Tag Archives: breastcancerawareness

#77 Pre-op/Post-op

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Wow ! Where to begin! The non-cancer side (RT) was reduced/lifted and treated with fat transfer for contouring. The left received fat transfer through two small injections on the flap mound. The healed previous scar was not manipulated.

Scare revisions: The gluteal (buttocks) scar was revised, with fat transfer for contouring. The front diep flap scar was revised, the scar will now sit lower below the umbilicus, and will be tighter. For those of you that have been following my blog, you know that I have a long scar on my back from the latissimus dorsi, surgery in November 2018. My NOLA surgeon asked how that scar felt. I answered honestly,:the scar has been bothersome, sometimes it pulls stopping me in my tracks we talked about revising that scar as well, which he did. It turns out there was a void underneath the scar wear he had me point to at my pre-op appointment.

Seems like a lot, I am not in pain🌸 I did not expect all the scar revisions, however when we talked about it at my pre-op it made sense, especially for the Lat- D scar!

The Lat-D scar is long, starts just below the left shoulder all the way down to below the waist line. I grateful for this facility an all their expertise with breast reconstruction.

The current plan is to discharge me today, I will finish my recovery here in NOLA till next week, we will fly to Cali for a couple of weeks after that. I have always said “ all want is two boobs” I know they will never be twins, I am good with “sisters”

This time it is working 💞🌸Mahalo for reading my blog and continued prayers for Lahaina🏝️ Pina (Josefina)

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#64 DIEP FLAP RECONSTRUCTION

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Mischief and Repose, 1895 Oil on Canvas…The J. Paul Getty Museum, Los Angeles

How does one prepare for a surgery like this? The name is intimidating, Diep stands for Deep Inferior Epigastric Perforator artery, which runs through the abdomen. A lot of people think Diep and Tram Flap are the same…not so. The Tram Flap utilizes the muscle where the Diep uses adipose (fat) and the skin along with blood vessels. I am fortunate that my Plastic Surgeon, Dr. Frederick Eko performs this microsurgery.

With that being said my surgery date has been set, it will be on October 24th. I will be hospitalized for three to four days, two of those days will be in ICU. The surgery will be performed at Eisenhower Medical Center in Rancho Mirage.

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My husband and children are all making plans to care for me post surgery, I am blessed to have them available for me. My Diep Flap surgery will be on my left breast. My left breast is the one that had to have the implant removed due to “implant failure caused by irradiated skin”. When the left breast implant was removed on April 4th, all the dead skin was removed as well. Now that is has healed completely you can literally feel my ribs! I tell people that it is like the pictures of the “Radical Mastectomies” from the 1960’s. The right side will also be worked on…a revision is necessary, I have excess skin. That implant will be removed and replaced with a slightly larger one, and some skin will be removed.IMG_6779.jpg

The black lines indicate where my current scars are. The scars on the left side will be gone, the new scar will look similar to the picture above. For the right side revision the scare will remain the same. My OR room has been booked for 10 hours. I have a preoperative anesthesia assessment appointment on the 18th, body marking on the 23rd (that’s where the surgeon will draw on my body) and surgery on the 24th.

It has been one long journey….I just want two boobs..or shall I say “foobs” (fake boobs)

Above is one of my favorite pieces from the Getty Museum, the shear fabric, the detail….I could go on and on. I see this picture, and it’s like she is saying “uhh, I just want my reconstruction to end…two boobs…I just want two boobs”

MANY MAHALOS FOR READING MY BLOG

Prayers and well wishes are received with gratitude and love……Pina

 

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48:Time Flies!

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Aloha everyone, my how Time Flies! It has been one whole month since leaving Maui back to our California home in Yucaipa. I am adjusting daily, the hardest thing has been the weather. I don’t believe there has been a day where it has reached 70 degrees! The above picture was taken last night from my home…..one can never used to how beautiful sunsets are.

