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27: Post Mastectomy

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Aloha Friday! Happy April fools day 🙂

Sunday evening I prepared the clothes I would wear to the hospital the next day. I  had been NPO (without food/water) since Sunday 7pm. I had a lite dinner as instructed, which we enjoyed at Monkey Pod here in Ko Olina. We chose Monkey Pod because we were familiar with the menu, now was not the time to try something new.

Getting up at 345 am on Monday March 28th was easy for me. I did sleep well,  however I was anxious to get it done. We pulled up to the valet attendant in front of the Outpatient Surgery attached to Queens Medical Center. Yes “Outpatient”! Lots of people were surprised to learn that this surgery would be done as outpatient! We arrived at about 520am, I was asked to be there by 530am. I signed in, and was attended right away by registration. Shortly after registering I was taken back to the pre-op holding. Everyone who has had any type of surgery knows the drill, you change, vitals are taken, you verify name, date of birth numerous times and confirm what it is you are having done. I had a clear view of the dry erase board that had the surgery schedule on it. All my Rad-tech family knows what board I’m talking about. I was the first surgery scheduled for Dr. Nakashizuka. Patient names were not on the board, the list was separated by surgeon then listed by type of surgery. Each surgeon was color coded, my surgeons schedule  was written in green.

I was her first case, Left Modified Radical Mastectomy Skin Sparing…….715am. Followed by two Lumpectomies and one subcutaneous mediport placement. Today was an observed holiday so the schedule was lite! All vitals were taken, I was ready! The anesthesiologist came to talk to me, he asked if I had a problem waking up from general anesthesia? I let him know that I usually wake up vomiting. With that being said he would give me something for that.

Just before they took me back I was listening to my “Fight Song” by Rachel Platten……it was on repeat!!!!! They Gurney I was on was put side by side the operating table, the room was cold. My gown was untied in the back and I scooted over. I laid with both my arms spread out. I remember Dr. Nakazhizuka coming over and placing warm roll under my left shoulder. Music was playing in the room, but I don’t remember the type.

Surgery was done by 945am.

I woke up fine, with out they usual projectile vomiting. Shortly after I was given a dry piece of toast and a small cup of juice. I didn’t take long after consuming it that the nausea set in. My daughter Monique told me I’m a “clean thrower upper”, cause I managed to get it all in that small emesis basin they give you. I’m a pro at vomiting, after chemotherapy!

The picture above was taken before the 12:00 hour. I was discharged before noon. Yup, up and walking!!!!! Monique went over to the Women’s Health Center at Queens and purchased this robe for me. Patients who get a Lumpectomy vs. Mastectomy are taken from the Mammography department after their Needle Localization to the Out Patient Surgery Center via wheelchair. They are given this spa like robe to cover them up versus a blanket over them. When one of the Lumpectomy patients was wheeled over she noticed the robe and asked about it. She surprised me with one! I love it!

The past days have been spent relaxing here in this house we are renting till April 30th. My son found it thru VRBO. We are staying in the Ko Olina area of Oahu right down the road from Aulani Resort by Disney, my daughter Monique is in heaven……she loves all things Disney!!!

Right now I feel fine, shoulder feels a little numb but other than that I’m fine. I will continue to blog periodically throughout this month…….tired of typing.

Aloha Friday

 

 

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26: Happy Birthday to Me!

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Today I am 53 years young! Developing breast as a teenager I do not remember thinking I want to be large busted…..they just grew…..I had no choice! I have my  dads side of the family to thank for being well endowed, for the most part the Quezada women are large busted.

This summer will mark 17 years as a Mammographer, and when I started my career in Mammography, I never thought that one day I would be walking in the shoes of so many patients that have crossed my path. In three days I will be having my left breast removed. Patients this week when I would mention it, where in awe at how well I am handling the up coming surgery. I know I will be fine. I have a great doctor, and the love and support of my family and friends. I have had patients cry for me, I would console them and tell them not to cry for me that I would be fine. I have had patients say a quick prayer after their mammogram was done, and yesterday prayed with one of my co-workers. And I know that I have many people praying for me and wishing me well.

Today my  day will start early with breakfast at  Jax and Sean’s condo, followed by a massage and pedicure treatment at The Andaz Hotel. Will more then likely indulge with lunch at The Andaz as well! Throw in a little retail therapy and later in the evening my daughter Monique will arrive on island and we will have drinks and desert at one of my favorite restaurants”Monkey Pod”.

Dear Left Breast,

Thank for serving your purpose,  you nursed three healthy children. You’ve turned heads when I was younger and in my prime, well I’m not done living! In three days you will be removed from my body and that is ok. You do not define who I am as a women, and because you have decided to go rouge on me you must go!

