Tag Archives: breastcancerjouney

37:Coming up on One Year!

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Since my last blog  a lot has happened, my July infusion of Herceptin was on the 22nd. The day before that on Thursday the 21st I had another Echocardiogram, and a baseline Bone Density. The Echocardiogram (this was my fourth one) I had one before chemo started last year in September, the second was performed in November, the third was done one month after my last chemo and now this one in July. The purpose? The chemo treatment I was given effects cardiac output, also one of the side effects of Herceptin effects the heart. So far so good!!!! The heart is strong!!! I started to take Anastrozole (Arimidex) in February. One of the side effects of Arimidex is bone loss, hence the necessity for a baseline Bone Density. Happy to report I am in the “green”…..fellow technologists will know what the means!!! Normal! As of right now, my bone density is “normal”!….I would like to keep it that way.

I have also been going to Physical Therapy twice a week for Myofascial  Release Massage (covered by insurance) which has been wonderful!!! I have been going to Kihei Physical Therapy with Christine Lachance DPT. MSPT. CLT., she specializes in Cancer patients.

I am back in the ocean! The first week-end in August I paddled out with the Maui Canoe Club, it was beautiful! (With the exception that they were burning cane that Saturday morning and there was a huge brown cloud over the island). None the less, it was beautiful to be out on the water. Once I got back to the condo after the morning paddle out I turned my tv on and started to get sucked into watching the Olympics which were on day 2! I quickly turned the tv off, packed some fruit, grabbed some water, towel, chair, book and to the beach I went!!!! I was at the beach from 10 am till 4pm, so refreshing to be in the water again!

This past Friday, August 8th I was back in Oahu for Herceptin. I had a great visit with my Oncologist Dr. Chong, we talked about the past years treatments and how well I did. He commended me for having that fighting spirit and mentality to fight and stay positive (attitude toward treatment is half the battle) We talked about what is yet to come.

Saturday morning (13th) I had every intention on paddling out, however my stomach said overwise. I have been fortunate that the Herceptin side effects have not been that bad for me, however Saturday morning was plagued with many trips to the bathroom, I didn’t think going paddling was in the cards for me.

My next Herceptin treatment will be my last one!!!!! YES!!!! My last one!!!!!! Can I get an “AMEN” My next trip to Oahu is on September 2nd, after this appointment with Dr. Chong I will see him again in January 2017. It was supposed to be in three months, but that would mean coming in December. So, he pushed the follow-up out to January 2017, also because and that time he would like for me to have an appointment with the breast surgeon Dr. Mari Nakashizuka and the plastic surgeon, Dr. Vincent Nip. So, come January 2017 we will start the ball rolling for the next step……..prophylactic mastectomy and reconstruction!

The picture included with this blog was taken with a feature on my camera called “color selection”. I selected light purple and i pulled that color out with everything else black and white. This next one I selected pink hues!

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Mahalo, thank you for reading and Mahalo for all the patients of MDI that have inquired about me and for all the prayers and well wishes.

 

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36: Happy Birthday Bert

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For those of you that have been following my blog from the beginning, you know that about 5 weeks before my Stage lll Breast Cancer diagnosis last year, that one of my sisters was diagnosed with Stage lV.  My sister did not choose to do treatment, for personal reasons that I personally can not comprehend,  she chose hospice instead. I have and continue to respect her decision. I would also like to mention that I am talking about my sister with her permission to do so.

The doctors told my sister that without treatment she would not have long and we thought she would only live till October 2015. The holidays came and went, and now one year has passed and my sister is still with us. Most recently her condition has declined. Nurse visits from hospice have increased, her pain meds have also increased.

The past year I have had the fight of my life, I started and finished the 6 sounds of the very aggressive Chemotherapy regiment for Stage lll and lV breast cancer. I had my modified mastectomy (skin sparring for delayed reconstruction), I started and finished 29 sessions of radiation treatment. I have faithfully stayed out of direct sunlight and the ocean (really hard to do on Maui). All the while, working through this with exception for medical leave after my surgery. I have been focused and determined…….then I think of my sister. Yes, sometimes it angers me that she did not choose to fight. I run through my head “is there something I could have done to convince my sister to do treatment”? I know  from talking about this at a support group I attend that the answer is no. My sisters decision was made up, nothing we could have done would change her mind.