I have established with my new medical team here in southern California. My new medical Oncologist is at the Cancer Center where I used to work prior to moving to Maui. I have had two appointments with him last month, the first being on February 13th. I was a bit overcome with emotion on that day, it was just surreal to walk in there as a patient and not an employee. Everyone that recognized me gave me hugs and well wishes, again the morning was rough for me. I really like my new Oncologist, he took the time to talk to me about my past treatment and the plan moving forward. I still have my medi-port, so he had the nurse flush it, and draw labs before I left. I have nurse visits for port flush for the next two months with my next Oncologist and labs appointment on May 25th. I established with a Primary Care Physician (PCP), also in the Palm Springs area, he ordered labs as well, I go back to see him next week to discuss the results of those labs. My PCP also asked about my decision to do a prophylactic mastectomy. My response “dense breast”. For those of you that have been reading my blog from the beginning you will recall that my breast cancer was not caught early due to the composition of my natural breast tissue. Which brings me to the picture below! Looking at the formation of those clouds reminded me of my dense breast tissue!! The white represents dense tissue and the blue representing fat. LOL….only a Mammography Technologist will look at the clouds and compare it to breast tissue!!!!…..yay,  try to find a tiny cancer starting in that hot mess!

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Plastic surgeon appointment:

I met with a plastic surgeon to discuss my reconstruction options. My husband was with me which words can not describe how much his presence there made a difference to me. The plastic surgeons office had an extensive questionnaire which was emailed to me and I had plenty of time to properly fill it out. We talked about the options of reconstruction (which I will save for another blog)

Basically, my last Radiation Treatment was on June 20, 2016 I had 29 rounds…..so, he will not do the surgery until one year has passed from that date, giving my skin enough time to heal from the mastectomy and the radiation treatment. My next appointment with him is on June 21st, which at this time we will proceed and get the prophylactic mastectomy and reconstruction scheduled.

Mahalo for reading my blog

Pina

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41: Maui to Lana’i and Back !

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When I signed up for this voyage I was a little apprehensive about it…to say the least. But I really wanted to do something significant to celebrate my successful feat in conquering each obstacle this past year. Chemo therapy was no joke, with each treatment I was sicker and sicker, then came surgery . With the help of amazing Physical Therapist, and my personal daughter nurse Mo with me, I recovered seamlessly. Then came Radiation Therapy, again by following doctors instructions on skin care to a tee in addition to  Physical Therapy, the Myofascial release, followed by Lymphatic massage has been a god send. One full year of Herceptin infusion completed……..I am officially done with treatment! How do I say farewell to this past year? I signed up to take part in The Pacific Cancer Foundations “Paddle for Life” “Voyage to Lana’i” fundraiser!

First and foremost, much mahalo to those who contributed to my cause, I am beyond appreciative. Love and support is not just monetary contribution to my cause. The past year I have received many cards (via mail), text messages of support, voicemails left on my cell phone, family coming to Maui, patients that I have imaged inquiring about me. I could go on and on. I truly feel so much love and support from everyone….I am blessed.

The Voyage :

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My day started with a 330am alarm. By 445am I was at our bus pick up location at Maalea Harbor, which took us to the West side of the island. I was not launching off, so therefor I was at the boat ramp. We were taken to our support boat via a zodiac boat. One the first six man exchange I was put in. You transfer in the open ocean from you support boat to the zodiac then to the canoe. I was really out of comfort zone but with the help and encouragement of my team and the boat support team I managed to transfer….no fear! (It’s not like I can say “God, please make the waves stop so I can transfer without the ocean moving”) I did it I am so proud of myself! Kept telling myself “I beat cancer I can do this”. Being in that canoe in the open ocean was intense on the way to Lana’i, the waves were intense, it was beyond exhilarating !!!! After a couple of exchanges I was put in to be part the landing crew. Paddlers in the launch and landing are survivors. Since I didn’t get to launch I got to land. Coming just past that rock that I never thought we would reach was so emotional. Our captain Linda T.A. had us stop just before coming in and said some encouraging words to each one of us, we were the last canoe in. All the other paddlers were lined up at the beach, I could just see and hear the cheer coming from everyone one the beach as we landed. To follow Hawaiian tradition when you land on another island, permission is granted, then you present gifts after Hawaiian chants and prayers. Each paddler presented gifts to the people of Lana’i. We were given Taro plants, and roots to present to them one by one……all 300 plus paddlers!!  It was a beautiful ceremony.

