Tag Archives: believe

41: Maui to Lana’i and Back !

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When I signed up for this voyage I was a little apprehensive about it…to say the least. But I really wanted to do something significant to celebrate my successful feat in conquering each obstacle this past year. Chemo therapy was no joke, with each treatment I was sicker and sicker, then came surgery . With the help of amazing Physical Therapist, and my personal daughter nurse Mo with me, I recovered seamlessly. Then came Radiation Therapy, again by following doctors instructions on skin care to a tee in addition to  Physical Therapy, the Myofascial release, followed by Lymphatic massage has been a god send. One full year of Herceptin infusion completed……..I am officially done with treatment! How do I say farewell to this past year? I signed up to take part in The Pacific Cancer Foundations “Paddle for Life” “Voyage to Lana’i” fundraiser!

First and foremost, much mahalo to those who contributed to my cause, I am beyond appreciative. Love and support is not just monetary contribution to my cause. The past year I have received many cards (via mail), text messages of support, voicemails left on my cell phone, family coming to Maui, patients that I have imaged inquiring about me. I could go on and on. I truly feel so much love and support from everyone….I am blessed.

The Voyage :

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My day started with a 330am alarm. By 445am I was at our bus pick up location at Maalea Harbor, which took us to the West side of the island. I was not launching off, so therefor I was at the boat ramp. We were taken to our support boat via a zodiac boat. One the first six man exchange I was put in. You transfer in the open ocean from you support boat to the zodiac then to the canoe. I was really out of comfort zone but with the help and encouragement of my team and the boat support team I managed to transfer….no fear! (It’s not like I can say “God, please make the waves stop so I can transfer without the ocean moving”) I did it I am so proud of myself! Kept telling myself “I beat cancer I can do this”. Being in that canoe in the open ocean was intense on the way to Lana’i, the waves were intense, it was beyond exhilarating !!!! After a couple of exchanges I was put in to be part the landing crew. Paddlers in the launch and landing are survivors. Since I didn’t get to launch I got to land. Coming just past that rock that I never thought we would reach was so emotional. Our captain Linda T.A. had us stop just before coming in and said some encouraging words to each one of us, we were the last canoe in. All the other paddlers were lined up at the beach, I could just see and hear the cheer coming from everyone one the beach as we landed. To follow Hawaiian tradition when you land on another island, permission is granted, then you present gifts after Hawaiian chants and prayers. Each paddler presented gifts to the people of Lana’i. We were given Taro plants, and roots to present to them one by one……all 300 plus paddlers!!  It was a beautiful ceremony.

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We were provided lunch, by Hard Rock Cafe. After eating those of us that were camping needed to set up camp before the sunset. We were provided tents to pitch….pink tents!! I don’t remember the last time I camped in a tent! Some paddlers opted to stay at the Four Seasons or the Lana’i Hotel, I believe those were you only options. I opted to camp.img_3700

I pitched my tent and then went a little hike up to “sweetheart rock” with a fellow paddler and friend Flora.

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This is the rock that when paddling into Hulopoe Beach at Manele Bay I thought we would never reach! The view was so beautiful! Dinner was provided by Nalus , I believe they also provided our breakfast Sunday morning as well. A small group of us wanted to ride to visit Lana’i city. We piled into my team captains car and she took us to visit some sites on the island before going into the very small “Lana’i city”. Here is a picture of us by “Jax” which are large concrete barriers in the shape of jax. They create an ocean break where the barges  come in for deliveries of containers. img_3668

Sunday morning come oh so fast, sleeping on the ground was not very comfortable, especially being sore from paddling. By 630am our tents had to be down and packed, our bags with our belongs with our team had to be taken to our specific support boat. We had breakfast, 10 minute yoga stretch , morning prayers and chants in Hawaiian, songs were sang it was truly beautiful. I again did not get to be part of the launching crew, but we did get to see the launch before going to the boat harbor to our designated support boat. img_3698

A total of twenty-four canoes entered the water…and they were off. On the first six man exchange I was put in. Again transferring was a bit intimidating for me but I did it! It was blazing hot, the ocean was calm and our support boat captain turned the motor off and said we could jump in the ocean if we wanted. I jumped!!!! We had a rope to hold onto so we would not drift far, you bet I held onto that rope. It was so refreshing to jump in for that moment. There was going to be a couple of exchanges before I went back in so I grabbed my camera and took some photos. dscn0847

This is a picture of the zodiac coming toward our support boat to pick us up for another exchange. I was put in, and from what I understand the distance was another 3.8 miles away from Maui. Once in the canoe, you are paddling with strength that you did not know you had. No more exchanges, we were taking this canoe in!! Our steersman Buck was very encouraging, telling us that we were survivors and we could do this!! “Stroke, stroke, stroke” he shouted periodically, “timing people”, “stay focused, you can do this”, “stoke, stroke, stroke my matees! Our support zodiac came over to us to make sure that we were all ok to “ironman” in, we were given small water bottles in case there was not any at the beach waiting for us.