So, nice try……………..you lose………………..I WIN !!!!!!!!!

H A P P Y          B I R T H D A Y          T O        M E !!!!!!!!!

 

 

 

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25:Surgery Date Set!

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I took the picture above last week end while enjoying some much needed beach chair therapy. The picture speaks for itself…..I love it.

Since my last appointment in Oahu, I have been busy working and getting settled into our condo that we are renting. Every day I feel better and better, my hair is starting to grow, Jacquelyn says a have “peach fuzz”! When working I get to talk to patients, a lot of patients remember me from doing their mammogram last year. I had one patient literally tear up when she saw me. I told her not to cry for me that I would be fine. She was so sweet, we hugged after the exam, and she said she would look forward to her next mammogram so she can see how I am doing! (that’s a first, “look forward to a mammogram”!)

March 9th:

I Had a consultation with the Radiation Oncologist here at The Pacific Cancer Institute on Maui. I will  be having radiation treatment. The Oncologist was very thorough in explaining the process and how it is done post-mastectomy. I will be having treatment Monday thru Friday for 6 weeks. Basically, Radiation treatment is the “clean up crew”. It will annihilate any residual cancer cells left behind. That’s what I want, NO CANCER CELLS LEFT BEHIND. I will be able to work thru this, just like I have been working thru my chemo treatments. Compared to chemo, this should be a breeze!

March 11th:

My appointment with my Medical Oncologist went well. Dr. Chong is really happy with my progress and how I am progressing. After he examined me, I was back in the chair for my Herceptin infusion. We flew out of Maui on the first flight which meant getting up at 4am. So of coarse I managed a little siesta during the infusion! Since it is only one bag it only takes about 1 hour, so it was a short nap!

After my appointment with Dr. Chong, I was off to see Dr. Nakashizuka. Again she examined me, the original tumor can no longer be palpated, however the lymph nodes still feel irregular. We talked about “the Plan”, she wanted to make sure that I was ok with the recommendation of delayed reconstruction vs. immediate. Here is what will happen:

  • Left Breast Modified Radical Mastectomy with skin sparring for delayed reconstruction, on Oahu, at Queens Medical Center. Will be required to stay on Oahu for 1 month post surgery…..the hunt is on for a place to stay post surgery!
  • Radiation Treatment to begin once healed from surgery. Treatment will be for 6 weeks Monday thru Friday, here on Maui at the Pacific Cancer Institute.
  • Herceptin infusions will continue every three weeks till September.
  • Appointment with the Pulmonary doctor on April 21st regarding the nodule on my right lower lobe. Lets pray that a lung resection is not necessary!
  • After my last Herceptin infusion, the prophylactic  mastectomy  on the contra lateral side will be done (Right Breast) with immediate reconstruction. Well it won’t be “immediate”…..its a process! That’s another blog.

Surgery date……………….March 28th …..On Good Friday March 25, I will be 53 years old, Birthdays after a cancer diagnosis will be special!

Aloha, everyone much Mahalo for taking the time to read my blog!

 

 

 

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24:Good News and Not so Good News

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Thursday February 11, 2016

One quick flight in the early morning and we are on Oahu. We arrived with plenty of time and I was early in checking into my 830am appt., by an hour. The CT of the lungs went fine. I was done with and without contrast. The Breast MRI was also done with and without contrast. For Breast MRI you are laying down, face down arms above your head with your face resting in donut (like a massage table). I was given button to hold in my hand to call for help if I needed it during  the exam. If this button is pressed after the contrast has been administered and the technologist has to stop the exam, then the exam would have to be rescheduled.

Minutes after the contrast was pushed through my I.V. my throat started to itch! I didn’t want to push the button and cancel this important test. My nose was stuffy, I was on the tail end of a head cold. My nose was just dripping, couldn’t do nothing about that. My eyes started to water and my throat was really itchy. I had to clear my throat a couple of times. I was trying really hard not to move. I was literally talking to myself, saying “I can do this, I can do this”! My throat didn’t close up, I was having to breathe through my mouth, because my nose was so stuffed up. I managed to complete the exam.

The technologist called over a radiologists, Dr. Kristen Nagata to examine me. A first responder nurse also came. I was told that normally they would take me over to the emergency department for observation, after a reaction to contrast. However, because I had an 11 am appointment with Dr. Nakashizuka (breast surgeon) they opted to keep me there and observe me. The nurse was honest in telling me that if they sent me to the ED, that I would not be discharged in time for my 11:00 appointment.