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We were provided lunch, by Hard Rock Cafe. After eating those of us that were camping needed to set up camp before the sunset. We were provided tents to pitch….pink tents!! I don’t remember the last time I camped in a tent! Some paddlers opted to stay at the Four Seasons or the Lana’i Hotel, I believe those were you only options. I opted to camp.img_3700

I pitched my tent and then went a little hike up to “sweetheart rock” with a fellow paddler and friend Flora.

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This is the rock that when paddling into Hulopoe Beach at Manele Bay I thought we would never reach! The view was so beautiful! Dinner was provided by Nalus , I believe they also provided our breakfast Sunday morning as well. A small group of us wanted to ride to visit Lana’i city. We piled into my team captains car and she took us to visit some sites on the island before going into the very small “Lana’i city”. Here is a picture of us by “Jax” which are large concrete barriers in the shape of jax. They create an ocean break where the barges  come in for deliveries of containers. img_3668

Sunday morning come oh so fast, sleeping on the ground was not very comfortable, especially being sore from paddling. By 630am our tents had to be down and packed, our bags with our belongs with our team had to be taken to our specific support boat. We had breakfast, 10 minute yoga stretch , morning prayers and chants in Hawaiian, songs were sang it was truly beautiful. I again did not get to be part of the launching crew, but we did get to see the launch before going to the boat harbor to our designated support boat. img_3698

A total of twenty-four canoes entered the water…and they were off. On the first six man exchange I was put in. Again transferring was a bit intimidating for me but I did it! It was blazing hot, the ocean was calm and our support boat captain turned the motor off and said we could jump in the ocean if we wanted. I jumped!!!! We had a rope to hold onto so we would not drift far, you bet I held onto that rope. It was so refreshing to jump in for that moment. There was going to be a couple of exchanges before I went back in so I grabbed my camera and took some photos. dscn0847

This is a picture of the zodiac coming toward our support boat to pick us up for another exchange. I was put in, and from what I understand the distance was another 3.8 miles away from Maui. Once in the canoe, you are paddling with strength that you did not know you had. No more exchanges, we were taking this canoe in!! Our steersman Buck was very encouraging, telling us that we were survivors and we could do this!! “Stroke, stroke, stroke” he shouted periodically, “timing people”, “stay focused, you can do this”, “stoke, stroke, stroke my matees! Our support zodiac came over to us to make sure that we were all ok to “ironman” in, we were given small water bottles in case there was not any at the beach waiting for us.

To describe the beauty of Maui from the ocean is impossible. We were so far out that you could not even see the beaches of the West side or the high rise resort hotels of Ka anapali. It was blue ocean, the verdant westside of Maui topped off with blue skies and scattered clouds that looked like a halo over an angel. Purely breath taking. As we got closer to Maui, we could see the resorts, with each stroke we got closer, but it seemed to take forever. The end was near as we got closer and closer, we could see that the rest of our team was in the water waiting  to help us bring this canoe in. We landed!!!

This voyage was beyond amazing, never did I imagine that one day I would be part of a team to paddle from one island to another. Doing this was physically and mentally challenging. It was both spiritual and emotional for me sometimes bringing tears to my eyes thinking of the past year….. but that is exactly what it is now…in the past. Time to focus on the the next phase.

Much Mahalo and love to the Pink Paddlers for being so welcoming, you are an exceptional group. I can not believe that this much anticipated event is over, I am so glad I did this.

Much Mahalo and love for taking the time to read my blog.     Pina

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40: Huli Practise

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The photo above was taken at a regatta competition, the canoe flipped over, other wise known as “Huli”.