To describe the beauty of Maui from the ocean is impossible. We were so far out that you could not even see the beaches of the West side or the high rise resort hotels of Ka anapali. It was blue ocean, the verdant westside of Maui topped off with blue skies and scattered clouds that looked like a halo over an angel. Purely breath taking. As we got closer to Maui, we could see the resorts, with each stroke we got closer, but it seemed to take forever. The end was near as we got closer and closer, we could see that the rest of our team was in the water waiting  to help us bring this canoe in. We landed!!!

This voyage was beyond amazing, never did I imagine that one day I would be part of a team to paddle from one island to another. Doing this was physically and mentally challenging. It was both spiritual and emotional for me sometimes bringing tears to my eyes thinking of the past year….. but that is exactly what it is now…in the past. Time to focus on the the next phase.

Much Mahalo and love to the Pink Paddlers for being so welcoming, you are an exceptional group. I can not believe that this much anticipated event is over, I am so glad I did this.

Much Mahalo and love for taking the time to read my blog.     Pina

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40: Huli Practise

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The photo above was taken at a regatta competition, the canoe flipped over, other wise known as “Huli”.

I have been practicing for The Voyage to Lana’i , which is a major fundraiser here on Maui benefitting The Pacific Cancer Foundation. We will voyage from the island of Maui, to the island of Lana’i. There are over 300 hundred paddlers going across!

Saturday morning was huli practice , all voyagers that have never been in an actual huli were  highly encouraged to attend.  So there I went! I will be the first to admit I was not comfortable with it,  but knew I needed to experience it……..no fear!

Kimokeo, one of the organizers and spiritual leaders was with a canoe just off the shore. I was called over, I was honest and told him I was just a little frightened. (In my head I’m thinking, I am about to embark on a journey across the island….seriously) Kimokeo, (fully aware of my situation) asked my what side my surgery was on? I told him left. At this point he is in the ocean, he instructs me that when the canoe flips, come up next to him and hold on to the canoe with my right hand only. We flipped, I surfaced, I survived. But what happened next was totally unexpected.

I mentioned that Kimokeo is a spiritual leader. He does blessing through out the island. As I was coming out of the water he called me back into the ocean and placed his hands on my head and started praying in Hawaiian over me. He had me repeat the prayer with him, three to five words at a time, all in Hawaiian (pigeon). It was so beautiful and spiritual, I am literally getting chills as I am trying to describe this event. We went under water together three times together. I have been blessed and Baptized by Kimokeo. I truly feel that he sensed a fear in me, I no longer have that fear, I am ready for this voyage.

Mahalo for reading my blog

Pina

 

 

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34: Memorial Day

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While most people here on Maui probably spent the day at the beach, my daughter and I went to a small town in upcountry called Makawao. We stopped at the Veterans Cemetery, where every single plot was adorned with a flag and a floral lei. Thousands of plumeria flowers were scattered throughout, with the slight breeze in the air the fragrant flowers were obvious. Because of my ongoing radiation treatment, a day at the beach was not a good choice for me….and besides, the beaches were really crowded. And it’s not like a can get in the water yet….August can’t come fast enough !!

On May 20th, I had my Herceptin infusion, along with a short term follow-up CT of my lungs for that lesion on my right lower lobe. The day was jam-packed, we flew to Oahu, went straight to Queens Medical Center. The radiology department was right on time with my scheduled appointment, after which we headed to Dr. Chongs for my appointment with him. As soon as the infusion was done we headed back to the airport. I needed to be back on Maui for my 3:15 radiation treatment appointment. The day went smooth, the TSA line had me worried there for a bit but we made it!

I received the results of the CT, “stable right lower lobe pulmonary nodule”…HAPPY DANCE!!!!! So what’s next? The nodule has not grown since the last CT done in February, it remained 7mm in size. Back in August 2015, when it was discovered it was 5mm, now the plan is to repeat with another CT in six months to confirm its stability.

Radiation Treatment: So far I have had 13 treatments. My last scheduled treatment is June 29th. I can do this!!!! After chemo this is a breeze!!! At work I have many patients wishing me well. I had one patient that we were doing a six month follow-up from her November 2015 mammogram. She told me she was hoping that she would get me, as she wanted to see how I was doing. Patients will sometimes ask me if they can hug me, this is the rewarding part of my job….hugs are good. My next infusion is June 17th.

My husband bought me a new camera for our wedding anniversary in April. He said that since I can’t get in the water or paddle out with the canoe club I can take photos, I am having fun with my new camera, it’s a Nikon coolpix900. One of the coolest features of this beauty is that it has its own wi-fi. I have an app on my iPhone , I can transfer the picture from the camera to my phone anywhere! Oh my the possibilities…..83 optical zoom!!

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I took this picture when we were leaving the cemetery today. I was probably a good city block away from this horse!!!!

Mahalo for reading my blog, have an amazing day!!!!……..life is good 🙂

 

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32: Radiation Therapy

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We flew back to Maui one week ago today on April 30th. The picture above is a picture of Sugar Beach in North Kihei, it’s a really nice long walk!!! On Monday I had my simulation appointment with the Radiation Oncology department here at the Pacific Cancer Institute on Maui. I got to meet Dr. Baker (he was off island the last time I was there). Dr. Baker talked with us (my husband and I) and explained again the importance of radiation treatment after chemo for me. It is important to know that not everyone with breast cancer gets both chemo and radiation…..each case is different.