Dr.  Mari Nakashizuka; 11 am appointment:

Dr. Mari already had both the MRI and CT reports in her hand for this appointment. The “Good News” is that the original tumor in the left breast is gone!!!! Also, that area near the chest wall is also no longer there! The lymph nodes were a different story. Some lymph nodes appear slightly more prominent. Instead of doing a sentinel node biopsy during surgery she is now going to do lymph node dissection.

The CT, (sigh) as previously on the first blogs (blog #12) I mentioned a nodule on my lung, small little burger, only 5mm in size. Well today it measured 7mm, could be a difference in equipment, could be human error. This can not be ignored.

Surgery discussion:

The original plan was to do a bilateral Mastectomy with reconstruction. I have made the decision to have both my breast removed, this will still happen, just not as I had planned. Because of the Lymph nodes Radiation Treatment might be necessary. And because of the Lung nodule, it’s just another wrench in the bucket!! What Dr. Nakashizuka is recommending is a Left Mastectomy first, deal with the Lung nodule, get through the remainder of my Herceptin treatments, and have radiation treatment if necessary. Then do the Prophylactic Mastectomy on the right side with bilateral reconstruction. Dr. Mari feels I would opening myself up for the possibility of infection with my immune system being compromised with my continued treatment……………..I just want this over with!

Friday February 12, 2016

My appointment with my medical oncologist was at 1030 am. Dr. Chong went over the test results again with me. He made me feel better, by stressing that the main tumor in the left breast is gone! He wants to proceed with the breast surgery as soon as possible. He feels that I am strong enough for a bilateral mastectomy, however he is going to have me talk to a Radiation Oncologist. If radiation treatment is needed then putting off the reconstruction might be the best course.

So whats next?

Dr. Chong will contact the Thoracic doctor and have them look at my PET CT from 8-2015 and my CT from 2-2016 to determine if a Lung Dissection is needed. The office the Dr. Baker, Radiation Oncology will be calling me to set up an appointment. All of this should happen before my next appoint with Dr. Chong and Dr. Nakashizuka which is set for  Friday March 11th.

Not exactly the news I was hoping to blog about, but it is what it is. I need to stay on course and stay positive that all will be okay. This is just another bump in the road, or lung!

Mahalo for reading, and my apologies to family that I didn’t get a chance to talk to prior to posting this. (you know who you are) Thank you for the well wishes and prayers.

Much Aloha Pina

 

 

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23: Chemo #6

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January 17, 2016

Chemo#6 was on January 8th. I not only had Jacquelyn and my husband with me, my daughter Monique was also there. The picture above was taken just before the treatment began. Monique got to talking to the other patients in the infusion room and before I knew it they were ordering pizza for everyone, party in the infusion room!!!! No pizza for me however, soon after my infusion starts I get sleepy and I take my chemo siesta!

Today is January 17th, I am nine days post chemo and still not feeling well. I did work half a day on Wednesday with full days on Thursday and Friday. The saving grace was that MDI scheduled me a lite schedule. In case your wondering, these patients were scheduled with my knowledge. Previously I felt better after days 3 and 4 post chemo. So, I did not want to call off and have them rescheduled. I know that all I had to do was tell my manager that I couldn’t work and she would have had the schedulers start rescheduling patients, no questions asked. Maui Diagnostic Imaging is a great company to work for.

Whats next?

On February 11 and 12 I will be back on Oahu. I will have my Breast MRI, CT and my second meeting with the surgeon, Dr. Mari Nakashizuka. Those appointments will be on the 11th. On Friday I will have my Herceptin infusion. My chemo therapy has consisted on of Taxotere, Carboplatin, Herceptin and Perjeta. I am done with TC and P however the Herceptin will continue every three weeks for a year! What I am not clear on is if it one year from now, or one year from when I started the treatment? Either way I will know more about the timeline for my surgery soon!

Since I moved to Maui, we have been renting a beautiful home here on Laumaewa Loop. The owner has had the house on the market since October of 2015. He felt really bad the day he told us they had to sell the house, especially because I had just started my treatment. I completely understand their decision to sell. Fortunately for us we were able to be in this home thru the holiday season. The house has not sold yet, I told the owner that after the New Year we would actively try and find a place to live. And we did, we found a condo to rent and will be moving in February. Jacquelyn and her boyfriend Sean found a condo in the same complex as well. Excited to have my own little place with no stairs! The stairs in this home have been challenging, especially on my bad days. The goal was to move before my surgery!

My husband just left to the airport to pick up two very special people. My two cousins Mary and Carmen dahling just landed (11:40am)!! Super excited to have them here with me this week!!!!

Going to sign off now, I hope everyone is well. Hug and love each other, life is short never take it for granted! Much Mahalo for the love and support!