I flew to California for the 4th of July weekend. My cousins gave one of my aunties a seventies themed birthday party. (can you guess how old she turned) I took the opportunity that I was feeling well enough to travel and surprised the family!

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Visiting with my sister Bert, we talked about our mastectomy surgeries, she shared with me about her condition, details that I will keep private. We talked about hospice, my sister is in pain….we talked about the pain meds that she is given and the need for the meds to be increased to keep her comfortable. I asked her if she regretted her decision not to do treatment, she said no.

I feel for my mom, that she will have to endure the passing of one of her children before her. I feel for my niece, that she is having to care for her dying mother, because her mother wants to die. What do you tell someone who wants to die? Bert cried as she told me she just doesn’t want to wake up, and that it is taking so long to happen. She said, she can’t imagine living in this pain much longer!!! So, what do you say? “I will pray that you pass away soon”? ….my sister shouldn’t be in pain….but I think she is afraid of the stronger pain meds that she is in need of now. I told her that the purpose of hospice is to keep you comfortable.

Tomorrow is my sister’s birthday! Happy Birthday BERT!!! I wish you a Happy Happy Birthday free of pain….and though it pains me to say this I pray that you are at peace with your decision and that soon you will be FREE. God Bless……..Love Pina

 

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35: Twenty-eight of Twenty-nine!!!

Ever since May 11th I have been going to The Pacific Cancer Institute here on Maui. My employer Maui Diagnostic Imaging has been allowing me to work until 2:30 Monday thru Friday so that I can go for my Radiation Treatment at 3:15 everyday. When I arrive, the team of therapist immediately call me back, that blue thing you see on that picture (partially covered with a pillow case) is the mold of my upper body. I place my head, shoulders, arm in there, it positions me in the exact same position daily. Sometimes I close my eyes, other times I watch the beam was it moves around me. My mind wonders at times, I think about the past year and the coming year or just listen to the music that they playing.  The session is really fast, I am usually walking out of there by 3:3ish. I drive home and prepare for the next day…..one day at a time.

The side effect from the Radiation treatment is primarily fatigue. Also, the skin changes of the area being irradiated. Prior to starting my sessions, the Cancer Centers Nurse Practitioner, Anna sat with me and went over skin care. A cream was prescribed to me, for me to gently apply to the area being irradiated after each session. I have only been using dove sensitive skin soap (as recommended). The Cancer Center is also having me see a Physical Therapist for Myofascial Release massage. I go to Kihei Physical Therapy twice a week. My therapist Christine specializes in working with cancer patients. I have appointments scheduled twice weekly till mid July.

I am really grateful that I have been able to work thru radiation, yes I am tired but I am glad that I have been able to work. Last week I called off on Monday, when my alarm went off to get up I was beyond exhausted like nothing I have ever felt before. I knew that I would not be able to drive myself to work, much less keep up with the work flow of the day. I put my phone on airplane mode and slept till 10:30! However I still had to drive myself to my radiation appointment later that day!

Friday the 17th consisted of flying to Oahu in the morning, straight to Queens Medical Center. Dr Chong, again really impressed on how well I am doing. I went to the infusion area for my Herceptin drip. Next month I will be having another Echo Cardiogram and  a baseline Bone Density along with my Herceptin. Purpose of the Echo is because one of the side effects of the chemo I was given was damage to the heart valve. So far so good! I am taking Arimidex, which helps fight breast cancer by lowering the amount of the hormone estrogen in the body. With this med comes a slew of side effects one affecting bone density, hence a baseline Dexa (bone density) scan.