I have been practicing for The Voyage to Lana’i , which is a major fundraiser here on Maui benefitting The Pacific Cancer Foundation. We will voyage from the island of Maui, to the island of Lana’i. There are over 300 hundred paddlers going across!

Saturday morning was huli practice , all voyagers that have never been in an actual huli were  highly encouraged to attend.  So there I went! I will be the first to admit I was not comfortable with it,  but knew I needed to experience it……..no fear!

Kimokeo, one of the organizers and spiritual leaders was with a canoe just off the shore. I was called over, I was honest and told him I was just a little frightened. (In my head I’m thinking, I am about to embark on a journey across the island….seriously) Kimokeo, (fully aware of my situation) asked my what side my surgery was on? I told him left. At this point he is in the ocean, he instructs me that when the canoe flips, come up next to him and hold on to the canoe with my right hand only. We flipped, I surfaced, I survived. But what happened next was totally unexpected.

I mentioned that Kimokeo is a spiritual leader. He does blessing through out the island. As I was coming out of the water he called me back into the ocean and placed his hands on my head and started praying in Hawaiian over me. He had me repeat the prayer with him, three to five words at a time, all in Hawaiian (pigeon). It was so beautiful and spiritual, I am literally getting chills as I am trying to describe this event. We went under water together three times together. I have been blessed and Baptized by Kimokeo. I truly feel that he sensed a fear in me, I no longer have that fear, I am ready for this voyage.

Mahalo for reading my blog

Pina

 

 

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39: Voyage to Lana’i

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I remember when I first moved to Maui, Jack and I were inside of Safeway grocery store, we saw this lady who was wearing a Mana’olana Pink Paddler t-shirt. Jack started a conversation with her letting her know that we had just moved here and that I was a mammographer . She invited me to paddle, as this is for supporters of Breast Cancer not just for survivors.

It is strange how the universe works. Here we are just over two years later, and I am a survivor!!! Last year I was looking into taking part of this annual voyage, however that ambition was cut short with my diagnosis of Stage 3 Breast Cancer last year in August.

My first chemo therapy was September 25th, exactly one year ago. I did it!!!! I managed to get thru the 6 treatments, recovered. Followed by surgery, recovered. Followed by Radiation Therapy, recovered! On September 2, I had my last of 12 Herceptin  infusions. I am kicking butt!!! All of this would not have possible without the love of my husband, kids, cousins (very special and dear to my heart)! I can’t say enough about all the amazing people I have met here on Maui…..much mahalo for the love and support.

The voyage? I will have to admit I was reluctant to sign up! After all this is traveling from one island to another and back. I have been paddling on Saturdays (cause I work M-F), lots of people here that I paddle with are retired, or have jobs that allow them to paddle out during the week. The more I thought about, the more the challenge excited me! I called the Pacific Cancer Foundation, talked to the director and she encouraged me, telling me that I could do it!

The Voyage to Lana’i  is not a race, I know that it will be physically challenging, but this past year hast been challenging, if I could survive Stage 3 Breast Cancer treatment, then I can do this, I am up for the challenge. And being placed on a team with the Pink Paddlers is just going to make this journey across the ocean extra special . The picture above was taken in 2014, when paddled with them how ironic is that!

I plan on blogging about my experience, I know it will be emotional and bittersweet for me. It will be my way of saying “nice try cancer” “I won”. The following is a link to my page for donations……please only donate if you are able, any amount is appreciated.

http://paddleforlife2016.myevent.com/participant/389253

This week I go see my Radiation Oncologist. A three month follow up appointment. Also I already have my next appointments set for my follow up with my  Medical Oncologist. My next trip to Oahu will be a two night stay.

January 11th: CT scan of the chest and abdomen. And a Bone Scan

January 12th: follow up with Breast Surgeon  Dr. Mari Nakashizuka/ in regards to the prophylactic mastectomy and my first consultation with Plastic Surgeon,  Dr. Vincent Nip (yes Nip!)