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22: Good bye 2015

 

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To say that Chemo number five was easy-breezy would be a complete lie……it has been rough. My husband said, he has never seen me so ill. I remember a patient told me that number five and six would be the worst and not to give up……well I am NOT giving up!!! Having all my family together here for Christmas was the best gift of all. I was too ill for us to venture out on Christmas day.  When we do venture out, I am very select as to where we go. I can not be far from a bathroom…….I know where all the public bathrooms are now….especially the clean ones!!!

The picture above was from our last  Maui sunset for 2015! Later this evening we will all be going on a boat with the Pacific Whale Foundation to watch the fireworks and bring in the New Year! Unfortunately I will not be indulging in adult beverages, but I will be with my family.

The year 2015 will forever be the year that rocked my world. Never did I ever imagine that I would be diagnosed and  battling Stage 3 Breast Cancer. As a Licensed Mammographer one would think that my cancer would have been caught at an earlier stage. That would have been the case if my breast were completely “fatty replaced”. However since my breast are extremely “dense”, my cancer went undetected. Because I am familiar with the normal lumps and bumps of my own breast, I felt it. I have already written about this in previous blogs, but as we leave 2015,  I would like to reiterate the importance of Breast Self Exams (BSE) …….ladies be familiar with the normal lumps and bumps of your own breast. Your doctor only exams you once a year. And, for those of us with dense breast, we should be inquiring about a routine ultrasound for dense breast.

It is only 8:15pm here on Maui. Families are celebrating early, those noise from the fireworks is so loud……they are legal here! I must get going to get ready for the evening. I want to wish everyone a Happy New Year! Thank you for all the love and support you have showed me. I appreciate all the good vibes, prayers and well wishes from everyone. I am  truly blessed to have all of you in my life. Tomorrow will be the start of a New Year, a year of recovery, healing and new beginnings…..be safe!

 

 

 

 

 

 

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21: Chemo #5!!!

 

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Tomorrow I fly to Oahu for Chemo #5!!!! It feels like just this Monday I was feeling much better from the effects of chemo #4! This last round was really rough. The nausea subsided, however the stomach bowel issues continued. My bones aches and I get really tired. I just ignore the ache and work through it, working through this has been really good in keeping me busy and just having something to do instead of being on medical leave. My Oncologist wanted to put me out on Medical leave, but I opted to work through the Chemotherapy  instead. Really thankful to MDI (My employer) that they have worked with me with my limited availability.

Patients have been so sweet, I get lots of hugs from them. Since I have been working here for over one year, I am doing mammograms on patients that I attended in 2014. They recognize me and ask what happened, I share my story with them. I get lots of hugs, some patients have asked me if they can say a prayer with me before the leave. I have had patients tell me that I have a positive aura and they feel that I will be just fine. I get lots of compliments on my complexion, and the way I use scarves to wrap my head. And then of coarse there is always some people that are not so nice. I have been asked if I am Muslim twice! One patient asked me if I was Middle Eastern? I have been asked if I was Jewish?  I am to the point where my response is “no, I have Cancer and I have no hair, that is why I have this on my head!” One on the patients that asked me if I was Muslim, asked that in a very harsh tone in here voice. I wonder if I would have said “yes”…..would she of let me do her mammogram? Those questions are just not appropriate! This past week and a half at work has been interesting. I don’ let those people get to me, they are a small percentage compared to all the well wishers! Several patients tell me that they will look forward to seeing me for next years mammogram! Yay, they are looking forward to next years mammogram!!!!!! Mission accomplished!

I am not looking forward to the next few days as the effects of Chemo #5 set in. However I am looking forward to having my whole family together here on Maui for Christmas!!! I know that the weather in southern California has been cold, today here in Kihei the temperature reached 91 degrees!!!! Warmest Aloha to all reading this, and please feel free to share my blog if you like.

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20: Chemo #4

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With Thanksgiving on Thursday my Chemo treatment was on Friday instead of Thursday. Which of coarse meant that I was able to enjoy dinner. My cousin was visiting me from San Diego, so she organized a Thanksgiving dinner on Sunday the 22nd. On Thanksgiving I prepared an Italian dinner, it was delisioso!!!(Spanish for delicious)