We made it back to the airport for our flight back to Maui. I made a mistake when selecting the flight times. I thought we would be landing back on Maui at 244pm, when actually our flight didn’t leave Oahu till 244pm landing on Maui at 326pm!!!! I immediately called the direct line I was given to the therapist area at the Pacific Cancer Center on Maui. Tim called me with in minutes of me leaving a voicemail and told me not to worry that he would wait for me!!!! When we were done he says “Monday will be you last treatment” I questioned him because I thought that June 29th was my last treatment. Tim reminded me that, that was the date if a “boost” was necessary. Since my mastectomy pathology came back negative for aggressive cancer cells no boost was necessary!  He said “this is Twenty-eight of Twenty-nine,  Monday is your last day my dear”…..made my day!!!!!

Mahalo for reading my blog!

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Whoever thought to do this to the ceiling was genius!!!!

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34: Memorial Day

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While most people here on Maui probably spent the day at the beach, my daughter and I went to a small town in upcountry called Makawao. We stopped at the Veterans Cemetery, where every single plot was adorned with a flag and a floral lei. Thousands of plumeria flowers were scattered throughout, with the slight breeze in the air the fragrant flowers were obvious. Because of my ongoing radiation treatment, a day at the beach was not a good choice for me….and besides, the beaches were really crowded. And it’s not like a can get in the water yet….August can’t come fast enough !!

On May 20th, I had my Herceptin infusion, along with a short term follow-up CT of my lungs for that lesion on my right lower lobe. The day was jam-packed, we flew to Oahu, went straight to Queens Medical Center. The radiology department was right on time with my scheduled appointment, after which we headed to Dr. Chongs for my appointment with him. As soon as the infusion was done we headed back to the airport. I needed to be back on Maui for my 3:15 radiation treatment appointment. The day went smooth, the TSA line had me worried there for a bit but we made it!

I received the results of the CT, “stable right lower lobe pulmonary nodule”…HAPPY DANCE!!!!! So what’s next? The nodule has not grown since the last CT done in February, it remained 7mm in size. Back in August 2015, when it was discovered it was 5mm, now the plan is to repeat with another CT in six months to confirm its stability.

Radiation Treatment: So far I have had 13 treatments. My last scheduled treatment is June 29th. I can do this!!!! After chemo this is a breeze!!! At work I have many patients wishing me well. I had one patient that we were doing a six month follow-up from her November 2015 mammogram. She told me she was hoping that she would get me, as she wanted to see how I was doing. Patients will sometimes ask me if they can hug me, this is the rewarding part of my job….hugs are good. My next infusion is June 17th.

My husband bought me a new camera for our wedding anniversary in April. He said that since I can’t get in the water or paddle out with the canoe club I can take photos, I am having fun with my new camera, it’s a Nikon coolpix900. One of the coolest features of this beauty is that it has its own wi-fi. I have an app on my iPhone , I can transfer the picture from the camera to my phone anywhere! Oh my the possibilities…..83 optical zoom!!

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I took this picture when we were leaving the cemetery today. I was probably a good city block away from this horse!!!!

Mahalo for reading my blog, have an amazing day!!!!……..life is good 🙂

 

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33: Back to Work

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Last week I started my Radiation treatment. As mentioned previously my treatment will consist of  Monday thru Friday for six weeks. If you notice in this picture, the ceiling is made to look like you are looking up at the sky. It is actually quite mesmerizing. Walking into this room the “True Beam” can look really intimidating. The therapist that work under Dr. Baker are truly compassionate and make my feel comfortable. My appointment time slot for this journey is 3:15, when I arrive they are literally ready for me, I am in and out. That mold of my upper body that was made at the simulation appointment is on the table and those two little tattoos enable the therapist to target the area that was configured by the Medical Oncologist.

I have been on medical leave since my surgery March 28th. Tomorrow I go back to work, again,  I am super grateful to Maui Diagnostic Imaging for being flexible with me. My work schedule will permit me to go daily for my radiation treatments. I continue to also get my Herceptin infusions in Oahu. On Tuesday I will get my monthly blood draw to check my blood count levels prior to the infusion. On Friday May 20th, I will have a follow-up Lung CT, followed by my Herceptin infusion, then I need to high tail it to the airport to make my flight to be back for my 3:15 RadTx appointment……yikes……wish me well!!!!