January 13th: follow up with Medical Oncologist; he will go over the results of the scans with me. Just need to pray that no new cancer decided to pop anywhere, and that the lung lesion has not grown!!

Mahalo, for reading my blog…have a wonderful work week!….Pina

 

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38: The Hair is Growing!!

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I do not recall ever having short hair! The texture is soft and it is curly in the back and wavy up on top. I had to break down and by a hair product, using Tea Tree Shaping Cream by Paul Mitchell. When some patients  see me and remember me from last year, they say “oh , you cute your hair….that looks really cute” My response : “actually this is new hair growth after Chemotherapy”!  Their jaw drops, patients have teared up, hugged me and have just been so kind with well wishes and prayers.

I do the Bone Densities for MDI, twice a month. One of the x-ray technologists does them on Saturdays. My last Dexa day (as I call it) told me she refused a Saturday appointment because she wanted me to do her exam so she can see how I was doing. Apparently I did her mammogram when I was in the middle of Chemo, she was so sweet.

It is hard to believe that a whole year has passed already. The journey has not been an easy one (especially the chemo part of it) but I did it!!!!!!

TOMORROW IS MY LAST HERCEPTIN INFUSION!!!!!!!!!!!!!!!!  After tomorrow I will officially be finished with my treatment! Except for the Anastrozole that I have to take for the next five years (possibly ten) And of course the ongoing test to make sure the cancer does not decide to pop up somewhere else!!!…..one day at a time!!!

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Well,  besides having a Primary Physician, Oncologist, Radiation Oncologist, Pulmonologist, Breast Surgeon, Plastic Surgeon…..I can now add a Podiatrist to the list! Since Chemo treatment number four and five I have had problems with ingrown toenails. (There has been no coorilation between ingrowns and chemo.) I have experienced and continue to have slight neoropathy of the toes and fingers (not so much on fingers) So the infections seem to creep up on me! I don’t feel them till it’s infected. The past three months have been riddled with frequent trips to the Podiatrist. Literally it seems like I have been to see him every two to three weeks. He has in the past mentioned a procedure to eliminate the growth of the nail going down, causing the ingrown. The procudure is call a Matrixectomy. I had this produre done yesterday, initially went in for the ingrowns, agian. After he (Dr. Lee) numbed both great toes, he offered the procedure. It required more numbing, which was super painful…I mean SUPER painful.  After the side of the nail is removed, acid is placed to kill future growth of the nail. So, once agian I am on ocean restriction…no ocean for two weeks!!! Today was challenging to work, the toes hurt but I managed to work the whole day!!! fyi: the pain was when the injection of lidocaine is administed, after that I didn’t feel a thing… and Dr. Lee continuously kept asking if I felt anything. He wanted to make sure i was completely numbed up.

Hopefully tomorrow mornings flight to Oahu is uneventful. The Hawaiin islands are on huricane watch, so far Maui has been unscathed from this threat (knock on wood), I dont like turbulance on the flights!

It’s getting late and I have to get up early to fly out….good night and much Mahalo for reading…

Pina

oh, one more thing…. I wore mascara the other day for the first time!!! the little things!

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26: Happy Birthday to Me!

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Today I am 53 years young! Developing breast as a teenager I do not remember thinking I want to be large busted…..they just grew…..I had no choice! I have my  dads side of the family to thank for being well endowed, for the most part the Quezada women are large busted.

This summer will mark 17 years as a Mammographer, and when I started my career in Mammography, I never thought that one day I would be walking in the shoes of so many patients that have crossed my path. In three days I will be having my left breast removed. Patients this week when I would mention it, where in awe at how well I am handling the up coming surgery. I know I will be fine. I have a great doctor, and the love and support of my family and friends. I have had patients cry for me, I would console them and tell them not to cry for me that I would be fine. I have had patients say a quick prayer after their mammogram was done, and yesterday prayed with one of my co-workers. And I know that I have many people praying for me and wishing me well.