The simulation CT was interesting. My upper body was positioned on a deflated pillow that contained micro beads. These micro beads when heated up stiffened and hardened, forming a mold of my upper body including my head. I laid down on it with my right arm down and my left arm up with my elbow bent. The mold was created, this will be used for all my radiation therapy appointments. The purpose of the simulation CT is so that the Radiation Oncologist can determine the radiation field and create a treatment plan. That is the simplest explanation I can think of without getting too technical!!!

The Radiation Therapist (Radiologic Technologist with a specialty license in Radiation Therapy) was very kind. Part of the process for the simulation appointment is you get marked (tattoo)  where the laser beam is to be positioned for you treatments. I joked with Max when he was about to tattoo me that this was his “side hustle”! I also let him know that these were my first tattoos, we laughed because seriously they are two very small dots!!!

My treatment will be six weeks long, Monday thru Friday my first treatment is Wednesday May 11th!! I am off of work for one more week, I go back on the 16th of this month. Just like with chemo I will work thru the radiation therapy as well. Maui Diagnostic Imaging will work with my appointments for the next six weeks permitting me to work thru this next chapter of my treatment.

Time to sign off, much Mahalo for reading my blog. It is 9:11 am, I need to do my physical therapy and pick up two very special people that will be here with me for the next seven days!!!

Aloha Pina

 

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21: Chemo #5!!!

 

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Tomorrow I fly to Oahu for Chemo #5!!!! It feels like just this Monday I was feeling much better from the effects of chemo #4! This last round was really rough. The nausea subsided, however the stomach bowel issues continued. My bones aches and I get really tired. I just ignore the ache and work through it, working through this has been really good in keeping me busy and just having something to do instead of being on medical leave. My Oncologist wanted to put me out on Medical leave, but I opted to work through the Chemotherapy  instead. Really thankful to MDI (My employer) that they have worked with me with my limited availability.

Patients have been so sweet, I get lots of hugs from them. Since I have been working here for over one year, I am doing mammograms on patients that I attended in 2014. They recognize me and ask what happened, I share my story with them. I get lots of hugs, some patients have asked me if they can say a prayer with me before the leave. I have had patients tell me that I have a positive aura and they feel that I will be just fine. I get lots of compliments on my complexion, and the way I use scarves to wrap my head. And then of coarse there is always some people that are not so nice. I have been asked if I am Muslim twice! One patient asked me if I was Middle Eastern? I have been asked if I was Jewish?  I am to the point where my response is “no, I have Cancer and I have no hair, that is why I have this on my head!” One on the patients that asked me if I was Muslim, asked that in a very harsh tone in here voice. I wonder if I would have said “yes”…..would she of let me do her mammogram? Those questions are just not appropriate! This past week and a half at work has been interesting. I don’ let those people get to me, they are a small percentage compared to all the well wishers! Several patients tell me that they will look forward to seeing me for next years mammogram! Yay, they are looking forward to next years mammogram!!!!!! Mission accomplished!

I am not looking forward to the next few days as the effects of Chemo #5 set in. However I am looking forward to having my whole family together here on Maui for Christmas!!! I know that the weather in southern California has been cold, today here in Kihei the temperature reached 91 degrees!!!! Warmest Aloha to all reading this, and please feel free to share my blog if you like.

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16: Breast Cancer Awareness

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On Saturday September 26th, the effects of my first Chemo treatment hit me like a ton of bricks. Words can not describe on how sick I was feeling. The vomiting and diarrhea was like NOTHING  I have EVER experienced. Your body is so weak, your bones ache, you have no desire to eat, drink, or talk. You know you have to eat, but it takes energy to eat, and you just do not have an ounce of energy to spare. I have a new appreciation to all the patients that have passed my path in my Mammography career, they are true survivors, I too will soon be a survivor!

On Monday morning (Sept. 28), my primary doctor took the dressing off of my Portacath. She reached out to my Medical Oncologist to discuss medications to ease the effects. The medications made a huge difference, but I still felt awful. I don’t know what I was thinking when I thought I could go into work on Tuesday!…….I only lasted three hours!!! On Wednesday, my day was going to be split between our Triangle Square clinic (11 miles away) and our Kihei clinic  (.2 miles away) from my home. Was fortunate that MDI was okay with me only working the afternoon in Kihei. I worked on result letters, waited for the Hologic service engineer as our power supply on the unit was going to be replaced. The part was scheduled to arrive on Thursday, so he bypassed the issue so I can do the QC and patients till Thursday. Because of this issue patients were taken off the schedule, I only had two patients to do, even then, when I was done, I was so exhausted. Lee, the front desk receptionist was super helpful. She was going out of her way to help me in any way possible……………….truly blessed to have amazing staff at MDI!

With the new month being October, it brings us the annual “Breast Cancer Awareness” month. The picture above is made from only some of the t-shirts I have accumulated from doing Breast Cancer walks. If there is a walk near you, please consider participating.

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