It is going on 10pm, I must somehow try to fall asleep so I can get up early. I have been sleeping in, need to get used to waking up early again. I need to do some physical therapy on my arm before going to work daily, my days will be very structured that’s for sure!!!

 

Mahalo for reading my blog

Aloha, Pina

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32: Radiation Therapy

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We flew back to Maui one week ago today on April 30th. The picture above is a picture of Sugar Beach in North Kihei, it’s a really nice long walk!!! On Monday I had my simulation appointment with the Radiation Oncology department here at the Pacific Cancer Institute on Maui. I got to meet Dr. Baker (he was off island the last time I was there). Dr. Baker talked with us (my husband and I) and explained again the importance of radiation treatment after chemo for me. It is important to know that not everyone with breast cancer gets both chemo and radiation…..each case is different.

The simulation CT was interesting. My upper body was positioned on a deflated pillow that contained micro beads. These micro beads when heated up stiffened and hardened, forming a mold of my upper body including my head. I laid down on it with my right arm down and my left arm up with my elbow bent. The mold was created, this will be used for all my radiation therapy appointments. The purpose of the simulation CT is so that the Radiation Oncologist can determine the radiation field and create a treatment plan. That is the simplest explanation I can think of without getting too technical!!!

The Radiation Therapist (Radiologic Technologist with a specialty license in Radiation Therapy) was very kind. Part of the process for the simulation appointment is you get marked (tattoo)  where the laser beam is to be positioned for you treatments. I joked with Max when he was about to tattoo me that this was his “side hustle”! I also let him know that these were my first tattoos, we laughed because seriously they are two very small dots!!!

My treatment will be six weeks long, Monday thru Friday my first treatment is Wednesday May 11th!! I am off of work for one more week, I go back on the 16th of this month. Just like with chemo I will work thru the radiation therapy as well. Maui Diagnostic Imaging will work with my appointments for the next six weeks permitting me to work thru this next chapter of my treatment.

Time to sign off, much Mahalo for reading my blog. It is 9:11 am, I need to do my physical therapy and pick up two very special people that will be here with me for the next seven days!!!

Aloha Pina

 

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31: Appointments

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The past couple of weeks have been riddled with appointments. I can see why I was required to stay on this island after my surgery. I had an appointment with Honolulu Orthopedics to be measured for a compression sleeve. I will be required to wear the sleeve when I fly and when going on long walks to help avoid Lymphedema. My compression sleeve should arrive sometime this week. I have also continued to go to my physical therapy appointments (twice weekly) and I do my P.T. three times daily when our schedules permit. My range of motion has improved immensely, my therapist is really impressed with my progress. I have the advantage of  knowing first hand what happens when you do not do the recommended exercises.

Surgeon appointment:

Dr. Nakashizuka was really happy with my progress. The mastectomy site is healing just fine. I have avoided fluid build up (Seroma), probably due to my Physical Therapist. She does a Lymphatic Massage, and has taught me how to do it, which I do nightly. I went to this appointment with three questions in mind.

1: When can I drive?

2: When can I get in the ocean?

3: When would she recommend the Profolactic  Mastectomy (Right breast) and the    reconstruction?

Driving? I am cleared to drive because I am not taking any of the pain meds that were prescribed. Ocean?……..wasn’t expecting this answer! She would prefer I stay out of the ocean at least till July! When we talked about me paddling out with the canoe club she would prefer that I wait till at least September to do that! And as far as my next surgery, not till this time next year! Because I will still be going through Radiation Therapy, and continue to have my Herceptin infusions every three weeks till September, she would prefer that I wait six months after I am completely done with my treatments before going thru with the right mastectomy and the reconstruction of both breast. It is what it is, I can be patient. I just have to tell myself that “this time next year, I will be all done with this”.

