appointment is tomorrow morning.

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For those of you who know me personally, you know that my husband works all over the map. However since May of this year his job has kept him on the mainland. After the expense of staying on the island of Oahu, post mastectomy in March, I have been contemplating  going back to the mainland for the next phase of my surgery. However, now that my husband is indefinitely working near our home in California it is no longer practical for me to remain on paradise without my husband. My prophylactic mastectomy and reconstruction will be done in Palm Springs where I used to work. I will not be returning to Maui to work after being released.

I have given my employer notice, my last day working at MDI will sadly be on January 27th. I will keep my Oahu appointments in early January. January 11th, 12th, 13th I will have multiple appointments which include Chest CT and Bone Scan, Medical Oncologist and a follow-up Dr. Nakashizuka.

Today is the 75th anniversary of the bombing of Pearl Harbor by Japan. Living and working here on Maui, I have met people who remember that day, or have been told stories by their aunties and uncles of that “infamous day”.  Prayers to the people of Hawaii and descendants of people lost on December 7, 1941. Mahalo to all military personnel over the generations. Today also marks my fathers birthday, if he were alive he would have turned 88 today.

Mahalo for reading my blog

Pina

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17: On My Terms

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With aggressive Chemo Therapy comes hair loss. There are a lot of things happening to my body due to the treatment that are out of my control. I have always loved my curly hair, especially with all the new products for people with naturally curly hair. Living here on Maui I have learned to “embrace the curl” , I would no longer straighten my bangs because in no time at all the moisture in the air would curl them! Well I wanted my hair to come off on my terms, and not the side effects from the Chemo! I was told that it would start coming off as soon as 10-14 after the first infusion………today marked day ten! I know this is temporary and that eventually it will grow back. Right now having hair is the least of my priorities, I need to get through the next five treatments, I need to stay healthy, I need to stay strong, I need to fight!!!!!

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My hair will be sent to Locks of Love. Much Mahalo, Amanda for doing the honors, look forward to my head massages!!

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