Jack, Jacquelyn and myself flew from Maui to Oahu early Friday morning, it’s a mere 25 minute flight! We have a routine, once we get to the Hospital we go directly to the cafeteria for breakfast, which is pretty delish and inexpensive! Then we go to Dr. Chong’s office for my 10:15 check in time. With in minutes I am taken back. You get examined by the doctor before your treatment. My labs, vitals were good he told me that my heart beat, beats like one of an athlete! (thank you Pilates and walking) We talked about what happens after the Chemo treatments are finished and he gave me slip for an Echocardiogram. One of the side effects of the Perjeta affects your heart. I had an Echocardiogram prior to starting the Chemo, now that I am half way through my treatment, time to repeat that test. My Chemo lounge chair is waiting for me with my pole for all my bags that will be flowing through my body. The nurse, using a sterile technique cleans my medi-port area, flushes it first then starts the drips…..one by one. I am soon off to what I call my “chemo siesta” (nap). When I wake up I am almost done with my treatment, it is approaching 4 pm. Before leaving the nurse attaches that self injector to my tummy, that in 27 hrs will inject Neulasta medication into me.

Today is Saturday, right now I feel a little nauseous and stating to feel tired. Tomorrow the full side effects will kick in…..I am ready. I have two me treatments. My next treatment is on Friday the 18th, which means I will be good for when my two eldest kids come to visit for Christmas! Can’t wait to see them!

Thank you for all the well wishes via text, FB etc..Hope everyone had a wonderful Thanksgiving!

Thankful for

Family, friends, all my past co-workers and current ones. The company I work for MDI, for accomodating my availability through out my journey. The Doctors and staff of Dr. Chongs office. And all the staff at the Palm Springs Comprehensive Cancer Center! And for social media that allows us to stay connected!!!

 

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18: Chemo #2,

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The week after taking my hair, on my terms I was able to work. I got lots of hugs from patients that recognized me from last year, some would just ask. I am more than happy to share my story, especially is if patients will realize how important Breast Self Exam are. I can’t tell how many women will tell me that they don’t know how to do them…..kills me! I had one patient tell me that she wasn’t sure why I obviously did not have hair, but she said that the way I wore the scarf on my head looked really beautiful, she told me I was beautiful……….made me a little emotional.

You don’t realize how much your fur (hair) keeps you warm at night! I wear a beanie to bed. The rest of my hair is falling, I have lots of little hairs on the bar soap when I shower. Oh, it was really weird showering the first time after buzzing it. I also see that some of my eyelashes are coming off! They somehow always end up in my eye, so irritating. This  past weekend Jax and I went to the beach for some much needed beach chair therapy…..felt good to get in the ocean!

Today, October 15th , Jax and I flew to Oahu. I had my appointment with the Genetic Counselor. Received the wonderful news that I am negative for the mutated gene! My girls will not need to be tested. However, with having a primary risk factor, meaning me (mother) they have a 20% increase risk factor for getting Breast Cancer.

My Chemo treatment today went well. The Oncology Nurse offered me an injection of lidocaine on the port site before placing the catheter. I declined, yea, not sure that was the right choice……it hurt! But it was fast, just felt like a shot, and so it started. One of the bags is a Benadryl, which helps with the side effects of the Taxotere drug. I am getting TCH + Pertuzumab. That is Taxotere, Carboplatin, Herceptin, plus Perjeta (Pertuzumab) I got sleepy due to the Benedryl, I took a book for continuing education, when I kept reading the same question over and over I new it was time for my “chemo-siesta”!

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The above picture is a device that was placed on my tummy. It’s a little machine that tomorrow will inject a medication called Neulasta. Neulasta helps reduce risk of infection by boosting my white blood cell count to strengthen my immune system. One thing for sure is I can not be around sick people!!!!

It is 10:46 pm here on Maui, but I just wanted to share today with you as I know a lot of you want to stay informed. I also want to say that I truly appreciate all the text, private messages, voice mails  etc. I do read/listen to each and every message. I had one friend send me a religious inspirational message that I saved and read it frequently. I am working tomorrow, I Have a light schedule done intentionally for me……MDI is really accommodating my work schedule needs, words can’t explain how much I appreciate them.

Warmest Aloha Pina (josefina)

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17: On My Terms

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With aggressive Chemo Therapy comes hair loss. There are a lot of things happening to my body due to the treatment that are out of my control. I have always loved my curly hair, especially with all the new products for people with naturally curly hair. Living here on Maui I have learned to “embrace the curl” , I would no longer straighten my bangs because in no time at all the moisture in the air would curl them! Well I wanted my hair to come off on my terms, and not the side effects from the Chemo! I was told that it would start coming off as soon as 10-14 after the first infusion………today marked day ten! I know this is temporary and that eventually it will grow back. Right now having hair is the least of my priorities, I need to get through the next five treatments, I need to stay healthy, I need to stay strong, I need to fight!!!!!

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My hair will be sent to Locks of Love. Much Mahalo, Amanda for doing the honors, look forward to my head massages!!

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