Pulmonogist appointment:

My appointment with Dr. Roger Yim, went well. The lesion on the right lower lobe of the lung that showed up in my initial scan from August 2015, which measured 5mm. Then again, post chemo, only now measuring 7mm……..did not excite him! I told him I was excited the he was not excited!…..we laughed. He went over my complete medical history with me and told me his plan for me. He ordered another CT, which will be done when I have my May infusion. This will make it three months from the one done in February. So long as the lesion has not increased in size, then he will ask for another CT six months from May. Just need to pray that this lesion doesn’t grow!!! If it does grow……that’s another blog!

Our time here on Oahu is coming to an end. This past week my son made it out here to visit. We went to Pearl Harbor, however due to the wind we could not go visit the USS Arizona Memorial. The featured picture was taken at the Ala Moana Center, which is the mall of all malls!! It is the largest open concept mall in the world!!!   A true shoppers paradise. I features many ponds and sitting areas to regroup and rest. I was actually focusing on the Lily Pad flower not realizing that there was Koi fish in the water!! We also ventured to the North Shore again, this island has so many beautiful beaches, I would love to come back when I can actually get in the water!! Next week will be our final week here, Friday I will get another Herceptin infusion. Get to fly back to Maui on Saturday April 30th!!

Aloha, much mahalo for reading!!!

 

 

 

 

 

 

 

 

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30: “Lopsided”

Image-1Queens Medical Center gave me a post surgical camisole with poly-fil non-weighted breast forms. Although this was truly appreciated it just didn’t work for me. Prior to surgery I did purchase a couple of front closer bras that were soft and I thought would work well. However without having a weighted prostheses the absence of my left breast was obvious. I tried adjusting the size of the non weighted form to properly fill the left side of my bra. Yes, I was able to pull some of the poly-fil out and adjust the size of the form, it was actually quite comical! I put on one of the bras that I purchased prior to surgery and placed the adjusted breast form in the cup on the mastectomy side. Monique and I went to my physical therapy appointment, followed by a trip to TJMaxx. I found a couple of button front tops to try on, went to the dressing room, looked at myself and laughed!!!! I was Lopsided !!! Because the poly-fil breast form is non-weighted, the weight of my right breast was making the left side of my bra ride up! Hilarious!!!!!!

Monique was quick to call my surgeon to inquire about a proper prostheses. After many phone calls we found out that I could get fitted and measured for a prosthesis at Queens. I would have to pay out-of-pocket and bill my insurance on my own. The prostheses could cost as much as $400.00, not including the cost of the pocketed bras…..yikes!!! Well, it seems non practical to put out that kind of cash for a prostheses that I would only use for a short time till my reconstruction surgery was done.

Yesterday, Friday April 8th I had my Herceptin infusion after my appointment with my Medical Oncologist Dr. Chong. Again he was over the moon excited about my post surgery pathology results. He went on to tell me that has only had six patients in which the Chemo coctail which I received was used. All six patients had no sign of aggresive cancer cells in their pathology. With two patients having non aggresive cancer cells (insitu).  I am one of the two patients, which is why Radiation Treatment is important for me to have. The amazing part is, that I no longer have the aggresive cancer cells in my breast tissue or my lymph nodes!!!!!!!……can I get an AMEN!!!! The Herceptin infusion went well. My oncology nurses, Lynne and Bethany were excited to see me, as this was my first infusion post surgery. When they asked my how it went, I jokingly told them that I was GREAT, minus one breast, and that if I started walking around in a circle they new why!!!…we laughed. I was finished with my treatment by twelve, Monique suggested that we drive to Kailua to check out a lingerie store.