Today my  day will start early with breakfast at  Jax and Sean’s condo, followed by a massage and pedicure treatment at The Andaz Hotel. Will more then likely indulge with lunch at The Andaz as well! Throw in a little retail therapy and later in the evening my daughter Monique will arrive on island and we will have drinks and desert at one of my favorite restaurants”Monkey Pod”.

Dear Left Breast,

Thank for serving your purpose,  you nursed three healthy children. You’ve turned heads when I was younger and in my prime, well I’m not done living! In three days you will be removed from my body and that is ok. You do not define who I am as a women, and because you have decided to go rouge on me you must go!

So, nice try……………..you lose………………..I WIN !!!!!!!!!

H A P P Y          B I R T H D A Y          T O        M E !!!!!!!!!

 

 

 

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18: Chemo #2,

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The week after taking my hair, on my terms I was able to work. I got lots of hugs from patients that recognized me from last year, some would just ask. I am more than happy to share my story, especially is if patients will realize how important Breast Self Exam are. I can’t tell how many women will tell me that they don’t know how to do them…..kills me! I had one patient tell me that she wasn’t sure why I obviously did not have hair, but she said that the way I wore the scarf on my head looked really beautiful, she told me I was beautiful……….made me a little emotional.

You don’t realize how much your fur (hair) keeps you warm at night! I wear a beanie to bed. The rest of my hair is falling, I have lots of little hairs on the bar soap when I shower. Oh, it was really weird showering the first time after buzzing it. I also see that some of my eyelashes are coming off! They somehow always end up in my eye, so irritating. This  past weekend Jax and I went to the beach for some much needed beach chair therapy…..felt good to get in the ocean!

Today, October 15th , Jax and I flew to Oahu. I had my appointment with the Genetic Counselor. Received the wonderful news that I am negative for the mutated gene! My girls will not need to be tested. However, with having a primary risk factor, meaning me (mother) they have a 20% increase risk factor for getting Breast Cancer.

My Chemo treatment today went well. The Oncology Nurse offered me an injection of lidocaine on the port site before placing the catheter. I declined, yea, not sure that was the right choice……it hurt! But it was fast, just felt like a shot, and so it started. One of the bags is a Benadryl, which helps with the side effects of the Taxotere drug. I am getting TCH + Pertuzumab. That is Taxotere, Carboplatin, Herceptin, plus Perjeta (Pertuzumab) I got sleepy due to the Benedryl, I took a book for continuing education, when I kept reading the same question over and over I new it was time for my “chemo-siesta”!

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The above picture is a device that was placed on my tummy. It’s a little machine that tomorrow will inject a medication called Neulasta. Neulasta helps reduce risk of infection by boosting my white blood cell count to strengthen my immune system. One thing for sure is I can not be around sick people!!!!

It is 10:46 pm here on Maui, but I just wanted to share today with you as I know a lot of you want to stay informed. I also want to say that I truly appreciate all the text, private messages, voice mails  etc. I do read/listen to each and every message. I had one friend send me a religious inspirational message that I saved and read it frequently. I am working tomorrow, I Have a light schedule done intentionally for me……MDI is really accommodating my work schedule needs, words can’t explain how much I appreciate them.

Warmest Aloha Pina (josefina)

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17: On My Terms

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With aggressive Chemo Therapy comes hair loss. There are a lot of things happening to my body due to the treatment that are out of my control. I have always loved my curly hair, especially with all the new products for people with naturally curly hair. Living here on Maui I have learned to “embrace the curl” , I would no longer straighten my bangs because in no time at all the moisture in the air would curl them! Well I wanted my hair to come off on my terms, and not the side effects from the Chemo! I was told that it would start coming off as soon as 10-14 after the first infusion………today marked day ten! I know this is temporary and that eventually it will grow back. Right now having hair is the least of my priorities, I need to get through the next five treatments, I need to stay healthy, I need to stay strong, I need to fight!!!!!

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My hair will be sent to Locks of Love. Much Mahalo, Amanda for doing the honors, look forward to my head massages!!

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