Monique found this Lingerie store that specialized in post surgical/mastectomy bras, however it was clear on the other side of the island. My daughter said we should check it out, if anything you can at least get a comfortable bra to wear. Amy, the owner of the store was so nice, her mother is a survivor and they opened up this lingerie store after her surgeries and her quest for nice lingerie to wear post surgery. Amy was quick to let me know that she could look up my insurance information to see what was covered, and that she would only charge me my portion plus Hawaii tax, she would file a claim for the balance!!!! Needless to say I was excited!!! With our insurance, I was responsible for 10% plus tax!!!! So, the prosthesis that was my size was $200, which meant that it was $20 for me plus tax…..SCORE!!!! I purchased three bras (my insurance permits 6/yr) and my prosthesis and paid just under a whopping $60.00! The bra was so comfortable, and what a differance a weighted prostheses makes, I asked Amy if I could walk out of the store with it on!!!

Monique and I went to a beach side restaurant called Buzz’s…….lunch was delisioso!!! After lunch we crossed the street and went for a walk on this gorgeous beach!! Picture below……taken at Kailua Beach.

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The water was so warm, definitely will have to come back over here once I am cleared to get into the ocean!!!!

Thank you for reading my blog, and much mahalo for all the prayers and well wishes.

Pina

 

 

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29: Post op

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To quote my breast surgeon Dr. Nakashizuka,

The chemotherapy worked, these are the results we want to have”. “The breast tissue showed no evidence of aggressive cancer cells.” “The Lymph nodes also did not show evidence of aggressive cancer cells!” “There was only signs of non invasive cancer cells.”

Doctor spoke these words in a joyful voice with such excitement. She talked about the size of the original cancer and the lymph node and that there was no longer any signs of the tumor and that the Chemotherapy treatment recommended worked. She mentioned that my medical Oncologist would again talk to me about the need for Radiation Treatment.

Doctor removed the dressing over the mastectomy site. While examining the surgery site, Dr. Nakashizuka was asking Monique about the amount of fluid discharge. Monique was rattling off numbers as fast as doctor was asking for them. Doctor then says, “the drains are ready to be removed”! I immediately ask, “is it going to hurt?” Doctor smiled and said I have been through much worse and tapped my shoulder. Ummmm, that didn’t answer my question! Well, no I didn’t feel pain when she pulled them out.

It was a good visit. I have a busy week of appointments. I am being referred to Physical Therapy, to help avoid Lymphedema. My first appointment is tomorrow at 730 am! No sleeping in for me!! After that I will get my monthly blood draw, and on Friday I get my Herceptin infusion after seeing my Medical Oncologist.

It’s going on 11pm here on Oahu, time to call it a night……good night.

Much Mahalo for reading

Pina (Josefina Wallace)

 

 

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28: Pathology Results

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Friday evening I received a phone call from the office of Dr. Nakashizuka. Her office assistant called to inform me that the pathology came back on my breast that was removed and the lymph nodes……..no residual cancer cells post chemo!!!!!

Tomorrow (4/4) I have my first post op appointment with Dr. Nakashizuka and she will go over the details of pathology with me and change the dressing over the surgical site. I have read many articles and books, in which they say that it is pretty traumatic for the patient the first time that she sees herself with out her breast. I don’t feel that I will break down, being a Mammographer and my time working at The Cancer Center in Palm Springs has prepared me for this. I have been extremely compliant as far as post op instructions go. I know far to well what happens to the surgical site if you over do it!!!! No seroma for me if I can help it!!!

I have two drains on the mastectomy site that have been draining well. My daughter has been emptying and measuring the fluid daily. The surgeons office gave us a log to track the fluid. I am sure she will be pleased with my daughters diligent entries.

The Little Things:

You don’t realize how important good range of motion of your shoulders is for getting dressed. Due to the ” Lymph node dissection” my left arm has limited mobility. I had planned ahead and purchased  tops with buttons up front. I had to do a little retail therapy today and purchase a couple more tops and easy pull on bottoms. I attempted to put my favorite pair of shorts on today, but pulling the zipper up and buttoning the button was too much! So, shopping one must go!!!

It is getting late here in Oahu (well late for me) so I’m going to sign off. Thank you for reading, will keep you updated on upcoming appointments. Thank you for all the well wishes and prayers.

Much Aloha, Pina

 

 

 

 

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